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Symptoms
Sarcoidosis can affect almost any organ in the body. Symptoms typically depend on which organ the disease affects. Discuss your specific organ symptoms (lung, heart, eyes, skin, central nervous system) and meet others who have had similar experiences.
Bone Sarcoid
- By janepauline · New reply 4:23 am
- 35 replies
- I think I may be developing sarcoid in my bones. My ankle is really painful and it feels as though it is in the distal bone end. Does anyone else have bone sarcoid? What are the symptoms and how were ...
Headaches and Nausea and Dizziness????
- By Jrs_Mom · New reply yesterday at 10:51 pm
- 8 replies
- Can anyone share with me whether or not severe headaches, nausea and dizziness are a factor with Sarcs? Is it a symptom of neurosarcs? My son, has Sarcs in his lungs and for awhile they thought it was ...
Vitamin D deficiency
- By lynn03 · New reply yesterday at 9:54 pm
- 22 replies
- Everything I have read talks about high vitamin d levels in sarcoidosis. I have just been told i have very low vitamin d and put on a supplement. Is this uncommon in Sarcoidosis ...
Need your input, please
- By Tashabella · New reply yesterday at 7:47 pm
- 10 replies
- I have sarcoidosis in my lymph nodes so I know about this, but there's something I'm not sure about. I was wondering if any of you know the answer to this question. My friend's husband has undergone a ...
Collecting symptoms
- By L96 · New reply yesterday at 11:41 am
- 82 replies
- Weird as that may sound. I'm new here, and have been reading topics all over the place before saying too much. One thing I have noticed is that a lot of people seem to share the same symptoms, and they ...
Track your test results with my new String Chart
- By IreneMarie · New reply November 19, 2009
- 21 replies
- My String Flow Chart for tracking blood testing results is finally ready for uploading. It takes a little bit of patience to modify this Excel spread sheet, but on a rainy day it's rather like a game ...
Sarcoid and Ankle Pain
- By NDLS · New reply November 19, 2009
- 9 replies
- I was diagnosed with Sarcoid in April of 09. It started with swelling in my ankles and pain. Which I was sent to physical therapy for. Then I got a respiratory infection and the symptoms started showing ...
Severe itching
- By Cathy5 · New reply November 19, 2009
- 52 replies
- HI, I was diagnosed with sarcoidosis 6 years ago. The past year and a half I have been dealing with severe itching. I take prednisone and 2 prescription antihisamines. Last year the doctor wanted to do ...
Got Bronchospasms??
- By mvaughn1018 · New reply November 19, 2009
- 10 replies
- I have been experiencing pains in my right and left side-(lung/rib area), radiating around to my back. After a trip to the ER today for this along with chest tightness, I was told that I was having bronchospasms-(inflammation ...
TIAs
- By grammy5 · New reply November 19, 2009
- 6 replies
- My 29 year old son had been working out like he does every day. He had a bit of a headache but it got worse after his work out. His left arm felt numb and he was having trouble seeing. It seemed to ease ...
Question for those diagnosed with heart sarcoid
- By Dandee40 · New reply November 18, 2009
- 20 replies
- Hi all, I will be posting an update soon but am waiting to get all of my test results and biopsy results given to me. I should have all results by the end of November or the first week of December. In ...
Kidney Stones on way to Clevland clinic
- By Minneyshoes · New reply November 18, 2009
- 9 replies
- Wow what a trip! I had an appt for Nuerologist to Cleveland Clinic..Dr. Kuenzler what an adventure...first I got lost for and hour then I had to keep stopping to pee I felt pain then I saw blood on paper ...
Sarc on the Pleura
- By Govnah · New reply November 18, 2009
- 4 replies
- Just curious if anyone has sarc on their pleura? I was diagnosed with sarc October 2008 with nodules both in my lungs and pleura. I have been in pain for a year now and the last few days have been almost ...
My sarcoidosis diagnosis
- By GeeGee12 · New reply November 18, 2009
- 2 replies
- it all started when i was running and hit my leg on the rail and i knew i was supposed to feel pain but i didnt feel anything ...
Big Lymph nodes popped up on arms
- By DoreenC · New reply November 18, 2009
- 10 replies
- Has anyone had enlarged lymph nodes pop up on their arms? I have one large lymph node in the crook of my arm where you bend the elbow on both sides. It's in the area where phlebotomists like to get your ...
Skin Problems
- By whoknows06 · New reply November 18, 2009
- 4 replies
- I'm having issues with a small patch of skin that's about size of a pencil eraser that never heals. Very thin skin covers it so it doesn't bleed but if I take a long bath it get raw. And I also have little ...
Chest Pain & Shortness of Breath
- By chawkes · New reply November 16, 2009
- 3 replies
- I have had sarcoidosis since 2002 and it's in my lymph system, muscels and joints. I have an xray taken every 6 months to ensure nothing is going on with my lungs and so far so good, nothing abnormal ...
kidney/bladder stones make me suicidal
- By David2727 · New reply November 16, 2009
- 26 replies
- I'm down again, since the day before yesterday. I've got this terrible pain again because of these stones. I can't leave the house cause i got to pee every 5 minutes. When I get kidney/bladder stones ...
Shocks and Blackout
- By mvaughn1018 · New reply November 16, 2009
- 18 replies
- I've had three episodes for the last three days. Since last week, I can feel the inflammation in my chest in the center and the left. My recent symptom is a scared shock and my heart feels like it jumps ...
Keeping a journal
- By IreneMarie · Posted November 14, 2009
- 0 replies
- For those of you who love your pc and have MicroSoft Windows, your Outlook program has a great calendar, directory and journal feature which is easy to print out if needed. I love the calendar since the ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
