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Treatment decisions
Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.
Topamax???
- By IrishDancer · New reply 5:37 am
- 7 replies
- As I was responding to another discussion I noticed an ad up top that talked about migraines and topamax. Um...what would Topamax do for sarcoid? Monday when I went to see my dr he talked about topamax ...
Visit to Clev. Clinic - Incredible
- By Raleighnat · New reply yesterday at 11:14 pm
- 19 replies
- I wanted to share my experience briefly regarding the Cleveland Clinic and the diagnosis / treatment plan for my case of sarc in the bone. Some have heard my history before, so I'll be brief: enlarged ...
Remicade
- By B-faithful · New reply yesterday at 10:40 pm
- 5 replies
- Hello everyone, my insurance approved to pay for the Remicade. Im suppose to start the treatment in a couple of weeks. Im a little concern about the side effects, but 4 of my doctors stated the side effects ...
Low Vitimin D
- By kassl · New reply yesterday at 6:57 pm
- 8 replies
- Soooo... I found out April 09 that I had pulm Sarc. I went through all the same stuff. GI,Oncology, Cardio Surgeon... In May I started on prednisone and Methotraxcate. I recently went to a pulm that specializes ...
Erythema Nodosom cures
- By Giggles0318 · New reply yesterday at 4:53 pm
- 7 replies
- I first got Erythema Nodosom on my legs in 9/2008, along with granulomas in my lungs, coughing so bad I thought I'd choke to death. My asthma worsened, and I was tired a lot... I was prescribed prednisone ...
Good News! Approval for Remicade..Finally
- By Minneyshoes · New reply yesterday at 3:58 pm
- 9 replies
- Last year I was turned down for Remicade by Medicare and some assistance programs. This year I was looking on line and found Janssen Ortho Patient Assistance Foundation and I applied and was approved ...
Splenectomy
- By tishee · New reply yesterday at 1:01 pm
- 9 replies
- After feeling the way I have for so many months, I decided to excersize my option for having my spleen removed next week. I have my sarcoid primarily in my spleen. Years ago I had mono, and the symptoms ...
Herbal Supplements?
- By bjc2008 · New reply November 19, 2009
- 13 replies
- I have been newly diagnosed, by accident. No real symtoms yet. So, instead of beginning the prednisone, which is what the doctor recommends, can I use herbal supplements, to help me ...
New to Prednisone
- By JackieP · New reply November 19, 2009
- 13 replies
- I finally had to give in and go on Prednisone. They started me off with 40 mg daily for two weeks to be then slowly lowered to 10mg a day. Is this about the right dose? The Dr. is also sending me to the ...
Baughman from Cincinnati, OH
- By mvaughn1018 · New reply November 19, 2009
- 4 replies
- Due to my recent ER visit, my pulmonologist is getting a second opinion. He is referring me to a Dr. Baughman in Ohio. I'm sure there's someone out there that can share their experience and recommendations ...
Inhaled budesonide but no oral corticosteroids?
- By rikponne · New reply November 19, 2009
- 10 replies
- I have recently been diagnosed with pulmonary sarcoidosis (histologically confirmed, chest radiographic stage I (significantly enlarged lymph nodes)). Symptoms include chest pain, weight loss (4-5 kilos ...
Small Airway sarc
- By RedBeard · New reply November 19, 2009
- 1 reply
- I have been diagnosed with sarc in the small ariways of my lungs. I have been treated so far with high doses of predisone & azathioprine. No improvement. My doctor has informed me that the sarc I have ...
sarcoid & osteoporosis
- By silcyc · Posted November 19, 2009
- 0 replies
- I was diagnosed about a year ago with sarcoid and have learned a lot especially from this site. I'm a new member so am not sure if this has been previously addressed. I know not to take vit D or calcium ...
NEED INSURANCE
- By bashajaye · Posted November 19, 2009
- 0 replies
- I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...
Ritalin/Methylphenidate
- By sammich1987 · New reply November 18, 2009
- 9 replies
- Has anyone had Ritalin prescribed to control the chronic fatigue symptoms that go with sarcoidosis? What about Provigil? My husband is currently on the Provigil but it doesn't seem to help (or at least ...
Yippee - approval
- By patp · New reply November 18, 2009
- 11 replies
- I am so excited I just got off the phone with my daughter's insurance company and they have approved for her to have the IVIG treatments. Hopefully things will be looking up for her ...
Lupus/Mixed Connective Tissue Disorder
- By kmb · New reply November 17, 2009
- 6 replies
- Hi friends. Rheumy tests show that I have antibodies for Lupus/MCTD. Please pris, paradox, anyone could you look at my results. though abnormal vit d,pth,calcium, dont appear to match up w/ any scenarios ...
remicade
- By Cakebaker · New reply November 16, 2009
- 13 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
Anybody heard/read this?
- By Tashabella · New reply November 16, 2009
- 21 replies
- Any body ever seen anything like this? This is from: http://www.assatashakur.org/forum/afrika n-wholistic-health/23691-sarcoidosis-sim ple-non-western-breakdown.html Sarcoidosis can be reversed by first ...
Can I take a poll on pain relievers?
- By silvercivic · New reply November 16, 2009
- 34 replies
- Like many of you I have joint pain. At night my knees,wrists and elbows are like raging toothaches. It's almost impossible to sleep.I'm allergic to Tylenol so that's out. Just curious what (if anything ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
