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Living with sarcoidosis
Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.
confused as ever!@
- By beautybarn · Posted 1:31 pm
- 0 replies
- hi everyone! i have some news that my sarcoidosis is quieted down whatever that means. i am confused because they will not say that i am in remission but yet they want me to stop ALL MEDS. won't this ...
Meetin up Locally after the holidays
- By TCALL · New reply 1:00 pm
- 12 replies
- A thought crossed my mind as well as others have had the same thought. It would be nice if there was a local meeting of some of us on this site to sorta have like a meet and greet! some where its permitting ...
Would anyone like to join me in a 9 day Novena to find a cure for Sarc?
- By IreneMarie · New reply 11:49 am
- 18 replies
- A novena is a very short 9 day prayer (the lenght of time they waited in the Upper Room) for a special intention of ours for Mary our Heavenly Mother to bring in intercession before God, for us her earthly ...
Anyone ever go into remission a 2nd time???
- By teeteeme · New reply 8:11 am
- 20 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
Hello. My name is Moe, and I have sarcoidosis
- By MoeLung · New reply yesterday at 7:05 pm
- 16 replies
- I'm new here and just joined. I was diagnosed this past July, after more than a year of dry cough and SOB (I love that acronym ... either 'sons of bitches' or 'shortness of breath'). During the year prior ...
Bringing awareness
- By boatlady · New reply yesterday at 9:31 am
- 5 replies
- The tv show "The View" did a great job yesterday to bring in Lung and Pancreatic Cancer Awareness. Let's all contact them and see if we can get them to do a piece on Sarcoidosis! Here's a link to write ...
Mt. Sinai
- By kimmarc · New reply yesterday at 9:11 am
- 5 replies
- Has anyone been to the sarc center there? I'm thinking of going. Thanks ...
H1N1 Vaccine
- By bashajaye · New reply November 19, 2009
- 7 replies
- I am trying to decide if I want to take a swine flu shot. I've always taken the regular flu shot. What do you guys think ...
Verteran With Sarcoid
- By TCALL · New reply November 19, 2009
- 16 replies
- I have filed a claim with the VA for this disease as i feel it was brought on via my time in the navy over seas in the gulf. I was in Desert Steel as some may know it was the beginning of Desert storm ...
SARC REMISSION
- By joyfulpatty · New reply November 19, 2009
- 3 replies
- Has any of you gone into remission when in Stage IV of Sarc ...
NEED INSURANCE
- By bashajaye · New reply November 19, 2009
- 2 replies
- I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...
Unbelieveable
- By alexxsky · New reply November 18, 2009
- 2 replies
- Good evening to to all, my first discussion every week their is something differnet with this disease,things your doctor does not tell you woke up with bruise did not know prednisone cause so many problems.thought ...
Diagnosed with sarc but never treated
- By tgucc · New reply November 18, 2009
- 18 replies
- I was diagnosed 3 years ago after coughing and shortness of breath. I used to be a runner but can't go over 2 minutes now. And I have that constant pain in the middle of the chest. I've been going to ...
Request Sarcoid Doctor Recommendation for Charlotte Area
- By kevikevnc · New reply November 18, 2009
- 2 replies
- looking for a doctor in the charlotte area with lots of sarc. knowledge. if anyone has any recomendations please reply ...
wheelechair
- By hoppytoad50 · New reply November 18, 2009
- 4 replies
- I was woundering if any of you end up in a wheel chair. i have had sarcoid for about 26 years but dident find out about 8 years ago. i found out this week they are going to test my daughter to see if ...
Went to ER this morning..shingles now
- By nascarfan24 · New reply November 18, 2009
- 25 replies
- I started out wednesday with pain on my left side of my head(scalp) certain areas.Thusday i started seeing small red sores in those areas,and more pain on those spots.Friday same but i thought sores were ...
ANY FAMILY HISTORY OF OTHER AUTOIMMUNE DISEASES
- By the_dollinator · New reply November 17, 2009
- 71 replies
- Hi from Doll, A few doctors seemed surprised that I have Sarcoidosis, and that my mother died of Waldenstrom's Macroglobulinemia, and her brother had Lupus Erythmatosis (sp?). How about some feedback ...
Support Goup Charlotte, NC or surrounding area
- By B-faithful · New reply November 17, 2009
- 3 replies
- Hello everyone, do anyone know or is a member of any sarcoid support group in the Charlotte, NC or surrounding area. If so please forward the information. Any information will be help, thanks everyone ...
in great need of help...
- By cls710 · New reply November 16, 2009
- 8 replies
- 3 weeks ago my pulm dr reduced mt pred in half. now all my old symptoms are slowly coming back, it started with the swelling in my neck & achey feelings to the nausea & fevers now earaches & headaaches ...
Sarcoidosis Disability
- By volvo · New reply November 16, 2009
- 23 replies
- Has anyone been disabled or been able to collect disability from Social Security due to sarcoidosis? I have been told the sarcoidosis is spreading and wanted to figure out what some options are and/or ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
