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Living with sarcoidosis
Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.
some good news
- By pearlsnowflake · New reply November 12, 2009
- 15 replies
- Well I actually had my first decent test result in two years. My ACE level has gone down from 228 to 78. I have been on prednisone since July and even though I gained 25 lbs. i guess it helped. My joint ...
Stage 4
- By SW451 · New reply November 12, 2009
- 25 replies
- Good Day I am new to the site but I have stage 4 Sarcoidosis and have the illness since 1995 and now has progress to the 4 level, does anyone else have this highest stage? Thank You ...
Inflamation and ph
- By escalantedreamer · New reply November 12, 2009
- 1 reply
- One of the things that have plagued me since I got this disease was my lungs hurt. The sarcoids become inflamedand then my lungs bleed the whole sympoms gambit pain, lethergy, fever, bone pain. I would ...
How long have you had sarcoid?
- By priscurl · New reply November 11, 2009
- 208 replies
- I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...
Traveling while on Pred. & Methotrexate
- By catbob · New reply November 11, 2009
- 7 replies
- My husband has Cardiac Sarc. I really want to go to NY for Thanksgiving with him and our girls. He's had a rough year and I wanted to do something special. I am afraid to travel with him while he is on ...
Remission???
- By whatsupdoc · New reply November 10, 2009
- 2 replies
- I was diagnosed with sarc a year ago to date. This is my first entry on the website. I found out the hard way on having sarc (as if there's an easy way), by presenting at the ER with mild stroke symptoms ...
Renal Sarcoidosis, what does that mean?
- By Brandie228 · New reply November 10, 2009
- 11 replies
- This whole thing with the Sarc has me more than a little lost. I don't know yet how to process all of the information out there. I'm trying to understand this disease and what it means for me. I was diagnosed ...
Contacts and uveiitis?
- By pearlsnowflake · New reply November 9, 2009
- 7 replies
- Just wondering if anyone with uveitis can wear contacts. One eye doc tells me forget about it those days are over and another has told me it is not a problem when there is no inflammation present in the ...
FEELING GOOD
- By beautybarn · New reply November 9, 2009
- 7 replies
- I know that everyone likes to talk about the negative things going on well I am going to talk about the positive. I drove for the first time in almost two years. I also was able to workout for 45 mins ...
Not Sure What to do. Thoughts and Opinions Please!
- By ashphalt · New reply November 9, 2009
- 13 replies
- I went to see my doctor this morning due to a sore throat and plugged nose. He checked it out and said it is not H1N1. Don't have the symptoms but have some from my sarc. I asked him about getting the ...
please help a new comer
- By Akhilluvs · New reply November 8, 2009
- 9 replies
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
Ulcers
- By Cande2 · New reply November 8, 2009
- 2 replies
- Have been in pain and sick to my stomach for a couple of weeks now. after ER visit and GI scope. I now have five ulcers from the pain meds given to me for the arthrictic sarcoidosis. Any alternative suggestions ...
Sarcoidosis-pain
- By holley2583 · New reply November 8, 2009
- 27 replies
- Just was diagnosed, actually today, but gave even more blood to check again, and again. its in all my joints, and some of my muscles feel bruised when i touch them. First my ankles were swollen, then ...
severe leg pain explained
- By dollh · New reply November 8, 2009
- 5 replies
- Dear friends, My legs, knees and hips were hurting so bad that my parents took me to the emergency room. I had about 20 x-rays done one my lower back, hips, knees, ankles and feet. The diagnosis osteoarthritis ...
cold and hot feelings
- By HopeNicole · New reply November 7, 2009
- 4 replies
- My hands stay so cold! Esprcially at nite. I just asked my son to look for me a pair of gloves to wear while I type. My feet are cold alot to but not as much as the hands. Also sometimes wen I lay down ...
Remission
- By tishee · New reply November 6, 2009
- 19 replies
- Hi guys, When I was first diagnosed with this monster my general practioner said that I have a 70 percent chance of going into remission after a year and a half. After being on this site, I realize he ...
A Legacy of Love
- By IreneMarie · Posted November 6, 2009
- 0 replies
- http://www.wgrz.com/news/local/story.asp x?storyid=71668&provider=gnews An article about a family dealing with young son's Sarc diagnosis and sad outcome. Together we ARE better ...
Anti-inflammatory diet??
- By CJ2009 · New reply November 6, 2009
- 8 replies
- Has anyone tried an anti-inflammatory diet for sarcoidosis? It focuses on fruits, vegetables and omega 3's and greatly limits fat, sugar and other carbs. Thanks for any info/experience with this approach ...
Vaccines
- By boatlady · New reply November 5, 2009
- 5 replies
- I just wanted to share with everyone to perhaps help put some minds at ease...I've gotten a flu shot every year since I was diagnosed with Sarcoidosis. This year, my pulmonologist insisted I add the H1N1 ...
??
- By jobob · Posted November 5, 2009
- 0 replies
- Where is Eljay? jobob ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
