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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Emotional support
The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.
Disability Hearing
- By Daff81 · New reply 5:06 pm
- 21 replies
- Hello All ! , Had my disability hearing before the Judge on 11-17-09 . All went well and we were told that my case has been approved !!! What a wonderful blessing it was to hear those words !! The long ...
Attention Charlotte, NC Sarkies...Support Group
- By KarenGSO · Posted 4:41 pm
- 0 replies
- Hi, I just wanted to let you guys know that I have started a new Sarcoidosis Meetup Support group here in Greensboro. Gram1 from Charlotte has expressed an interest in participating, particularly if there ...
Attention Charlotte, NC Sarkies...Support Group
- By KarenGSO · Posted 4:39 pm
- 0 replies
- Hi, I just wanted to let you guys know that I have started a new Sarcoidosis Meetup Support group here in Greensboro. Gram1 from Charlotte has expressed an interest in participating, particularly if there ...
Calling ALL PEEPS from Greensboro, NC!!
- By KarenGSO · New reply 4:32 pm
- 12 replies
- I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...
Just started on imuran (azothiaprine)
- By janepauline · New reply 10:29 am
- 30 replies
- I am feeling really down today. I have been on my new tablet for 7 days now and I feel sick and tired. It is not as bad as the methotrexate, no where near. But I was hoping I would feel better not worse ...
Sarcoidosis Awareness Group of Baton Rouge
- By LadyBugDucre · New reply yesterday at 10:42 pm
- 3 replies
- Hello All, Tonight was my very first time attending a support group meeting. It literally warmed my heart to know that I have allies in this journey. Living with this disease is not easy but God knows ...
a grateful day
- By jon-with-no-h · New reply yesterday at 10:27 pm
- 13 replies
- To my fellow sarckies... Today I humble and gratefully celebrate four years of sobriety thanks to the simply program of AA. One day at a time. jon ...
NY/NJ/CT area Support Group
- By kimmarc · Posted yesterday at 9:15 am
- 0 replies
- Hi All, I spoke with the liason at Mt. Sinai. They have a support group for Sarc there and you do not have to be a patient to go to the group. The next meeting is Saturday, December 5th @11am. It is located ...
smoking cigerettes with sarco......
- By tatiana1420 · New reply November 19, 2009
- 3 replies
- hello everyone i would like to know does nayone with the sarcoid smoke cigerettes ? i quit when i first found out about the sarcco in july but have picked it back up nowdue to my depresstion i know it ...
Wow, Do I Feel Like an Idiot!!!
- By Boxerlover · New reply November 18, 2009
- 9 replies
- This is for basically everyone, boy do I feel foolish! Can I blame it on fibro fog? When I have started a post and people respond, I have been scrolling down to the bottom and just thanking people for ...
Neurosarcoidosis
- By bigjoe · New reply November 16, 2009
- 33 replies
- My symtoms seem to be progressing quickly over the past 3 weeks. I wonder if my wife will find me druiling in the corner soon. I can't answer questions very well. I cannot teach the bible anymore (I have ...
This Too Shall Pass!
- By IFGODBEFORYOU619 · New reply November 15, 2009
- 9 replies
- I have major problems breathing when around people who are wearing perfumes colognes etc. Certain foods cause serious bloating which makes it harder to breath. Prednisone taken helps symptoms but caused ...
Just about to leave for my first Dr. appt
- By SPM1617 · New reply November 12, 2009
- 10 replies
- I was diagnosed a few weeks ago after a catscan of my lungs (they thought I had a blood clot) found abnormalities. After 4 days of testing and more testing (I'm sure you've all been through it before ...
I'm A Mystery?
- By mvaughn1018 · New reply November 10, 2009
- 4 replies
- Many are aware of my recent ER trip due to brochospasms. I went back to the pulmonologist on Mon. I explained my episode, see got brochospasms?. I had pft's and a 6 minute walk around their office to ...
really good book
- By tishee · New reply November 7, 2009
- 16 replies
- Did anybody read the book written by Karen Duffy ( "Duff" vj from vh1 in the 90's) It was such a good book for us sarkies. She came down with it in her early 30's. It helped me alot in the beginning ...
Some old some new - time for a chuckle
- By IreneMarie · New reply November 6, 2009
- 6 replies
- "Doc, I can't stop singing The Green, Green Grass of Home." "That sounds like Tom Jones Syndrome." "Is it common?" "Well, It's Not Unusual Two antennas met on a roof, fell in love and got married. The ...
KC Support group canceled for Thursday
- By jon-with-no-h · Posted November 4, 2009
- 0 replies
- I have canceled the support group meeting scheduled for tomorrow (Thursday) evening in Independence,MO. My plate is FULL tomorrow and I know that after 5pm I will be far too tired... jon ...
I Can't Believe My Doc Said This To Me!
- By Boxerlover · New reply November 4, 2009
- 32 replies
- Because of the sarc, I get tons of kidney stones, have for years. I've been seeing my Urologist for about 16 years. He was the first doc I saw when we first moved here without insurance and he treated ...
Latest list of UK Support Groups
- By KeithB_S-A-S · New reply November 4, 2009
- 1 reply
- I am pleased to say the Sheffield & Liverpool (UK) details are now confirmed as: Date: Monday, 09 November 2009 Time: 13:00 - 15:30 Location: Chaloner Hall, St. Austins Street: Aigburth Road Town/City ...
Any opinions on surgery
- By tishee · New reply November 3, 2009
- 2 replies
- Hi guys, Just had a visit with my general practioner. I have been in and out of the hospital all summer due to hypercalcemia. (due to my ravaged spleen). He recommended a spleenectomy (think that is the ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
