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Symptoms

Sarcoidosis can affect almost any organ in the body. Symptoms typically depend on which organ the disease affects. Discuss your specific organ symptoms (lung, heart, eyes, skin, central nervous system) and meet others who have had similar experiences.

Sarkie sweats confirmed

seaokie
  • By seaokie · New reply November 10, 2009
  • 5 replies
  • Hi all, I had a visit to the regular doc (who is an internist) this week, as a last hurrah before I run out of insurance. One of the issues I brought up was the sweating. We've all talked about it and ...

bone problems

bmaz
  • By bmaz · New reply November 10, 2009
  • 7 replies
  • Can you get sarc in the bones? I have had horrible trouble with my feet for a year and a half. I am getting a bone scan tomorrow, to see if I have stress fractures in my feet. I have lung sarc. and I ...

Red Reishi experiment conclusion

JacobeanLily
  • By JacobeanLily · New reply November 10, 2009
  • 17 replies
  • For the past 2 months I've been experimenting with red reishi mushroom tea (made from dried mushrooms, soaked overnight and brewed the following morning - 2 cups a day) and am now composting my remaining ...

Sarcoidosis in remission. Celiac disease?

LuBelle
  • By LuBelle · New reply November 10, 2009
  • 7 replies
  • I was diagnosed with Sarcoid 15 years ago (feels like yesterday). I was only 21. I am in remission and feel very fortunate about that. I have never been tested for celiacs disease but am now thinking ...

Does anyone get flu like symptoms?

silvercivic
  • By silvercivic · New reply November 8, 2009
  • 41 replies
  • I have a feeling like I have a bad case of the flu minus any temperature.....chills and just feeling rotten. I just want to lie down and try to cope with it. If anyone else suffers from this....are these ...

lung pain

mananimal
  • By mananimal · New reply November 8, 2009
  • 1 reply
  • A few days ago I had pain in the right lung it lasted for just over six hr . I would have rated it a 8 or 9 on the pain scale ,and it was hear none stop .I did think about going to the er but what could ...

Muscle cramps anyone?

Twuzzy
  • By Twuzzy · New reply November 7, 2009
  • 28 replies
  • Before I was diagnosed, I suffered from MASSIVE cramps in my legs - mostly my thigh muscles - that were the worst pain I have ever felt. Anything neurological was ruled out prior to the Sarcoid diagnosis....other ...

Fatigue

BZAP
  • By BZAP · New reply November 7, 2009
  • 3 replies
  • I have been thankfully not put on steroids yet for my lungs. Now, I have developed basically all day fatigue for the past week. Is this just part of the sarcoid reality or does wanting to sleep all day ...

what to do?

Mysterman
  • By Mysterman · New reply November 6, 2009
  • 3 replies
  • Hello I was first diagnosed with sarc now some 9 yrs ago...been just pushing through the symptoms for yrs now with bottles of anti-inflamitorys...rounds of predisone...but as of the loss of my job of ...

Palpitations - cardiac sarc?

Rougeaud
  • By Rougeaud · New reply November 6, 2009
  • 7 replies
  • I just need a little reassurance that the arrival of frequent palpitations are not a symptom of cardiac sarc. I am currently not on any meds, since discontinuing my 500mg chloroquin 3 months ago when ...

uveitis??

shelam
  • By shelam · New reply November 6, 2009
  • 2 replies
  • I've had uveitis several times before but this time the symptoms are different - just blurred vision, strained/sore eyes and a headache that seems to want to stay. Does this sound like 'normal' uveitis ...

Dry eyes

pfehrman
  • By pfehrman · New reply November 6, 2009
  • 5 replies
  • Does anyone have problems with excessive dry eyes? I also am thirsty all of the time, but I am not a diabetic. Do these symptoms seem to be normal for sarc? I just don't know. Thanks and God bless ...

eye drops

Soosie
  • By Soosie · New reply November 5, 2009
  • 5 replies
  • I have just started my prednisone eye drops - 4 times a day - and wondered if I was going mad or could these steroids - although in the form of eye drops - affect my ankles - please don't laugh. But when ...

SHORT TERM MEMORY LOST

tbcrews
  • By tbcrews · New reply November 4, 2009
  • 28 replies
  • HEY I HAVE ANOTHER QUESTION FOR YOU ALL, HAS ANYONE EXPERIENCE ANY SHORT TERM MEMORY LOST. I THOUGHT AT ONE TIME IT WAS JUST SOMETHING THAT WOULD LEAVE BUT, LATELY I CAN LOOK AT PEOPLE THAT KNOW WHO THEY ...

Charlie Brown Syndrome?

mvaughn1018
  • By mvaughn1018 · New reply November 3, 2009
  • 8 replies
  • Hi All! I've recently been experiencing some strange symptoms. I was shopping recently, I got really dizzy nauseated and then really really tired. Friday, I was at work, a co worker was talking to me ...

Joint pain without swelling

patp
  • By patp · New reply November 3, 2009
  • 36 replies
  • My daughter wanted me to ask if anyone has joint pain without swelling. She is on pain pills because she has extreme pain in her head, wrists, hands, hips, and ankles. The doctor tells he believes it ...

anxiety

tishee
  • By tishee · New reply November 3, 2009
  • 15 replies
  • Hi guys. Just curious if anybody out there has experienced panic attacks? I had them before, but since my diagnosis it has snowballed. I take 4 mgs of ativan (strong sedatrive) a day. On top of that I ...

Imuran side effects

Lizi
  • By Lizi · New reply November 3, 2009
  • 5 replies
  • Hi everyone! I hope everyone is having a Happy Halloween. I just wondered, as I was just increased to 150 mg of Imuran along with 20 mg of prednisone, if anyone gets kind of a spacy, can't concentrate ...

Do You Cough with SOB

kkupsky
  • By kkupsky · New reply November 3, 2009
  • 8 replies
  • Just wondering if anyone has shortness of breath without any coughing symptoms? I cough occassionally, but not often. When I am physical, however, I get very short of breath like I don't have enough air ...

100's of Questions...What to Expect?

tysmom29
  • By tysmom29 · New reply November 2, 2009
  • 4 replies
  • Hi Everyone! I am new to this community and new to the disease as well. I have been experiencing autoimmune symptoms all of my life but had an extreme flare up last year at this time. After being tested ...

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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