Discussion topics

Symptoms

Sarcoidosis can affect almost any organ in the body. Symptoms typically depend on which organ the disease affects. Discuss your specific organ symptoms (lung, heart, eyes, skin, central nervous system) and meet others who have had similar experiences.

Headaches and Nausea and Dizziness????

• By Jrs_Mom · New reply yesterday at 10:51 pm
• 8 replies
• Can anyone share with me whether or not severe headaches, nausea and dizziness are a factor with Sarcs? Is it a symptom of neurosarcs? My son, has Sarcs in his lungs and for awhile they thought it was ...

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Living with sarcoidosis

Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.

Meetin up Locally after the holidays

• By TCALL · New reply yesterday at 10:38 pm
• 9 replies
• A thought crossed my mind as well as others have had the same thought. It would be nice if there was a local meeting of some of us on this site to sorta have like a meet and greet! some where its permitting ...

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Treatment decisions

Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.

Visit to Clev. Clinic - Incredible

• By Raleighnat · New reply yesterday at 11:14 pm
• 19 replies
• I wanted to share my experience briefly regarding the Cleveland Clinic and the diagnosis / treatment plan for my case of sarc in the bone. Some have heard my history before, so I'll be brief: enlarged ...

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Triggers

No one knows exactly what causes sarcoidosis. It is probably due to a combination of factors and genetic predisposition appears to be important. Share your family and work history, environmental exposures and seasonal disease patterns.

diet soda/aspartame and sarc?

• By wannabecate · New reply yesterday at 9:38 pm
• 10 replies
• hi! i'm new to the board and i have a question about my husband. he was diagnosed with sarcoidosis about 14 months ago, and like everyone has his ups and downs. one thing that i was wondering is if anyone ...

All 117 discussions...

Emotional support

The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.

Calling ALL PEEPS from Greensboro, NC!!

• By KarenGSO · New reply yesterday at 11:42 pm
• 8 replies
• I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...

All 341 discussions...

Family and friends

Sarcoidosis can also affect a patient's family and friends, who now have a loved one facing a serious disease. Share your worries and connect with parents of children with the disease, other caregivers and those who have lost a loved one.

December 6, 2009 event

• By aaronsake · Posted November 11, 2009
• 0 replies
• On December 6, 2009 at Blaze East Side restaurant in Providence RI from 5pm to 7pm i will be hosting a fundraiser in order to raise funds for out of state medical treatment and research for my son Aaron ...

All 90 discussions...

Help desk

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In need of a SARC DOC.in Baton rouge,La

• By BABYGIRL10 · New reply November 15, 2009
• 10 replies
• I have a good skin doc,but can any on in B.R la tell me is thier a goon SARC DOC OR A GOOD CLINIC HERE ...

All 123 discussions...