Treatment decisions

Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.

Discussions

Why D may not be so good for systemic sarc.

priscurl
  • By priscurl · New reply yesterday at 10:31 pm
  • 21 replies
  • Hi people, You know I am mad. I found a fascinating paper and wanted to comprehend what it is saying regarding the effects of 1,25D in sarcoidosis. This is not just about hypercalcemia, this is about ...

Comment from Glasgow Dr on Vit D.

priscurl
  • By priscurl · Posted yesterday at 3:59 am
  • 0 replies
  • http://www.bbc.co.uk/iplayer/episode/p01 x362c/Health_Check_Vitamin_D_the_latest_ panacea/ Both sides of argument. Also points out environmental diffs re latitude. However, I live is Australia (gets a ...

Wondering about Methotrexate

Casie78
  • By Casie78 · New reply April 16, 2014
  • 16 replies
  • Hey guys, I'm currently on 40 mg of prednisone. Rheumatologist said in a month they will taper that down some and introduce methotrexate. I believe the plan is a pill I will take at home, to start and ...

Toronto Dr recommendation

mary2730
  • By mary2730 · New reply April 16, 2014
  • 4 replies
  • I'm on vacation and met a couple from Toronto whose daughter has suspected sarc. They are struggling to get a firm diagnosis, and not sure who to see. To me it sounds like they need an opthalmologist ...

Plaquenil

SWLASarcoidosis
  • By SWLASarcoidosis · New reply April 16, 2014
  • 7 replies
  • OK......I may have to start Plaquenil, but first I have to get my eyes checked to see if I can take Plaquenil. Are there anyone out there who is on this medication, if so, how is it working for you? Sabrina ...

Know your physician

dapple14845
  • By dapple14845 · New reply April 15, 2014
  • 10 replies
  • Are they an MD or a DO? There is a big difference when it comes to Sarc. http://www.piedmont.org/medical-care/liv ing-better1/Your-doctor-The-difference-b etween-an-MD-and-DO-697.aspx ...

Confused......

Prudy
  • By Prudy · New reply April 15, 2014
  • 4 replies
  • I am so confused....I started with my eyes swollen about 8 weeks ago npw...Dr though was allergies, gave drops, did not help...a week later my right parada gland was quite swollen...Dr ordered CT of sinus ...

Cellcept

Fets0109
  • By Fets0109 · New reply April 15, 2014
  • 3 replies
  • Has anyone used this before ...

Does prednisone bring on remission?

Samerea
  • By Samerea · New reply April 15, 2014
  • 23 replies
  • I'm just wondering and I'm sure I sound naive but does prednisone help sarcoidosis go into remission or does it just treat symptoms and then maybe the sarc will just go into remission on its own ...

Acthar gel

SoonerSarcoid
  • By SoonerSarcoid · New reply April 13, 2014
  • 6 replies
  • Does anyone have any information about this new potential treatment for pulmonary sarcoidosis? If I am reading it correctly it states it is FDA approved for pulmonary sarcoidosis. Just wondering ...

plaquenil or mtx ?

sjs73
  • By sjs73 · New reply April 13, 2014
  • 13 replies
  • ok,i go to the pain center on the 28th..i've been able to just get by with what this dr. has perscribed, morphien & oxicodone..found out that they made my appt with a different dr...if she doesn't continue ...

Zee Great D Debate - UBthjudge!

priscurl
  • By priscurl · New reply April 11, 2014
  • 11 replies
  • Does anyone dispute that sarcoidosis is an inflammatory disease which, in its more chronic and severe forms, result in excess levels of the active form of vitamin D, but low levels of the inactive form ...

Waiting For a Definite Diagnosis

Eckybay
  • By Eckybay · New reply April 11, 2014
  • 3 replies
  • My symptoms all started back in Feb. 2013 with swollen lymph nodes in my neck. My family doctor did an examine and a CBC and basically said everything else is normal, don't worry about it. My neck remained ...

Hematologist

TootsieMcGee
  • By TootsieMcGee · New reply April 11, 2014
  • 9 replies
  • I was diagnosed in 2003 and I just was going for routine follow ups from time to time because everything was stable and there was no treatment necessary. Recently I decided I should follow up with everything ...

More tests...more questions

Bobbygrace10
  • By Bobbygrace10 · New reply April 10, 2014
  • 4 replies
  • My Rheumy referred me to a Neurologist because I was having symptoms similar to neuropathy. My hands, feet, legs go to sleep for no reason. By Fridays my legs feel like they are dead and if I were to ...

vtimin D

LonesomePeg
  • By LonesomePeg · New reply April 9, 2014
  • 40 replies
  • What is the latest on taking Vit. D if your count is low & you react badly to sun exposure (like it starts a sarc flare/skin rash ...

Symptoms

Brsparkles
  • By Brsparkles · New reply April 8, 2014
  • 6 replies
  • Hi, The pulmonologists at Mayo have not clearly defined that I have Sarcoidosis, but last June, at Mayo Clinic they agreed to name it as "sarcoid like" granulomas, after a bronchoscopy (needle biopsy ...

Are you in for the fight!!!!

flyingfish
  • By flyingfish · New reply April 8, 2014
  • 12 replies
  • Today is day 4 of Sarcoid Awareness are you ready to help with the fight. Consider donating a dollar, a price of a latte, asking friends, co-workers we can make this happen http://ccf.convio.net/goto/sarcoidawaren ...

DR at Mayo in Jacksonville, Florida needed

uveitisguy
  • By uveitisguy · New reply April 8, 2014
  • 1 reply
  • http://www.inspire.com/groups/stop-sarco idosis/discussion/symptoms-82 ...

Referral in London?

AminaV
  • By AminaV · New reply April 7, 2014
  • 9 replies
  • Hi everyone, I just stumbled across this site when doing some research on Sarcoidosis and am hoping someone can share some advise. My mother-in-law has multiple organ sarcoidosis which is now spreading ...

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Discussion topics

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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