Living with sarcoidosis

Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.

Just Wanted to Check In....

JenL
  • By JenL · Yesterday at 9:03 pm
  • 2 replies
  • Hi everyone its been a little while since i've posted and just wanted to say hello. And fill you in on my journey. First off today was a big day my sons 6th birthday party!!! It was awesome. I am begining ...

INPUT PLEASE-CAN ANYONE HELP-RIGHT RIB PAIN

lpavey
  • By lpavey · October 10, 2008
  • 10 replies
  • I have had this right rib pain for 1 1/2 years. They cannot find anything wrong. I have had blood work, CAT scans, bone scan, nerve studies and everything shows normal. It is constant and then other times ...

Stress related symtoms

Christina5
  • By Christina5 · October 10, 2008
  • 3 replies
  • In the last year or two I have come to realize that, when I am stressed in any way I become very ill, Sarcoid seems to pop up everywhere, Lungs, Heart, Neck and mostly Lymph nodes I have one in particular ...

Muscle Spasms

Lisalee
  • By Lisalee · October 9, 2008
  • 9 replies
  • Hello to all on this wonderful website. I just want to know if any of you have been suffering with muscle spasms in various strange places throughout your body? The latest episodes are happening under ...

Oprah is Looking for Medical Mistakes

shrinkingviolet
  • By shrinkingviolet · October 9, 2008
  • 0 replies
  • Oprah announced on her website that she is looking for stories about medical mistakes--maybe some of you have a nice horror show about mis-diagnosis that you can send her. Might be a way to get sarcoidosis ...

Research

Optimistic77
  • By Optimistic77 · October 9, 2008
  • 5 replies
  • I’m undergoing testing to determine if I have sarc. The last test is a biopsy. The doc's are 90% sure I have it. My heart goes out to so many people whose lives are altered by this unknown plague. With ...

Flu Shot?

stephg113
  • By stephg113 · October 8, 2008
  • 29 replies
  • Does anyone have an opinion about getting a flu shot? I was diagnosed in March of this year. Thanks Steph ...

Swollen Ankles

Cisco611
  • By Cisco611 · October 7, 2008
  • 12 replies
  • I have had swollen feet/ankles (yes, a cankle) for awhile now. Doctor says it doesnt have anything to do with Sarc. Seems like though when the Sarc flares up, the ankles get worse. Anyone have any info/experience ...

Anti Inflmmatory diet help

countryboyjason
  • By countryboyjason · October 7, 2008
  • 2 replies
  • does anyone have any good web sites about anti inflammatory diets? I googled but didnt really come up with much. It tells you the VERY and I mean VERY basics. Is the best thing to do is go to a book store ...

CRICKET star Mark Ramprakash speaks out on Dhirendra Bhatt, 63,

nclynnk
  • By nclynnk · October 6, 2008
  • 1 reply
  • http://www.sundaymercury.net/lifestyle-n ews/family-news/2008/10/06/my-heartbreak -by-cricket-legend-mark-ramprakash-66331 -21972364 ...

Approved For Social Security Disability

kooks
  • By kooks · October 5, 2008
  • 5 replies
  • Hi Everyone, I wanted to share some good news with all of you Wayne finally got approved for SSD. We recieved his award letter and it states that he is disabled with severe impairments, sarcoidosis of ...

New Legislation for Autoimmune Disease

daverojo77
  • By daverojo77 · October 4, 2008
  • 10 replies
  • Patrick Kennedy introduced H.R. 7078. A bill that would help bring much needed attention for funding research and awareness for auto immune diseases. You would think with a war going on and the economy ...

Insurance companies know us now

nanner
  • By nanner · October 3, 2008
  • 3 replies
  • Yesterday my husband had a physical for life insurance. The nurse came to our home to perform it. Afterwards, he told me that among the many questions asked about his own and his blood relatives health ...

SPECIALISTS PLAYING GOD

frenchyman
  • By frenchyman · October 1, 2008
  • 4 replies
  • Admin OptionsEdit Post Add Tags Delete Post Manage Blog Diagnosed in March 2008 with Sarc and lymph nodes size of grapefruits, everything went well until july when rushed into General Hospital and diagnosed ...

Artical on Cardiac Sarcoidosis

nclynnk
  • By nclynnk · September 30, 2008
  • 6 replies
  • http://www.miamiherald.com/living/health /story/706122.html ...

Those with sarc should be less prone to sickness ...??

harmles2
  • By harmles2 · September 28, 2008
  • 33 replies
  • so the theory goes like this, ........ if we have sarc, and sarc is an autoimmune disease, and that means our immune system are over active, so much so it attacks our own organs ...... then one might ...

HELLO

GIGGLESLOVE
  • By GIGGLESLOVE · September 27, 2008
  • 4 replies
  • IS THERE ANYONE ELSE OUT THERE WHO CANT SLEEP AND SARCOID IS KEEPING YOU UP ...

Just when you think it's better

CSAM11
  • By CSAM11 · September 25, 2008
  • 6 replies
  • I was diagnosed in 1995 went thru treatment for 2 months, in remission for till 2005 and on prednisone eversince. I 'm on methotrexate and alternating 5-10 mg prednisone each day now am extremely anemic..just ...

Why is sarc so dark

Scarface
  • By Scarface · September 24, 2008
  • 5 replies
  • Hi, everyone Just wondering if its only me who has these dark spots all over my body due to sarc. I find this to be very depressing and wondering if there is something else I can try to get rid of them ...

Sarcoiod and sleeplessness

Linda_Turtle
  • By Linda_Turtle · September 24, 2008
  • 21 replies
  • Have any of you been troubled with sleeplessness during your battle with sarcoid? I just had my spleen removed and was diagnosed with sarcoid in Sept 08. Since they though I had lymphoma or melanoma of ...

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