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New journals
How do they know?
- By Shannigans · Posted 9:37 am
- 0 replies
- How do they know that the dose of methotrexrate is strong enough? How do they know that the sarcoid isnt attacking more organs in a silent attack. How do they know that the methotrexrate is working if ...
Treatment......finally!
- By Brandie228 · Posted 6:30 am
- 1 reply
- I've been living with pain for nearly two years now! I was just evicted from my home because it's a mess! It isn't now, but it was when my landlord went in. My family physician sent me to a rheumatologist ...
Tired of fighting this...
- By gravyjob · Posted yesterday at 9:57 pm
- 11 replies
- I am so very very tired of this awful disease. I thought I had what it takes to beat this but I don't. Instead of praying that God will heal this, I now find myself praying that he'll take me in my sleep ...
Still no answers
- By But4God · Posted yesterday at 8:11 pm
- 0 replies
- I went in for a Tilt Table Test today to see if they could trigger a near fainting spell so they could find out the cause still no answers back to square one. Cardio doc thinks sarcoid may have moved ...
A tit for tat Tuesday
- By Shannigans · Posted yesterday at 6:40 pm
- 0 replies
- Iam tired and worn out. Haven even done much. Sometimes it doesnt take much. I decided to treat myself right before taking the meds again tommorow. Went and got my hair all done. Does anyone know of any ...
Toledo, Ohio
- By Janaline · Posted yesterday at 11:55 am
- 3 replies
- Hello Guys! I would like to know if there is anyone in my area that has Sarcoidosis that would like to correspond? Have a PAIN FREE DAY or atleast a GOOD DAY! JAN ...
The Big Golden Rabid Barking Lymph Nodes Holiday Reprint
- By theGardener · Posted yesterday at 9:42 am
- 0 replies
- This is for all of you, old guard and newbie alike... Happy Holidays! May the Season bring you peace and good health. Holiday Joy to All! (please scroll down....) (sorry, scroll down a little more ...
Making progress on the treadmill
- By SPM1617 · Posted yesterday at 9:24 am
- 2 replies
- I have to share how excited I am to be running again. With how bad my chest and lungs had felt in the past months, and then with the diagnosis of it being Sarc, I wasn't sure this was a possible dream ...
Fever
- By Butterflies66 · Posted November 23, 2009
- 2 replies
- My husband has had a low grade fever for the last 4 weeks, says he feels fine. I want him to go to the Doctor to get checked out, but he says no. Has anyone else had this problem, Fever not the stuborness ...
today
- By spiceyadams · Posted November 23, 2009
- 4 replies
- I was diagnosed with muscular sarcoidosis Feb 12,2008 and has since found out that it also in my Lacrimal and Parotid Glands. I have been on Prednisone along with Trental and other meds for 21 months ...
Anyone ever had mono?
- By silvercivic · Posted November 23, 2009
- 1 reply
- My pulmonary guy wants me to take pred to see if it will end this flu like feeing I've had for a month.On the other hand he says it's possible but slight that I have mono.I have the flu like feeling and ...
Update
- By Raiclin · Posted November 23, 2009
- 1 reply
- Sry, it has been a while since I have written. I do log in and read some of the posts and try to keep up on the news. I am still working and spend much of my days either there or at doctors offices. By ...
My last post
- By AngelsFarm · Posted November 23, 2009
- 0 replies
- Arrggghh! Back from the latest doctor’s appoint. I’d be pulling my hair out if I hadn’t already lost most of it to alopecia and the remainder to the razor. My test were all negative. Go figure...like ...
Methotrexrate for Sarcoidosis use
- By Shannigans · Posted November 23, 2009
- 9 replies
- Iam feeling really good today. Other than the usual wear and tear of working. Iam not looking forward to Wednesday. Its back on the metho. Ive got Five months of this stuff to go. Including blood work ...
So many thoughts
- By Lizza1 · Posted November 23, 2009
- 3 replies
- I was recently diagnosed with sarcoidosis, I'm not quite sure how it happens one day I was just doing my normal running route and couldn't breath after that. That was almost 1yr ago, I have gained 30lbs ...
Interstitial Lung Disease Group - Part 2
- By BeccaSF · Posted November 22, 2009
- 0 replies
- Last Friday I got to see the Interstitial Lung Disease (ILD) group at UCSF. I have been really excited to see them, especially since my hospitalization, and all I have to say is I am truly blessed for ...
Sunday, Sunday, Just don't give a ...
- By coolbreeze0121 · Posted November 22, 2009
- 1 reply
- Woke up this morning with another headache and neck ache. Am getting of tired of feeling like an old lady at 43. I wonder if this is due to the surgery I had on Tuesday or if it is the Sarcoidosis. Anyways ...
FIRSTimer to Site! I haveSarcoidosis of the Nasal Lining/Lungs
- By Janaline · Posted November 21, 2009
- 2 replies
- Hello Everyone It has formally been 3yr since having sarcoidosis of the Lungs, but I suspect I have had it for YEARS, atleast 10. I have recently been informed that it is now in the lining of my NOSE ...
AGAIN?!?!?!?!
- By SarCar · Posted November 20, 2009
- 1 reply
- Could this be my first official flare up since my Diagnosis??? (even though I know I have probably had Sarcoid for years) Well my last post was on July 17, 2009 and I was saying I was beginning to feel ...
First time posting
- By AtlanticOcean · Posted November 20, 2009
- 6 replies
- I have been reading alot of the journals over the past two months and have learned so much from all you wonderful people. My story is not unlike many of you. I developed what I thought was just a cold ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
