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Triggers

No one knows exactly what causes sarcoidosis. It is probably due to a combination of factors and genetic predisposition appears to be important. Share your family and work history, environmental exposures and seasonal disease patterns.

9/11 Connection?

survivor911
  • By survivor911 · New reply October 30, 2009
  • 17 replies
  • I have been trying to get someone in the medical profession admit to me that my sarcoidosis COULD be a result of my 9/11 experience. I am a 9/11 survivor, and was dx'd with possible sarcoidosis during ...

MOLD

micheleb
  • By micheleb · New reply October 26, 2009
  • 22 replies
  • I know this topic has come up before but I wanted to see if anyone has found any specific link to mold and sarc? I work in a small office in a strip mall. Each office is around 1,000 to 1,300 sq feet ...

Sarcoidosis Vs. Psoriasis

doomy1
  • By doomy1 · New reply October 17, 2009
  • 11 replies
  • I have both Sarcoidosis and Psoriasis. Have had Psoriasis since the age of 8, and I was diagnosed with Sarcoidosis approx 3-4 years ago. The initial trigger with the Sarcoidosis was Erethema Nordosum ...

Gastritis

mrsbias
  • By mrsbias · New reply October 17, 2009
  • 17 replies
  • This may sound crazy to you guys and gals but it caught my attention. Years ago (1991) to be exact I was diagnosed with gastritis. Never gave it much mind...I was younger and REALLY who did they think ...

I can't stand to smell perfumes or colonges?

IFGODBEFORYOU619
  • By IFGODBEFORYOU619 · New reply October 9, 2009
  • 27 replies
  • I can not stand to smell perfumes or colonge It makes my throat raw and instantly makes me wheeze short of breath. Going to the mall walking through the area where it is sold and sitting beside someone ...

Anyone have weird reactions to contrasts?

Teacherteacher
  • By Teacherteacher · New reply October 5, 2009
  • 6 replies
  • My primary sent me to the ER for ct scan to find out why the pain from the diverticulitis hadn't gone away yet. I've reacted to all the "friendly, safe" IV contrasts. So the ER doctor, who has seen me ...

Use of Chemicals in an Apartment building

Christina5
  • By Christina5 · New reply October 1, 2009
  • 9 replies
  • Hi Everyone: I have recently moved into an apartment in Windsor, Ontario ( moved here to find help for Sarc ) I have a very big problem with what is happening with the use of chemicals in our building ...

OSHA agreed that the building I work in has indoor air quality problems!

Muriel74106
  • By Muriel74106 · New reply September 24, 2009
  • 3 replies
  • Hello everyone. I just wanted you to know that I am very happy and very sad about what I found out. it was determined that there was an indoor air-quality problem in the building that I work in. My friend ...

Sarcoidosis attacks my bone after big shock.

Benoit
  • By Benoit · New reply September 22, 2009
  • 7 replies
  • Sarcoidosis, which attacks a bone following a shock. Hello, after 3 months of assumptions I think I finally understand without the help of the ten doctors who have examined what happened to me. I have ...

Renovating a house and sarcoidosis

Benoit
  • By Benoit · New reply September 20, 2009
  • 21 replies
  • Hello, I had an untreated pulmonary sarcoidosis in 2006, which had healed by itself. I worked at the time in a factory Peugeot (the car brand French), with all the toxic substances we imagine. The symptoms ...

Fragrances make me sick

Berryboy
  • By Berryboy · New reply September 16, 2009
  • 18 replies
  • Everytime someone uses anything with a fragrance I get nauseous and my nose and throat start burning. Then my head starts spinning and pounding. I have to take Imitrex to survive the migraine. No one ...

Why did (former) GP prescribe Vit D and sunshine?

BluePurl
  • By BluePurl · New reply September 15, 2009
  • 13 replies
  • My now former GP (ARNP) upon learning about my Sarcoid diagnosis prescribed me VitD (to be taken once a week) and told me that I needed to sit outside to get more VitD naturally. It wasn't too long and ...

Connection between hormones and sarc

lngsarc
  • By lngsarc · New reply August 31, 2009
  • 3 replies
  • This is mostly in connection to females with sarc. i believe that there is a bigger connection between estrogen levels and sarc. my dr briefly mentioned it but its not sumthn official i guess. for me ...

Diabetes and Sarc

gisu
  • By gisu · New reply August 29, 2009
  • 17 replies
  • Does anyone have diabetes and sarc here? I am wondering if the two are somehow related ...

chest tightness and panic

erin
  • By erin · New reply August 28, 2009
  • 6 replies
  • Hi All, I have found reading this site very helpful but also very discouraging. I have no idea where my sarc is. I have been told its vascular...whatever that means...but am increasingly aware of being ...

Sarcoid Macrophage Proliferation and Vitamin 1,25D

priscurl
  • By priscurl · New reply August 26, 2009
  • 74 replies
  • As you know, all you good people with sarcoidosis, one of my favourite things to bang on about is avoidance of vitamin D. As you know, I have been warning you of the dangers of hypercalcemia. This is ...

Bacteria in Granulomus

BeachBumJan
  • By BeachBumJan · New reply August 20, 2009
  • 8 replies
  • My son sent me this info. Has anyone else heard this?? Some of the latest research has shown that it is bacteria in the granulomas that initiate and cause sarcoidosis. So this is definitely one autoimmune ...

Root canal

designing-woman
  • By designing-woman · New reply August 20, 2009
  • 8 replies
  • Has anyone had a root canal Pryor to symptoms starting? I had one right before I started having symptoms, and I read about a connection between root canals and some forms of cancer. I have pain on the ...

What caused this Sarcoid?

IamGrateful
  • By IamGrateful · New reply August 15, 2009
  • 17 replies
  • I am a little curious, since most things have a cause. What do YOU think stimulates or triggers sarcoid in the body? Bottomline, what is the cause of Sarcoidosis ...

Pulmonary Hypertension question

IamGrateful
  • By IamGrateful · New reply August 10, 2009
  • 7 replies
  • I have Sarcoid of my lungs. My heart rate is ususlly 110 resting and 130 with activity. My echocaridogram is normal. I'm a little curious because I hear many speaking of having Pulmonary Hypertension ...

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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