Discussion topics

Symptoms

Sarcoidosis can affect almost any organ in the body. Symptoms typically depend on which organ the disease affects. Discuss your specific organ symptoms (lung, heart, eyes, skin, central nervous system) and meet others who have had similar experiences.

Syndromes of sarcoid? Should they be less of a guide?

priscurl
  • By priscurl · New reply 6:18 pm
  • 4 replies
  • I have read a lot about sarcoidosis over the years and as a sarcoidosis sufferer, a lot of the statistics make no sense to me. From my point of view, these statistics have always been a barrier to getting ...

All 849 discussions...

Living with sarcoidosis

Maintaining good health habits cannot guarantee that symptoms will be eliminated, but they may improve the quality of your life. Share your lifestyle experiences and knowledge related to nutrition, exercise, follow-up exams and tips for a healthy pregnancy.

PET Report

nclynnk
  • By nclynnk · New reply 8:55 pm
  • 2 replies
  • Hey all...this is my 3rd PET scan in a year...is there anything i should be concerned about?? Findings: No worrisome areas of hypermetabolism are aidntified. Presumed normal variant type distribution ...

All 652 discussions...

Treatment decisions

Treatments are intended to improve how the organs affected by sarcoidosis work and to relieve symptoms. Some organs must be treated, regardless of your symptoms while others may not need to be treated. Discuss your current treatment program and ways your condition is monitored.

Looking for Local Michigan People with SARCOIDOSIS

mboater1
  • By mboater1 · New reply yesterday at 8:51 pm
  • 21 replies
  • Hi, I would like to chat with local Michigan People Preferred Detroit area. if possible not necessary, to compare issues, symptoms, treatments and good Knowledable doctors. As it seems that my doctor ...

All 531 discussions...

Triggers

No one knows exactly what causes sarcoidosis. It is probably due to a combination of factors and genetic predisposition appears to be important. Share your family and work history, environmental exposures and seasonal disease patterns.

Quick Survey about Sarcoid and Bacteria

jmaze
  • By jmaze · New reply 3:27 pm
  • 33 replies
  • Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...

All 71 discussions...

Emotional support

The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.

Support group in or Around Austin Texas

pinkdragonfly
  • By pinkdragonfly · New reply November 21, 2008
  • 5 replies
  • Hey Everyone, I am truly grateful to have this community to go to for support. I sometimes feel that my doctors think I am faking symptoms. I have had so much pain lately. I am currently taking methotrexate ...

All 141 discussions...

Family and friends

Sarcoidosis can also affect a patient's family and friends, who now have a loved one facing a serious disease. Share your worries and connect with parents of children with the disease, other caregivers and those who have lost a loved one.

HELLO MY FTIENDS

sarcoidbuddies
  • By sarcoidbuddies · New reply 12:18 pm
  • 5 replies
  • TONIGHT HAS BEEN AN AWFUL NIGHT FIRST I TRIED CALLINGMY MOM SO WHEN MY BROTHER CALLED AND SAID HE COULD"NT GET HER TO T THEN TOLD WELL SHE"S IN THERE HURT AND SHE COILD BE ON THE FLOOR. SO I HAD TO DRIVE ...

All 45 discussions...

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sarcoid of the prostrate

minheard
  • By minheard · New reply 7:46 am
  • 5 replies
  • I AM TRYING TO FIND OUT IF ANY MAN HAS HAD PROBLEMS WITH HIS PROSTATE DUE TO SARCOID. MY UNCLE HAS HAD 5 BIOPSIES AND DR STILL CAN'T SAY CANCER. IF YOU KNOW OF ANY THING OR ANYONE PLEASE LET ME KNOW ...

All 59 discussions...

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