Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.
- By Aigle · 10:20 am
- 0 replies
- Hello everyone, I have a question which I cannot answer and because many people talk about that. When sarcoidosis is very advanced especially pain (neurosarco) and others, is it that osteopathy can help ...
- By Breeree · September 4, 2008
- 3 replies
- Just wanted to pass this information along from WebMD, because I know for me and alot of us have rheumatoid arthritis due to the Sarcoid. I do not take any of this medicines but maybe some here do ...
- By mboater1 · September 4, 2008
- 4 replies
- Hi, I would like to chat with local Michigan People Preferred Detroit area. if possible not necessary, to compare issues, symptoms, treatments and good Knowledable doctors. As it seems that my doctor ...
- By 4everfaith · August 31, 2008
- 10 replies
- What all medicine does everyone find that is very helpful and seems to do better with? I was on Predisone but only for one month and then i did the 6,4,2,1, for 3 days each and now i'm on METHOTHEXATE ...
- By BDILLY · August 31, 2008
- 15 replies
- Hello everyone! I have diabetes as well as living with Sarcoidosis. Lungs, spleen, gall bladder and a fatty liver. The fatty liver is how they found the Diabetes. While I was on Prednisone, my blood sugar ...
- By kimcharmane · August 29, 2008
- 5 replies
- I was discharged from the hospital today after 4 days, (endoscopies for lymphs and mass in my chest) with my diagnosis of Sarc. I had the joint pain, vertigo(which prompted my ER visit) and a few other ...
- By Snoopy2 · August 29, 2008
- 13 replies
- Hello everyone. I'm sure at some point there has been a discussion regarding breast exams and xrays but there are so many posts I simply can't search through them all. I just had a battery of xrays, ultrasound ...
- By Jb522 · August 29, 2008
- 7 replies
- I have radiographic stage III sarcoid. Lungs look pretty bad on chest xray. I was diagnosed about 4 yrs ago. 1st year I was on 30mg prednisone with taper to 10mg for most of the year. Subjectively, I ...
- By minheard · August 28, 2008
- 0 replies
- FOR THE PAST WEEK I HAVE BEEN TREATED WITH ANTIBIOTICS, FOR AN INFECTION IN MY BODY MY PULMONOLOGIST SAID SHE GAVE ME A INJECTION OF ROBOCHEPHIN I THINK AND I FELT BETTER. THE PAIN IN MY RIGHT ARMPIT ...
- By smurph · August 27, 2008
- 0 replies
- My husband and I have finally decided that enough is enough and we are moving down to NC in 6 months. The rather rapid deterioration of my body has made me take stock in what is important in life and ...
- By sarcoidjeff · August 26, 2008
- 5 replies
- When I last saw my pulmonologist he raised my weekly dose of methotrexate to 20mg a week, and kept my prednisone at 25mg daily. (he doesn't want to raise the pred as I have been on it for almost three ...
- By stellablue · August 26, 2008
- 3 replies
- A friend of mine was found to have some swelling of lymph nodes in the lower lungs following an x-ray taken prior to an unrelated surgery. She has not yet investigated further but she and the doctor are ...
- By ellishamilton · August 26, 2008
- 16 replies
- The Doc that did my lung biopsy saw me last week. I've been having a few neck problems and other nerve type symptoms that only a sarc patient could understand. "I'm ordering some lab tests, a visit to ...
- By greeneyes · August 24, 2008
- 3 replies
- I have been using Humira for 2 years now. For me it is like injecting the flu into you. And if i am lucky i will down for 2 days, not a week. Is anyone else using this treatment and how is it working ...
- By jubilee · August 23, 2008
- 8 replies
- Hi all Just this week I received my first IV infusion of Infliximab for my sarc. I have previously been on cortizone on and off for last couple of years and also on immuran, meth, micophenolate but only ...
- By stevemart · August 21, 2008
- 3 replies
- Does anyone live in the Hudson Valley and have a good sarc doctor who really listens to you. We would be willing to go to the city but I'm not sure who to go to. Has anyone been to David Berlin? He is ...
- By vernonmusic · August 21, 2008
- 3 replies
- In June, a CT revealed bilateral hilar and mediastinal adenopathy along with a nodule in right upper lobe. I underwent a lung and lymph node biopsy (via an open thoracotomy, thank you very much.:() and ...
- By sarcoidjeff · August 20, 2008
- 5 replies
- I was recently upped to 20mg (started two yrs ago @ 10mg weekly, slowly had to be increased) a week of methotrexate. so far all I've noticed is a huge increase in really bad reflux. Any one else at this ...
- By brow8754 · August 20, 2008
- 6 replies
- I am changing doctors and looking to find a care provider in the Atlanta area. I have symptoms in my lungs and eyes and have also had facial paralysis, numbness, memory issues, arthritis. I have been ...
- By steelerfan · August 19, 2008
- 12 replies
- My spleen has recently become enlarged due to sarcoid and the doc said I should do 30mg for 6 mos and 15mg for another 6 mos.Has anybody else taken this drug for this period of time. I worry about the ...
