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Welcome to Inspire!
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Treatment decisions
Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.
Sarcoidosis Specialist in OK
- By Bdr · New reply November 6, 2009
- 5 replies
- Does anyone have any information/recommendation for sarcoidosis specialist in Oklahoma. I am looking for a new dr. I was seeing my reg. IM doctor, but he referred me to a pulmonologist, that never really ...
going back to madison for the transplant
- By snappykappy · New reply November 6, 2009
- 14 replies
- follow the yellow brick road follow the yellow brick road follow the yellow brick road follow follow follow follow the yellow brick road i'm off to see the wizard to get some better lungs quick response ...
New Dr. and Pred. dosage?
- By ntrae426 · New reply November 6, 2009
- 11 replies
- I just saw my new primary Dr. who doesn't know much about Sarc. I told her I think it is flaring in my jaw (salivary) again. I explained what was going on and she phoned the ENT (who I wanted to see ...
Rheumatologist in the Raleigh/Cary NC area
- By pfehrman · New reply November 6, 2009
- 2 replies
- I need a new rheumatologist, but I'm having a terrible time finding a good one. I keep getting referred to this one female rheumy that I didn't get along with at all and I don't want to return to her ...
Hospital visits
- By tishee · New reply November 5, 2009
- 7 replies
- Hi guys. After I was diagnosed with sarc. I have been in the emergency room over 9 times this summer. Mostly stomach issues, and usually because I am hypercalcemic. I am not sure I even understand what ...
REMICAID FOR PULMONARY SARCOID
- By KJ · New reply November 5, 2009
- 8 replies
- I have been diagnosed with sarcoid in my small airways. Because of worsening PFT's over the last 2 years, my doctor put me on 20mg of prenisone which did not result in any improvement after 2 months ...
Prednisone & Chronic Sarc Questions
- By JacobeanLily · New reply November 4, 2009
- 22 replies
- I've posted many times about the pros and cons of taking medications for chronic sarc (as opposed to acute sarc, which often remits on its own) and here I go again. I've had measurable sarc symptoms for ...
8 yrs - now early signs of pulm fibrosis -- treatment suggestions please
- By meghna · New reply November 3, 2009
- 7 replies
- Hello: I am new to this group. It is a very nice group. My wife has been diagnosed with Pulm Sarc in 2001. She will be 39 yrs in Dec 2009. The Lymp Nodes have remained stable (but enlarged) for the last ...
radiation
- By NVRTHGTTHS · New reply November 3, 2009
- 8 replies
- After battling my neurosarcoid for awhile with every type of medication thought of my doctor and I are thinking about radiation. My sarcoid has concentrated itself in my cervical spine and my doctor is ...
Is there anyone taking humira for sarcoid????
- By duzbuzy · New reply November 2, 2009
- 15 replies
- Hello Everyone!! I hope that everyone out there is having at least an ok day! I was just curious if anyone out there is taking humira. My doc here on Long Island have no idea of how to treat me. I have ...
How Fast to Wean Prednisone?
- By DoreenC · New reply November 1, 2009
- 10 replies
- I have been on Pred 60 mg per day since August 18th. Saturday I went to 50 mg in order to see if a lower dose can still treat my disease while reducing some of the side effects. I spent all of Sat night ...
Remission or medication?
- By NWtransplant · New reply November 1, 2009
- 2 replies
- I'm doing very well now, even while continuing the reduction in pred dosage. How do I know if this is remission or if the pred & methotrexate dosages are responsible for the good health period & things ...
Sarc Liver involvement and Remicade?
- By MunkeyBoy · Posted November 1, 2009
- 0 replies
- Does anyone out there have liver involvement with sarc and is also being treated with Remicade? Can you post details of what made your dr. go with Remicade considering it's potential danger to the liver ...
Clinical Trials for Sarcoidosis
- By idragonflyi · New reply November 1, 2009
- 3 replies
- I have had sarcoidosis for 6 years, coincidently i've been a clinical research associate for about the same amount of time (i oversee sites running clinical trials). i work for the largest research organization ...
sarc has advanced in my heart
- By ostrichlegs1 · New reply November 1, 2009
- 6 replies
- since i went to denver to national jewish last thanksgiving, and they found sarc in my heart along with lungs, liver and neuro, i've been going to ucla to see dr. lynch who has done thousands of sarc ...
Seborrheic dermatitis and/or eczema
- By r2d2022 · New reply October 30, 2009
- 3 replies
- I have what appears to be dry inflamed red skin on my face cheeks from time to time. I apply Rosula (sodium sulfacetamide 10% & sulfur 5%) and it always clears up followed by much flaking of the skin ...
Imuran
- By alifay · New reply October 30, 2009
- 11 replies
- My Dr. took me off methatrexate and now I am on 100mg of Imuran. I have really felt bad the last week. How long does it take to start working. Also did anyone have hair loss. I'm also on prednisone I ...
Tamiflu, HINI, Sarcoidosis and Methotrexate
- By middie1 · New reply October 30, 2009
- 2 replies
- It is the weekend and I have S&S of flu . Probably H1N1 as I had the seasonal flu shot 1 month ago. I do have Tamiflu at home (just in case), and wonder #1 will it work if I'm already on Methotrexate ...
Sarcoid in the skin
- By aaronsake · New reply October 29, 2009
- 13 replies
- My son is only 10 and his genetic link to sarcoid is strong, now i see many different rashes, welts and so on, on his skin just like his father had before he died of sarcoid just like his great aunt did ...
Electrophysiologist News
- By mvaughn1018 · New reply October 29, 2009
- 1 reply
- I just returned and wanted to share the news. At this time, he is more concerned about the possible spreading of the sarcoidosis to my heart than of me having ARVD. As I have had the cardiac mri, holter ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
