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Why are we here?

Brian
  • By Brian · Posted April 11, 2008
  • Journal · 49 recommendations
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Support your group and raise awareness with badges

Walter
  • By Walter · Posted June 20, 2008
  • Journal · 23 recommendations
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New feature - See what you've replied to

Walter
  • By Walter · Posted April 25, 2008
  • Journal · 18 recommendations
  • Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...

WHY IS IT THAT MOST DOCTORS THINK OF SACOIDOSIS AS A LUNG DISORDER?

Krissy
  • By Krissy · Posted August 30, 2008
  • Discussion in Symptoms · 6 recommendations
  • I really feel so bad for anyone who has Sarcoidosis affecting their lungs. That is the case for 90% of diagnosed cases, I believe. It must be terrible, having to endure a lung illness. I am concerned ...

How long have you had sarcoid?

priscurl
  • By priscurl · Posted August 7, 2008
  • Discussion in Living with sarcoidosis · 6 recommendations
  • I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...

Doctors and Web Info for sarcoid - how to use it

priscurl
  • By priscurl · Posted yesterday at 5:01 am
  • Discussion in Treatment decisions · 3 recommendations
  • I found this advice to doctors in another sarc site that came from the Australian Medical Journal. I think many here could benefit from it. Dr Do list 1. Dealing with the internet-literate patients and ...

CONNECTING THE DOTS

Linds25
  • By Linds25 · Posted September 13, 2008
  • Discussion in Triggers · 3 recommendations
  • Just a thought and will need some help here....but shall we start a train to see if we can connect some dots as to why we have what we have. Lets start with location and than go from there. Linds25-Grew ...

If u need 2 laugh, even when nothing seems funny...

shadowtoonces
  • By shadowtoonces · Posted yesterday at 2:28 pm
  • Journal · 2 recommendations
  • Hi Friends, I'm sure some of you are getting to know my sick sense of humor as I getting to know some of you. Now I know that some might not find this funny but some of you will and will really go off ...

Complete body aches and pains

momof10
  • By momof10 · Posted yesterday at 10:38 am
  • Discussion in Living with sarcoidosis · 2 recommendations
  • I haven't posted on here in a long while but I do read daily and take the info I can to help me live with this disease. I also pray daily for all those afflicted. My question is this. Do any of you suffer ...

The last " House" episode

clcsj
  • By clcsj · Posted November 26, 2008
  • Discussion in Symptoms · 2 recommendations
  • Did anyone see the House episode that aired on Tuesday November 25th called Last Resort. Here is the recap of the show. While working the busy clinic, Foreman suggests to Thirteen that she participate ...

Sarc, little cure evidence for the treatments we are given?

harmles2
  • By harmles2 · Posted November 22, 2008
  • Discussion in Treatment decisions · 2 recommendations
  • If I have this right, I'm going to very briefly describe what medicine doesn't know, even though we are being treated as though medical science does know what its doing. (ie your Dr starts you on a treatment ...

Syndromes of sarcoid? Should they be less of a guide?

priscurl
  • By priscurl · Posted 2:50 am
  • Discussion in Symptoms · 1 recommendation
  • I have read a lot about sarcoidosis over the years and as a sarcoidosis sufferer, a lot of the statistics make no sense to me. From my point of view, these statistics have always been a barrier to getting ...

Happy Thanksgiving!!!!

nomoresmiling
  • By nomoresmiling · Posted November 26, 2008
  • Discussion in Living with sarcoidosis · 1 recommendation
  • I just want to wish EVERYONE a Happy Thanksgiving! Try to forget for at least a little while what we are all going through and find something to give thanks for! Especially family and friends, Inspire ...

HAPPY HOLIDAYS

Laura7
  • By Laura7 · Posted November 24, 2008
  • Discussion in Family and friends · 1 recommendation
  • I just wanted to take a few minutes and wish all of you a wonderful Holiday. I pray that each one of you and your families have a great week. I pray that we all feel good and are able to enjoy this Holiday ...

LIFE REVIEW OF EXPOSURES

rbdavis172
  • By rbdavis172 · Posted June 25, 2007
  • Discussion in Triggers · 1 recommendation
  • Can everyone please think of all the unusual ways that you may have been exposed to something causing sarc? Since we don't know the cause....i find it interesting to hear personal theories on how those ...

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