Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Emotional support

The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.

KC Support group canceled for Thursday

jon-with-no-h
  • By jon-with-no-h · Posted November 4, 2009
  • 0 replies
  • I have canceled the support group meeting scheduled for tomorrow (Thursday) evening in Independence,MO. My plate is FULL tomorrow and I know that after 5pm I will be far too tired... jon ...

I Can't Believe My Doc Said This To Me!

Boxerlover
  • By Boxerlover · New reply November 4, 2009
  • 32 replies
  • Because of the sarc, I get tons of kidney stones, have for years. I've been seeing my Urologist for about 16 years. He was the first doc I saw when we first moved here without insurance and he treated ...

Latest list of UK Support Groups

KeithB_S-A-S
  • By KeithB_S-A-S · New reply November 4, 2009
  • 1 reply
  • I am pleased to say the Sheffield & Liverpool (UK) details are now confirmed as: Date: Monday, 09 November 2009 Time: 13:00 - 15:30 Location: Chaloner Hall, St. Austins Street: Aigburth Road Town/City ...

Any opinions on surgery

tishee
  • By tishee · New reply November 3, 2009
  • 2 replies
  • Hi guys, Just had a visit with my general practioner. I have been in and out of the hospital all summer due to hypercalcemia. (due to my ravaged spleen). He recommended a spleenectomy (think that is the ...

Never give up!

hilsen
  • By hilsen · New reply November 3, 2009
  • 2 replies
  • HI All, I subscibed here few months after my diagnosis. I had a terrible episode of sarc which involved joints (both legs and arms swallowed suddently - in 10 days I simply could't move and walk anymore ...

Kansas City area support group

jon-with-no-h
  • By jon-with-no-h · Posted November 2, 2009
  • 0 replies
  • A friendly reminder that the Eastern Jackson County sarc support group will meet on Thursday, Nov 5, at 7pm in the parish hall (south door) at Trinity Episcopal Church, 409 N Liberty, Independence. Questions ...

Our precious cat Belle :(

vhoj
  • By vhoj · New reply November 1, 2009
  • 19 replies
  • Our cat Belle was everything to our family. She was never really friendly but she came to you own her own terms. She was an indoor cat but got out for a few hours. When we realized she was out we immeditely ...

"YOU COULD NOT BE CONVICTED FOR MURDER"

AmyLauren
  • By AmyLauren · New reply November 1, 2009
  • 3 replies
  • I WROTE AWHILE BACK HOW SAKS FIFTH AVE DECIDED TO ARREST ME FOR WALKING OUT WITH A HANBAG COMPLETELY UNCONCEALED...I WENT THERE TO PAY MY MONTHLY BILL AND TOLD THEM REPEATEDLY THAT I WAS VERY SICK.....but ...

Halloween Humor

IreneMarie
  • By IreneMarie · New reply October 30, 2009
  • 9 replies
  • This is an oldie, but since Halloween is this weekend, here it is again!! A man is walking home alone late one foggy night... when behind him he hears: Bump... BUMP... BUMP... Walking faster, he looks ...

Board Certified!

IreneMarie
  • By IreneMarie · New reply October 29, 2009
  • 4 replies
  • A doctor in Duluth wanted to get off work and go hunting, so he approached his assistant. 'Ole, I am goin' huntin' tomorrow and don't want to close the clinic. I want you to take care of the clinic and ...

Mediastinoscopy tommorrow

Tired_of_tests
  • By Tired_of_tests · New reply October 26, 2009
  • 26 replies
  • Well, it's finally here, I am having the Mediastinoscopy tommorrow. Wish me luck! Let's hope this will give me some answers finally ...

some bad news

scaredandfedup
  • By scaredandfedup · New reply October 23, 2009
  • 8 replies
  • hi everyone, yesterday i was given some horrific news about a friend of mine. I hadn't seen him in a few months but dropped in to see him yesterday to have a coffee where he works and one of his co-workers ...

I have cardiac sarc

Woody2
  • By Woody2 · New reply October 22, 2009
  • 28 replies
  • Hello all, I have been posting lately about chest pains and palpitations. Well, it has been confirmed via two types of cardiac PET scans that I do in fact have sarcoidosis in the heart. The next step ...

Roosters are clever

IreneMarie
  • By IreneMarie · New reply October 20, 2009
  • 8 replies
  • John was in the fertilized egg business. He had several hundred young layers (hens), called 'pullets,' and ten roosters to fertilize the eggs. He kept records, and any rooster not performing went into ...

Next Meeting Saturday Feb 6, 2010: N. Texas & Dallas/Ft. Worth Sarcoidosis

exultant
  • By exultant · New reply October 19, 2009
  • 3 replies
  • A big THANK YOU to all who attended our meeting today. You all keep me motivated. Our next meeting will be in 2010 on Saturday, Feb 6. Location: We will confirm the location at a later date ellj - We ...

Saturday Oct 17th: N. Texas & Dallas/Ft. Worth Sarcoidosis Support Meeting

exultant
  • By exultant · New reply October 17, 2009
  • 14 replies
  • North Texas & Dallas/Ft. Worth Sarcoidosis Support and Advocacy Network Please mark your calendars for next meeting will be held on Saturday Oct 17 at 12PM to 2PM. Location: Smithfield United Methodist ...

The Jocular Vein

IreneMarie
  • By IreneMarie · New reply October 16, 2009
  • 3 replies
  • I'm SURE you are all too young to remember any of the events listed below. RIGHT!!! Nothing in all the world is more dangerous than sincere ignorance and conscientious stupidity. Aging Gracefully $5.37 ...

Feeling Cranky

AngieT
  • By AngieT · New reply October 15, 2009
  • 20 replies
  • I have been feeling cranky, and guilty for it, for the last few days. Have started taking prednisone, just a 12 day treatment, and have had to double the amount of Flovent that I am taking because of ...

Don't Ask...If You Don't Want To Know

mrsbias
  • By mrsbias · New reply October 13, 2009
  • 19 replies
  • I'm sorry family but I just have to vent again. Now I have been to myself ALL DAY...by choice. But my brother comes over to pick up my son for the weekend...he comes in my room and ask me the famous question ...

Blaus syndrome / early onset sarcoidosis

sofsch
  • By sofsch · New reply October 13, 2009
  • 3 replies
  • I´m a mum to a 3 year old boy and we are from sweden. My son got diagnosed with blaus this summer. There´s no other reported cases in sweden. It´s been a difficult time but we have started to feel ...

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

Group leaders

You