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No one knows exactly what causes sarcoidosis. It is probably due to a combination of factors and genetic predisposition appears to be important. Share your family and work history, environmental exposures and seasonal disease patterns.
- By Licia · New reply May 23, 2009
- 5 replies
- dose anyone have sarc symptoms of the skin when they are expose to the sun for long period of time like rashes ...
- By mykal_brown · Posted May 21, 2009
- 0 replies
- I'ved noticed that if I worry about something or stress for a while.My sarc. flares up,and I itch really bad nothing seems to calm it down. Any advice ...
- By Baby-Pauls-Mom · New reply May 19, 2009
- 9 replies
- Does anyone have any idea if there is a survey out there? Wouldnt it be nice if there was a survey/questionaire available to every new patient that is diagnosed with Sarcoid? I am very interested in knowing ...
- By ocean27 · New reply May 14, 2009
- 29 replies
- My docs go back and forth between ms and neurosarcoid. I have sarcoid in my heart, lungs, eyes and lower abdomen. They say that heat sensitivity is only visible in ms not sarcoid. Just wondering if anyone ...
- By hotnanan46 · New reply May 14, 2009
- 10 replies
- I'M VERY NEW TO THIS AN I DON'T KNOW WHAT REALLY TRIGGERS MY SACROIDOSIS AND IF THERE IS ANYONE OUT THERE THAT CAN HELP ME PLEASE FEEL FREE TO DO SO AND I WOULDLIKE THAT VERY MUCH.AND I HAVE ONE MORE ...
- By Fatboy21 · New reply May 1, 2009
- 17 replies
- I have had sarcoid for 9 years and I am convinced that being out in the sun triggers attacks. In the UK the doctors do not take vitamin D production by sunshine as a possible trigger. Does anyone else ...
- By SarcoidSooner · New reply April 27, 2009
- 6 replies
- I was bitten by a brown recluse(fiddleback) spider in late June of last year. The bite was right under my right armpit, and hung around for a couple weeks. Luckily I had no skin necrosis, and it healed ...
- By rbdavis172 · New reply March 29, 2009
- 58 replies
- Can everyone please think of all the unusual ways that you may have been exposed to something causing sarc? Since we don't know the cause....i find it interesting to hear personal theories on how those ...
- By LPB · New reply March 10, 2009
- 19 replies
- Just diagnosed with Sarcoid (2/09). It is not in my lungs or any other organ that I'm aware. It is in my lymph nodes and chest cavity. I've had extreme stress in the past several months - stress beyond ...
- By kim1228 · New reply March 3, 2009
- 15 replies
- Does enviroment trigger it or chemicals you breath in? I don't know alot about it but have been misdiagnosed for many many years ...
- By carol101 · New reply February 27, 2009
- 3 replies
- I have been trying to find information on the salk vaccine which was contaminated but still dispensed in some areas in the 1950's. I believe a 'whistle blower' doctor was published and a link was found ...
- By exultant · New reply February 25, 2009
- 7 replies
- Hi All, Over the New Year holiday, I broke one of my self-imposed dietary rules and drank almost a six-pack of soda pop sweetened with high fructose corn syrup over a 2-3 day period. Boy, did I pay for ...
- By jmaze · New reply February 24, 2009
- 39 replies
- Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...
- By benjumanji2000 · New reply February 14, 2009
- 25 replies
- Hi All, Thought I would give everyone on here some information given to me by my specialist. Dr Charlotte Rayner is a leading specialist in London researching Sarc. I have seen her a few times now, but ...
- By MJC1 · New reply February 12, 2009
- 2 replies
- I've been suffering from an upper respiratory infection for the last couple weeks. Will this make the saracoidosis worse ...
- By CoastalCoreKayla · New reply February 11, 2009
- 68 replies
- I had mononeucleosis a few years ago and I have read that some scientists believe that mono and sarc are linked. It is generally accepted that since mono damages your immune system it could lead to sarcoidosis ...
- By bigjoe · New reply February 2, 2009
- 4 replies
- Did you see the program? The Dr. talked about blood calcium levels and disease. One of the diseases mentioned was Sarc. I just began to focus at the tail end and was wandering what you thought about his ...
- By daverojo77 · New reply February 2, 2009
- 9 replies
- Here is another story that shows possible links between sarcoidosis, breathing in contaminated areas possibly asbestos or other dusts. "For a period of seven months, state employees were required to work ...
- By singernomore · New reply January 17, 2009
- 12 replies
- i thought that some of you would be interested in this new article - not directly about sarcoidosis, but related - see news release: Scientists Implicate Gene in Vitiligo and Other Autoimmune Diseases ...
- By Krissy · New reply January 16, 2009
- 25 replies
- A few months ago I asked if many of you had gone gluten free with your diets. Since that time I have been gluten free. Christmas day I broke the rules because I was at a friend's place and he had gone ...