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Living with sarcoidosis
Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.
Headaches and prednisone wean
- By pearlsnowflake · Posted November 23, 2009
- 0 replies
- Hi all: Just wondering.....I am weaning off of prednisone 1mg. per week. I was stable at 20 mg. with just the usual sleep issues, weight gain etc........ Of course sarc symptoms starting creeping back ...
Hello. My name is Moe, and I have sarcoidosis
- By MoeLung · New reply November 23, 2009
- 20 replies
- I'm new here and just joined. I was diagnosed this past July, after more than a year of dry cough and SOB (I love that acronym ... either 'sons of bitches' or 'shortness of breath'). During the year prior ...
Anyone ever go into remission a 2nd time???
- By teeteeme · New reply November 22, 2009
- 25 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
Nerves dying in your mouth or trouble with your teeth
- By tiffany_blessed_1 · New reply November 22, 2009
- 4 replies
- Hi, i am a 35 yr old mother, of two handsomes sons. I was diagnosed with sarcoidosis in 2007. I have Crhones also, have had that every since 1996. It is so hard to even get your SSD started. And most ...
prednisone and weight gain
- By Joe_Joe · New reply November 22, 2009
- 2 replies
- My son has neurosarcoidosis and was given large injections of steroids which have improved his brain function. He is now on a maintenance level of 45mg/day. He's gained weight. I've read that a low carb ...
symptoms after treament
- By EBVMH · New reply November 22, 2009
- 1 reply
- Hi there, I was wondering if anyone has had a doc tell them that if their problems, ie pain, rash, joint issues, were caused by sarcoid that when the granules were treated and gone the symptoms would ...
For those that have been to the Cleveland Clinic
- By HopeNicole · New reply November 21, 2009
- 17 replies
- Has anyone had any bad experiences with the cleveland clinic? I have read alot of gud things about them, but was just wonderin. becuz i am trying to get an appointment there ...
Would anyone like to join me in a 9 day Novena to find a cure for Sarc?
- By IreneMarie · New reply November 21, 2009
- 18 replies
- A novena is a very short 9 day prayer (the lenght of time they waited in the Upper Room) for a special intention of ours for Mary our Heavenly Mother to bring in intercession before God, for us her earthly ...
Bringing awareness
- By boatlady · New reply November 20, 2009
- 5 replies
- The tv show "The View" did a great job yesterday to bring in Lung and Pancreatic Cancer Awareness. Let's all contact them and see if we can get them to do a piece on Sarcoidosis! Here's a link to write ...
Verteran With Sarcoid
- By TCALL · New reply November 19, 2009
- 16 replies
- I have filed a claim with the VA for this disease as i feel it was brought on via my time in the navy over seas in the gulf. I was in Desert Steel as some may know it was the beginning of Desert storm ...
Diagnosed with sarc but never treated
- By tgucc · New reply November 18, 2009
- 18 replies
- I was diagnosed 3 years ago after coughing and shortness of breath. I used to be a runner but can't go over 2 minutes now. And I have that constant pain in the middle of the chest. I've been going to ...
Request Sarcoid Doctor Recommendation for Charlotte Area
- By kevikevnc · New reply November 18, 2009
- 2 replies
- looking for a doctor in the charlotte area with lots of sarc. knowledge. if anyone has any recomendations please reply ...
wheelechair
- By hoppytoad50 · New reply November 18, 2009
- 4 replies
- I was woundering if any of you end up in a wheel chair. i have had sarcoid for about 26 years but dident find out about 8 years ago. i found out this week they are going to test my daughter to see if ...
ANY FAMILY HISTORY OF OTHER AUTOIMMUNE DISEASES
- By the_dollinator · New reply November 17, 2009
- 71 replies
- Hi from Doll, A few doctors seemed surprised that I have Sarcoidosis, and that my mother died of Waldenstrom's Macroglobulinemia, and her brother had Lupus Erythmatosis (sp?). How about some feedback ...
Support Goup Charlotte, NC or surrounding area
- By B-faithful · New reply November 17, 2009
- 3 replies
- Hello everyone, do anyone know or is a member of any sarcoid support group in the Charlotte, NC or surrounding area. If so please forward the information. Any information will be help, thanks everyone ...
in great need of help...
- By cls710 · New reply November 16, 2009
- 8 replies
- 3 weeks ago my pulm dr reduced mt pred in half. now all my old symptoms are slowly coming back, it started with the swelling in my neck & achey feelings to the nausea & fevers now earaches & headaaches ...
Sarcoidosis Disability
- By volvo · New reply November 16, 2009
- 23 replies
- Has anyone been disabled or been able to collect disability from Social Security due to sarcoidosis? I have been told the sarcoidosis is spreading and wanted to figure out what some options are and/or ...
A clear definition of sarcoidosis
- By Lerxst · New reply November 16, 2009
- 16 replies
- I'm kind of confused as what the clear definition of sarcoidosis is. Whenever I visit sites online explaining sarcoidosis, they seem to indicate that the inflammation is caused by the immune system attacking ...
Positive ACE blood test - High Levels - Sarcoid?
- By gkygrl · New reply November 16, 2009
- 4 replies
- Hi, my name is Diana and I am brand new to this community and very active in MS communities with a blog and active on "Patients Like Me". I am kind of an autoimmune marvel -- I bet many of you can relate ...
Pain Relief
- By Geminigirl7613 · New reply November 16, 2009
- 4 replies
- Hi all! New girl Dx'd in August 2009 w/ Sarcoid, RA, Fibromyalgia and now being tested for Lupus. I take Plaquenil, Percocet, IBU 800's, Soma and I am also a Medical Marijuana patient. I am only 33 and ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
