Treatment decisions

Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.

Discussions

I need just a little help!

MsDiamond
  • By MsDiamond · New reply 6:16 pm
  • 3 replies
  • I my name is Channie and I sarcoidosis in my heart, lungs, eyes, skin and muscles. The disease is remission every place except my heart and muscles. Also I have rheumatoid arthritis and other medical ...

diabetic neuropathy & restless leg (sarc)

LonesomePeg
  • By LonesomePeg · New reply 2:02 pm
  • 8 replies
  • Hi Everyone, I have sarcoidosis but I also have diabetes. Today the foot doctors dx neuropathy in both feet. Besides prescribing special shoes, they have ordered the medicine, Neurotin. to be taken at ...

Radiation Theraphy

irishlassie1952
  • By irishlassie1952 · Posted 11:03 am
  • 0 replies
  • Hello fellow sarkies; Met with my DR. to discuss radiation therapy to address "severe bone marrow" issues. I have lesions in most of my spine, hip,lungs, chest and pelvis. Have been on so much medications ...

Methotrexate side effects and dosage for Skin Sarc

redhulk
  • By redhulk · New reply 1:25 am
  • 9 replies
  • Anyone on Methotrexate for skin Sarcoidosis if yes what is the dosage and side-effects ...

The Prednisone Magic Number

picklej
  • By picklej · New reply yesterday at 11:12 pm
  • 9 replies
  • I have had the Prednisone RX filled and ready for over a month now, and today was rock bottom I took my first dose this morning. (feeling defeated because i would have been steroid-free 2 years this June ...

NEED input-NeuroSarc, to Cellcept or not?

CJE4859
  • By CJE4859 · New reply yesterday at 5:24 pm
  • 14 replies
  • A mass/lesion was discovered in my spinal cord between c2-c6. I have undergone extensive testing (4 mri's, gallium scan,2 lumbar punctures, etc). The doctors can't biopsy the lesion, given its location ...

Why D may not be so good for systemic sarc.

priscurl
  • By priscurl · New reply yesterday at 1:35 am
  • 38 replies
  • Hi people, You know I am mad. I found a fascinating paper and wanted to comprehend what it is saying regarding the effects of 1,25D in sarcoidosis. This is not just about hypercalcemia, this is about ...

Length of treatment

nanners74
  • By nanners74 · New reply April 21, 2014
  • 8 replies
  • Just started treatment for my sarc. Wondering how long treatment last and if sarc symptoms return after treatment stops. I have no lung involment but swollen salivary gland and lymph nodes in neck. Was ...

Toronto Dr recommendation

mary2730
  • By mary2730 · New reply April 19, 2014
  • 5 replies
  • I'm on vacation and met a couple from Toronto whose daughter has suspected sarc. They are struggling to get a firm diagnosis, and not sure who to see. To me it sounds like they need an opthalmologist ...

Plaquenil

SWLASarcoidosis
  • By SWLASarcoidosis · New reply April 19, 2014
  • 8 replies
  • OK......I may have to start Plaquenil, but first I have to get my eyes checked to see if I can take Plaquenil. Are there anyone out there who is on this medication, if so, how is it working for you? Sabrina ...

Comment from Glasgow Dr on Vit D.

priscurl
  • By priscurl · Posted April 17, 2014
  • 0 replies
  • http://www.bbc.co.uk/iplayer/episode/p01 x362c/Health_Check_Vitamin_D_the_latest_ panacea/ Both sides of argument. Also points out environmental diffs re latitude. However, I live is Australia (gets a ...

Wondering about Methotrexate

Casie78
  • By Casie78 · New reply April 16, 2014
  • 16 replies
  • Hey guys, I'm currently on 40 mg of prednisone. Rheumatologist said in a month they will taper that down some and introduce methotrexate. I believe the plan is a pill I will take at home, to start and ...

Know your physician

dapple14845
  • By dapple14845 · New reply April 15, 2014
  • 10 replies
  • Are they an MD or a DO? There is a big difference when it comes to Sarc. http://www.piedmont.org/medical-care/liv ing-better1/Your-doctor-The-difference-b etween-an-MD-and-DO-697.aspx ...

Confused......

Prudy
  • By Prudy · New reply April 15, 2014
  • 4 replies
  • I am so confused....I started with my eyes swollen about 8 weeks ago npw...Dr though was allergies, gave drops, did not help...a week later my right parada gland was quite swollen...Dr ordered CT of sinus ...

Cellcept

Fets0109
  • By Fets0109 · New reply April 15, 2014
  • 3 replies
  • Has anyone used this before ...

Does prednisone bring on remission?

Samerea
  • By Samerea · New reply April 15, 2014
  • 23 replies
  • I'm just wondering and I'm sure I sound naive but does prednisone help sarcoidosis go into remission or does it just treat symptoms and then maybe the sarc will just go into remission on its own ...

Acthar gel

SoonerSarcoid
  • By SoonerSarcoid · New reply April 13, 2014
  • 6 replies
  • Does anyone have any information about this new potential treatment for pulmonary sarcoidosis? If I am reading it correctly it states it is FDA approved for pulmonary sarcoidosis. Just wondering ...

plaquenil or mtx ?

sjs73
  • By sjs73 · New reply April 13, 2014
  • 13 replies
  • ok,i go to the pain center on the 28th..i've been able to just get by with what this dr. has perscribed, morphien & oxicodone..found out that they made my appt with a different dr...if she doesn't continue ...

Zee Great D Debate - UBthjudge!

priscurl
  • By priscurl · New reply April 11, 2014
  • 11 replies
  • Does anyone dispute that sarcoidosis is an inflammatory disease which, in its more chronic and severe forms, result in excess levels of the active form of vitamin D, but low levels of the inactive form ...

Waiting For a Definite Diagnosis

Eckybay
  • By Eckybay · New reply April 11, 2014
  • 3 replies
  • My symptoms all started back in Feb. 2013 with swollen lymph nodes in my neck. My family doctor did an examine and a CBC and basically said everything else is normal, don't worry about it. My neck remained ...

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Discussion topics

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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