The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.
- By pinkdragonfly · New reply November 21, 2008
- 5 replies
- Hey Everyone, I am truly grateful to have this community to go to for support. I sometimes feel that my doctors think I am faking symptoms. I have had so much pain lately. I am currently taking methotrexate ...
- By jventrano · New reply November 21, 2008
- 2 replies
- I wanted to post this in case you didn't see or hear about this. I am hoping that this will help in pushing information about this disease out to the world. http://www.berniemacfoundation.org/ Good Luck ...
- By Mark_K · New reply November 17, 2008
- 11 replies
- Recently, I've had a few issues with flare ups. Last Wednesday I went to see my sarcoid doctor for my 6 monthly checkup. I got into his office and told him about the fare ups, and that I'd lost a stone ...
- By missymom32 · New reply November 15, 2008
- 7 replies
- We went to Dallas to UT Southwest Monday. Shane had a spinal tap done, still have not heard the results. Dr. Courtney, who is a very great doctor, said that she was leaning more to neurosarcoidosis than ...
- By brian-a · New reply November 14, 2008
- 1 reply
- i have heart lung and liver sarcoid. my EF is under 30%. has enybody out there recoverd from cardiac sarcoid ...
- By kooks · New reply November 13, 2008
- 17 replies
- Hi everyone, I feel like i am going to lose my mind i have been so supportive of my husband but sometimes he can drive me crazy. He's back on prednisone and he can be so nasty at times i don't like when ...
- By PurpleSnowflake · New reply November 12, 2008
- 8 replies
- Hi everyoone I am 29 yrs old and have no children. I have had Sarcoidosis for 4 years and it has been very chronic. Hasn't responded to medicine very well. My question is has anyone had a D&C and hysterscopy ...
- By Dawny1965 · New reply November 9, 2008
- 1 reply
- Just curious if there is anyone out there in CT that are suffering from Sarcoidosis? I have other health issues also, but know of no one in CT so far that is dealing with this, and would love to know ...
- By sarcoidbuddies · New reply November 6, 2008
- 2 replies
- this disease can sometines feel like it's driving you up a tree you'll one way one day and something else the other. i get a lot of support from my husband and children but not from my other family members ...
- By sarcoidbuddies · New reply October 31, 2008
- 3 replies
- I was looking around in here and i thought how wonderful all of you are and how grateful i am for the outstanding feed back i always get from you guys ,, {thanks!} sarcoid has a tendacy to creep up on ...
- By sashakirchoff · New reply October 31, 2008
- 37 replies
- my 9 year old cat ,i just found him dead behind me in the corner and thoought he was asleep,and 2 hrs,and inbetween me crying and want to kill myself,i have to write, im utterly shocked ...
- By DARRYL · New reply October 26, 2008
- 4 replies
- PLEASE, Someone else out there let me know if you have even 3 of these symptoms. I know this is going to sound like a whinning fest but I just am very desperate for answers. I live in Northern Michigan ...
- By nyjets · Posted October 26, 2008
- 0 replies
- Hi all, I'm looking for others with Sarc in Arizona, we live in Prescott, 100 miles north of Phoenix, I would love to hear from you. I'm want to talk to others regarding treatments, drs, symptoms & eventually ...
- By Chakakhan1976 · New reply October 26, 2008
- 28 replies
- Hello Everyone I am a member of the SC Liturgical Dance Network and on 04/26/2008 they will be having a worship service on the SC State house grounds to dance in intercession for those with Sarcoidosis ...
- By Mark_K · New reply October 24, 2008
- 6 replies
- I didn't know to put this in emotional support or treatment. Support groups are just that aren't they? If one person has an opinion that another person doesn't like, that person still has a valid opinion ...
- By DaiseyLou75 · New reply October 23, 2008
- 12 replies
- I am taking care of my spouse who has sarcoid almost 24/7. I retired in July 2006 (at 51) and my husband recently retired on disability after his condition worsen in Aug. 2007. He has had sarcoid for ...
- By BHS · New reply October 23, 2008
- 14 replies
- Last night I attended my first sarc support group meeting at Mount Sinai in NYC. I almost didn't go because it's a struggle to go anywhere (I live in NJ and it took over an hour to get there) with my ...
- By singingwithsarc · Posted October 22, 2008
- 0 replies
- Hey Everyone! I'm back again to uplift and inspire you through music. Again....I've been there, I have daily struggles with the sarc, and I too need encouragement! So sometimes for me...It's not a word ...
- By lillideita · New reply October 22, 2008
- 16 replies
- After being diagnosed in March of 08 I was dong pretty well, being treated with Prednisone. The high dose of 40 mg has been lowered to now 15 mg.A month ago my husband of 55 years got very ill, had several ...
- By tacd · New reply October 17, 2008
- 1 reply
- Our support group will be meeting Tuesday October 21 at the Outpatient Service Center across the street from the Sharon Morse Building from 10:30 to 12:00. If anyone needs more information you can e-mail ...
