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Living with sarcoidosis
Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.
Not Sure What to do. Thoughts and Opinions Please!
- By ashphalt · New reply 8:07 pm
- 12 replies
- I went to see my doctor this morning due to a sore throat and plugged nose. He checked it out and said it is not H1N1. Don't have the symptoms but have some from my sarc. I asked him about getting the ...
Ulcers
- By Cande2 · New reply 7:46 pm
- 2 replies
- Have been in pain and sick to my stomach for a couple of weeks now. after ER visit and GI scope. I now have five ulcers from the pain meds given to me for the arthrictic sarcoidosis. Any alternative suggestions ...
Anyone ever go into remission a 2nd time???
- By teeteeme · New reply 7:09 pm
- 15 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
Renal Sarcoidosis, what does that mean?
- By Brandie228 · New reply 6:40 pm
- 6 replies
- This whole thing with the Sarc has me more than a little lost. I don't know yet how to process all of the information out there. I'm trying to understand this disease and what it means for me. I was diagnosed ...
Contacts and uveiitis?
- By pearlsnowflake · New reply 6:39 pm
- 5 replies
- Just wondering if anyone with uveitis can wear contacts. One eye doc tells me forget about it those days are over and another has told me it is not a problem when there is no inflammation present in the ...
Sarcoidosis-pain
- By holley2583 · New reply 2:23 pm
- 27 replies
- Just was diagnosed, actually today, but gave even more blood to check again, and again. its in all my joints, and some of my muscles feel bruised when i touch them. First my ankles were swollen, then ...
severe leg pain explained
- By dollh · New reply 9:42 am
- 5 replies
- Dear friends, My legs, knees and hips were hurting so bad that my parents took me to the emergency room. I had about 20 x-rays done one my lower back, hips, knees, ankles and feet. The diagnosis osteoarthritis ...
please help a new comer
- By Akhilluvs · New reply 4:15 am
- 8 replies
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
cold and hot feelings
- By HopeNicole · New reply yesterday at 10:50 pm
- 4 replies
- My hands stay so cold! Esprcially at nite. I just asked my son to look for me a pair of gloves to wear while I type. My feet are cold alot to but not as much as the hands. Also sometimes wen I lay down ...
Positive ACE blood test - High Levels - Sarcoid?
- By gkygrl · New reply November 6, 2009
- 3 replies
- Hi, my name is Diana and I am brand new to this community and very active in MS communities with a blog and active on "Patients Like Me". I am kind of an autoimmune marvel -- I bet many of you can relate ...
Remission
- By tishee · New reply November 6, 2009
- 19 replies
- Hi guys, When I was first diagnosed with this monster my general practioner said that I have a 70 percent chance of going into remission after a year and a half. After being on this site, I realize he ...
A Legacy of Love
- By IreneMarie · Posted November 6, 2009
- 0 replies
- http://www.wgrz.com/news/local/story.asp x?storyid=71668&provider=gnews An article about a family dealing with young son's Sarc diagnosis and sad outcome. Together we ARE better ...
Anti-inflammatory diet??
- By CJ2009 · New reply November 6, 2009
- 8 replies
- Has anyone tried an anti-inflammatory diet for sarcoidosis? It focuses on fruits, vegetables and omega 3's and greatly limits fat, sugar and other carbs. Thanks for any info/experience with this approach ...
Vaccines
- By boatlady · New reply November 5, 2009
- 5 replies
- I just wanted to share with everyone to perhaps help put some minds at ease...I've gotten a flu shot every year since I was diagnosed with Sarcoidosis. This year, my pulmonologist insisted I add the H1N1 ...
For those that have been to the Cleveland Clinic
- By HopeNicole · New reply November 5, 2009
- 16 replies
- Has anyone had any bad experiences with the cleveland clinic? I have read alot of gud things about them, but was just wonderin. becuz i am trying to get an appointment there ...
??
- By jobob · Posted November 5, 2009
- 0 replies
- Where is Eljay? jobob ...
How do I get the proper care?
- By Brandie228 · New reply November 4, 2009
- 4 replies
- Hello. I'm a 32 year old, single mother of 5. I was diagnosed with Sarcoidosis at the end of July. It was diagnosed via a mediastenoscopy and biopsy of my lymph nodes. My lungs, lymph nodes, skin, and ...
Swineflue/sarcoidosis
- By alive · New reply November 4, 2009
- 13 replies
- Does anyone know how the Swine flu or if it affects anyone with sarcoidosis ...
Methotrexate is working
- By jobob · New reply November 4, 2009
- 14 replies
- Hi there, I haven't posted in a while because I've been very busy. Busy because I feel pretty good for a change. I have been taking Methotrexate for a couple months and things are definitely improving ...
Oh My Freaking Goodness!!!My neck Is on FIRE!
- By HopeNicole · New reply November 3, 2009
- 6 replies
- I swear I cant take this crap it is getting worse every dang day!! Worse at night!! My shoulders neck and upper back burns and aches like sumone is holding a match to it!! I was hurtin so much a minute ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
