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Why are we here?

Brian
  • By Brian · Posted April 11, 2008
  • Journal · 49 recommendations
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Support your group and raise awareness with badges

Walter
  • By Walter · Posted June 20, 2008
  • Journal · 23 recommendations
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New feature - See what you've replied to

Walter
  • By Walter · Posted April 25, 2008
  • Journal · 18 recommendations
  • Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · Posted March 13, 2008
  • Journal · 16 recommendations
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

New feature: video!

Brian
  • By Brian · Posted June 28, 2008
  • Journal · 13 recommendations
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

Some thoughts on how to live with progressive sarc ....

harmles2
  • By harmles2 · Posted November 4, 2008
  • Discussion in Living with sarcoidosis · 11 recommendations
  • (I added to this near the end on 11-6-08) I thought I'd start this post to share thoughts on how we (I) live with progressive sarc, the kind most of us have here in our support community, many of you ...

Mythbusting

Paradox
  • By Paradox · Posted September 28, 2008
  • Journal · 9 recommendations
  • Most of this was originally under a different heading, but I have been asked by multiple people to give it it's own journal - so here it is with the latest addition included. *************** Ok, here’s ...

Because the issue keeps coming up

Paradox
  • By Paradox · Posted September 29, 2008
  • Journal · 7 recommendations
  • There is some information that I think I absolutely have to share here. I wasn't going to initially, since I am a strong believer in people making their own choices for good or ill and not wanting to ...

WHY IS IT THAT MOST DOCTORS THINK OF SACOIDOSIS AS A LUNG DISORDER?

Krissy
  • By Krissy · Posted August 30, 2008
  • Discussion in Symptoms · 6 recommendations
  • I really feel so bad for anyone who has Sarcoidosis affecting their lungs. That is the case for 90% of diagnosed cases, I believe. It must be terrible, having to endure a lung illness. I am concerned ...

How long have you had sarcoid?

priscurl
  • By priscurl · Posted August 7, 2008
  • Discussion in Living with sarcoidosis · 6 recommendations
  • I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...

On the Care and Feeding of Your Non-Sarcoidosis Persons

theGardener
  • By theGardener · Posted February 7, 2008
  • Journal · 6 recommendations
  • On the Care and Feeding of Your Non-Sarcoidosis Persons Those of you who enjoy reading this blog must be of the understanding that well over 60% of it is due to the miraculous head-smacking and caretaking ...

Don’t Be a Bore – Sarcoidosis and the Holidays

theGardener
  • By theGardener · Posted December 12, 2006
  • Journal · 5 recommendations
  • Don�t Be a Bore � Sarcoidosis and the Holidays Once again the holidays are upon us and with all the joy, eggnog, and God-rested merry gentlemen, there is a 90% increased risk that those of us with Sarcoidosis ...

Medical Warning from a Friend….

nomoresmiling
  • By nomoresmiling · Posted October 30, 2008
  • Journal · 4 recommendations
  • Since being diagnosed with this crazy disease and feeling like the biopsy queen the only thing that actually has been on numerous CT scans since May ’08, has been a “cyst” on my left kidney approximately ...

Quick Survey about Sarcoid and Bacteria

jmaze
  • By jmaze · Posted September 6, 2008
  • Discussion in Triggers · 4 recommendations
  • Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...

The First Semi-Annual Sarcoidosis International Cup

theGardener
  • By theGardener · Posted September 17, 2007
  • Journal · 4 recommendations
  • The First Semi-Annual Sarcoidosis International Cup Grab your best mates, belly up to the foot rail, order a pint or three, and some pub grub� The First Semi-Annual Sarcoidosis International Cup is on ...

Doctors and Web Info for sarcoid - how to use it

priscurl
  • By priscurl · Posted yesterday at 5:01 am
  • Discussion in Treatment decisions · 3 recommendations
  • I found this advice to doctors in another sarc site that came from the Australian Medical Journal. I think many here could benefit from it. Dr Do list 1. Dealing with the internet-literate patients and ...

FDA Drug Safety Website

trek50
  • By trek50 · Posted November 20, 2008
  • Discussion in Treatment decisions · 3 recommendations
  • FDA Creates Web Page with Drug Safety Information for Patients, Health Care Professionals Consolidates information in one access point Consumers and health care professionals can now go to a single page ...

Prednisone- Doesn't HAVE to Suck!

PhinnyMing
  • By PhinnyMing · Posted September 13, 2008
  • Journal · 3 recommendations
  • Howdy all- Today I wanted to write something a little more positive- Since reading many entries, the biggest complaint I hear from our little group of Granuloma-Heads... PREDNISONE. For some of you who ...

CONNECTING THE DOTS

Linds25
  • By Linds25 · Posted September 13, 2008
  • Discussion in Triggers · 3 recommendations
  • Just a thought and will need some help here....but shall we start a train to see if we can connect some dots as to why we have what we have. Lets start with location and than go from there. Linds25-Grew ...

If u need 2 laugh, even when nothing seems funny...

shadowtoonces
  • By shadowtoonces · Posted yesterday at 2:28 pm
  • Journal · 2 recommendations
  • Hi Friends, I'm sure some of you are getting to know my sick sense of humor as I getting to know some of you. Now I know that some might not find this funny but some of you will and will really go off ...

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