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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Treatment decisions
Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.
Chest CT Images
- By mvaughn1018 · New reply yesterday at 11:30 pm
- 3 replies
- I had another chest ct scan with and without contrast. I have the images and looked at them. Of course, my education is in accounting and not medicine; (I have no idea what I'm looking at). I was looking ...
remicade
- By Cakebaker · New reply yesterday at 11:38 am
- 9 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
Sarcoid specialist in VA,MD,NC
- By steelerfan · New reply yesterday at 10:40 am
- 4 replies
- I have been told by my pulmonologist to seek advice on my spleen from a sarcoid specialist. Of course that is easier said than done. Any ideas in this area of dr's who specialize in sarcoid, especially ...
What if anything can be used to fight sariodious?
- By Newl · New reply November 6, 2009
- 4 replies
- I hate the idea of Prednisone Can anyone tell me what else is used to treat Sarc I have it in my lungs and surrounding chest area. So far tried to avoid treatment but not sure I can. I would like to get ...
Sarcoidosis Specialist in OK
- By Bdr · New reply November 6, 2009
- 5 replies
- Does anyone have any information/recommendation for sarcoidosis specialist in Oklahoma. I am looking for a new dr. I was seeing my reg. IM doctor, but he referred me to a pulmonologist, that never really ...
going back to madison for the transplant
- By snappykappy · New reply November 6, 2009
- 14 replies
- follow the yellow brick road follow the yellow brick road follow the yellow brick road follow follow follow follow the yellow brick road i'm off to see the wizard to get some better lungs quick response ...
Baughman from Cincinnati, OH
- By mvaughn1018 · New reply November 6, 2009
- 3 replies
- Due to my recent ER visit, my pulmonologist is getting a second opinion. He is referring me to a Dr. Baughman in Ohio. I'm sure there's someone out there that can share their experience and recommendations ...
New Dr. and Pred. dosage?
- By ntrae426 · New reply November 6, 2009
- 11 replies
- I just saw my new primary Dr. who doesn't know much about Sarc. I told her I think it is flaring in my jaw (salivary) again. I explained what was going on and she phoned the ENT (who I wanted to see ...
Rheumatologist in the Raleigh/Cary NC area
- By pfehrman · New reply November 6, 2009
- 2 replies
- I need a new rheumatologist, but I'm having a terrible time finding a good one. I keep getting referred to this one female rheumy that I didn't get along with at all and I don't want to return to her ...
Hospital visits
- By tishee · New reply November 5, 2009
- 7 replies
- Hi guys. After I was diagnosed with sarc. I have been in the emergency room over 9 times this summer. Mostly stomach issues, and usually because I am hypercalcemic. I am not sure I even understand what ...
REMICAID FOR PULMONARY SARCOID
- By KJ · New reply November 5, 2009
- 8 replies
- I have been diagnosed with sarcoid in my small airways. Because of worsening PFT's over the last 2 years, my doctor put me on 20mg of prenisone which did not result in any improvement after 2 months ...
Sarcoid and Diabetes
- By BDILLY · New reply November 5, 2009
- 19 replies
- Hello everyone! I have diabetes as well as living with Sarcoidosis. Lungs, spleen, gall bladder and a fatty liver. The fatty liver is how they found the Diabetes. While I was on Prednisone, my blood sugar ...
Prednisone & Chronic Sarc Questions
- By JacobeanLily · New reply November 4, 2009
- 22 replies
- I've posted many times about the pros and cons of taking medications for chronic sarc (as opposed to acute sarc, which often remits on its own) and here I go again. I've had measurable sarc symptoms for ...
8 yrs - now early signs of pulm fibrosis -- treatment suggestions please
- By meghna · New reply November 3, 2009
- 7 replies
- Hello: I am new to this group. It is a very nice group. My wife has been diagnosed with Pulm Sarc in 2001. She will be 39 yrs in Dec 2009. The Lymp Nodes have remained stable (but enlarged) for the last ...
radiation
- By NVRTHGTTHS · New reply November 3, 2009
- 8 replies
- After battling my neurosarcoid for awhile with every type of medication thought of my doctor and I are thinking about radiation. My sarcoid has concentrated itself in my cervical spine and my doctor is ...
Is there anyone taking humira for sarcoid????
- By duzbuzy · New reply November 2, 2009
- 15 replies
- Hello Everyone!! I hope that everyone out there is having at least an ok day! I was just curious if anyone out there is taking humira. My doc here on Long Island have no idea of how to treat me. I have ...
How Fast to Wean Prednisone?
- By DoreenC · New reply November 1, 2009
- 10 replies
- I have been on Pred 60 mg per day since August 18th. Saturday I went to 50 mg in order to see if a lower dose can still treat my disease while reducing some of the side effects. I spent all of Sat night ...
Remission or medication?
- By NWtransplant · New reply November 1, 2009
- 2 replies
- I'm doing very well now, even while continuing the reduction in pred dosage. How do I know if this is remission or if the pred & methotrexate dosages are responsible for the good health period & things ...
Sarc Liver involvement and Remicade?
- By MunkeyBoy · Posted November 1, 2009
- 0 replies
- Does anyone out there have liver involvement with sarc and is also being treated with Remicade? Can you post details of what made your dr. go with Remicade considering it's potential danger to the liver ...
Clinical Trials for Sarcoidosis
- By idragonflyi · New reply November 1, 2009
- 3 replies
- I have had sarcoidosis for 6 years, coincidently i've been a clinical research associate for about the same amount of time (i oversee sites running clinical trials). i work for the largest research organization ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
