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Treatment decisions
Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.
Inhaled budesonide but no oral corticosteroids?
- By rikponne · New reply November 19, 2009
- 10 replies
- I have recently been diagnosed with pulmonary sarcoidosis (histologically confirmed, chest radiographic stage I (significantly enlarged lymph nodes)). Symptoms include chest pain, weight loss (4-5 kilos ...
NEED INSURANCE
- By bashajaye · Posted November 19, 2009
- 0 replies
- I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...
Ritalin/Methylphenidate
- By sammich1987 · New reply November 18, 2009
- 9 replies
- Has anyone had Ritalin prescribed to control the chronic fatigue symptoms that go with sarcoidosis? What about Provigil? My husband is currently on the Provigil but it doesn't seem to help (or at least ...
Yippee - approval
- By patp · New reply November 18, 2009
- 11 replies
- I am so excited I just got off the phone with my daughter's insurance company and they have approved for her to have the IVIG treatments. Hopefully things will be looking up for her ...
Lupus/Mixed Connective Tissue Disorder
- By kmb · New reply November 17, 2009
- 6 replies
- Hi friends. Rheumy tests show that I have antibodies for Lupus/MCTD. Please pris, paradox, anyone could you look at my results. though abnormal vit d,pth,calcium, dont appear to match up w/ any scenarios ...
remicade
- By Cakebaker · New reply November 16, 2009
- 13 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
Anybody heard/read this?
- By Tashabella · New reply November 16, 2009
- 21 replies
- Any body ever seen anything like this? This is from: http://www.assatashakur.org/forum/afrika n-wholistic-health/23691-sarcoidosis-sim ple-non-western-breakdown.html Sarcoidosis can be reversed by first ...
Can I take a poll on pain relievers?
- By silvercivic · New reply November 16, 2009
- 34 replies
- Like many of you I have joint pain. At night my knees,wrists and elbows are like raging toothaches. It's almost impossible to sleep.I'm allergic to Tylenol so that's out. Just curious what (if anything ...
Newly Diagnosed-What do I do next?
- By stitch68 · New reply November 15, 2009
- 7 replies
- I just found out I have Sarcoidosis in my Lymph nodes..I am not on any meds. for now..My fever and rash finally broke after a period of time..But I have read texts on Calcium and Vit. D..Are there special ...
Asking Feedback about Imuran Use
- By JaynesInPain · New reply November 15, 2009
- 9 replies
- My doc is considering putting me on Imuran (azathioprine) to treat sarc & possible auto-immune disease. I was on Pred. for 8+ mos, w/only minimal relief & too many sideaffects. I'm down to 1mg this wk ...
Management of Vitamin D Deficiency
- By DI56 · New reply November 13, 2009
- 6 replies
- Great Article from Web Site Medscape today. Go to cme.medscape.com. Its About the Title Above. Talks about Contraindictions to Vitamin D Supplementation for TB, Sarcoid, Granulomatous, Etc. How it should ...
Doctor in Southeast
- By sarcinms · New reply November 13, 2009
- 6 replies
- Hi. I had a thoracoscopy last week and have recently been diagnosed with sarcoidosis. I am looking for a center or physician in the southeast. I have heard good things about UAB in Birmingham, but am ...
ACE
- By r2d2022 · New reply November 12, 2009
- 2 replies
- Can someone please explain what ACE is and how it differs from Vit D test. Thanks ...
REMICADE AND MEDICARE
- By Minneyshoes · New reply November 12, 2009
- 17 replies
- Hi fellow Sarkies, I have Sarcoid and Nuerosarc also in eyes,liver and currently weaning off prednisone at 7.5mg and will hold for at least another month. I also take cellcept 2/500 tablest twice a day ...
Smoking suppresses Sarcoidosis
- By Bat · New reply November 12, 2009
- 41 replies
- Smoking supresses Sarcoidosis, does anyone know if this is true. My symptoms disappeared when I returned to smoking, now I have given up again the symptoms seemed to have come back ...
non-virus flu shot and swine flu vaccine
- By chiefs_chick · New reply November 11, 2009
- 7 replies
- has anyone taken any of these vaccines while taking prednisone and methotrexiate ...
enlarged spleen advice
- By steelerfan · New reply November 10, 2009
- 12 replies
- I was diagnosed with sarcoid in 1989 and never really had alot of issues besides slight scarring of the lungs until last summer. Last summer my spleen was enlarged up to 15x15x10. I was put on 40mg of ...
Has anyone tried or on Humira for Sarcoid?
- By zeppkkz · New reply November 10, 2009
- 15 replies
- I have been asked to try Humira injections in the stomach. This new medicine is not new to the market as a medicine, just new for Sarcoidosis. Just wondering if anyone else is on it for Sarcoidosis, and ...
Skin Sarcoidosis - Cutankerous
- By hamptonv · New reply November 10, 2009
- 3 replies
- Went to a Dermotologist and he put me on tetraclyine and niacinamide tablets to help with my skin anyone been on these drugs and what type of side effects have you had from these. The disease is spreading ...
Sarcoidosis and Methotrexate
- By kimers0608 · New reply November 9, 2009
- 13 replies
- I was diagnosed with severe Sarcoidosis in Oct. of '07. After 4 months of Prednisone to get symptoms under control I was put on weekly Methotrexate. The side effects from the medicine are so severe every ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
