Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New discussions
lupus pernio
- By Ebony1975 · Posted 10:04 am
- In Living with sarcoidosis · 0 replies
- Has anyone expirienced this diseaseas a result of your Sarcoid? lupus pernio ...
Burning pain under ribs
- By Jpalmer1631 · Posted 8:29 am
- In Symptoms · 3 replies
- Friends, Do any of you get sharp burning pain on your left side, just under the heart or lower ribs? I looked at an anatomy page and it seems to be where the spleen is located. Jay ...
David McClendon RIP+
- By jon-with-no-h · Posted yesterday at 9:39 pm
- In Emotional support · 13 replies
- My friend, David, who I got to know through this community, has died. He was only 44, a little younger than me, and we had a lot in common. I'm pretty upset, and scared, too... http://www.nhregister.com/articles/2009 ...
Brain Fatigue/Fogginess
- By whatsupdoc · Posted yesterday at 9:02 pm
- In Symptoms · 5 replies
- I've had sarc for a year now and have worked through most of my health issues. Today I had device clinic for my pacemaker/defibrillator screening and I am another six months free of any heart symptoms ...
Hair Loss
- By coolbreeze0121 · Posted yesterday at 5:45 pm
- In Symptoms · 6 replies
- Ok as some of you know I just found out I have Sarc. a few days ago. Today after I took my shower it dawned on me that I seem to loosing my hair. I have had to clean out my brush a lot the last few days ...
Swollen neck glands
- By Mamalady462 · Posted yesterday at 3:21 pm
- In Living with sarcoidosis · 4 replies
- I have sarcoidosis and was diagnosed last April. I take 20 mg prednisone daily. I have been getting really painful lumps in my neck which the doctor says not to worry about because it is the sarcoid ...
Lymphoma and sarcoidosis
- By kriss3497 · Posted yesterday at 12:40 pm
- In Emotional support · 6 replies
- I have been really sick lately. Some may remember that I recently had abdominal lymph node enlargement. My original diagnosis of sarcoid was from medastinal lymph nodes (chest). I had severe pain last ...
Headaches and prednisone wean
- By pearlsnowflake · Posted yesterday at 9:03 am
- In Living with sarcoidosis · 0 replies
- Hi all: Just wondering.....I am weaning off of prednisone 1mg. per week. I was stable at 20 mg. with just the usual sleep issues, weight gain etc........ Of course sarc symptoms starting creeping back ...
Don't You LOVE 3 am?
- By mvaughn1018 · Posted yesterday at 4:21 am
- In Living with sarcoidosis · 8 replies
- It's been awhile since I had a chance to enjoy the house at 3 am. Give me a break even the dog isn't up at this time of the morning! I woke up with my lungs closing up; feeling like someone is squeezing ...
Just saw my first specialist & thyroid question
- By Panday · Posted yesterday at 12:28 am
- In Living with sarcoidosis · 7 replies
- Hi guys, it's been about 2 months since I was told I have sarcoidosis, and I finally got in to see a specialist. He said I do have active sarcoidosis (they can tell that from ACE levels?) but it doesn't ...
Medical University of SC Sarcoid Center
- By Janenc · Posted November 22, 2009
- In Treatment decisions · 12 replies
- Has anyone been to the Sarcoid Center in Charleston? My local Dr. has referred me there for multisystemic Sarcoid....in some bones in my feet, lungs, liver, spleen. Thanks for any input...Jane ...
feet swelling and joint pain.
- By denyse · Posted November 22, 2009
- In Living with sarcoidosis · 5 replies
- Diagnosed in March by Culver at Clinic. Swollen lyph nodes went back to normal on their own. Summer felt great. Saw Carla in June. All looked clear. She said might flair up again in fall. Right now my ...
Sarcoidosis turning world upside down
- By JackieP · Posted November 22, 2009
- In Living with sarcoidosis · 4 replies
- I'm fairly new to the group . Have written twice but really enjoy reading everyones input. I was Dx in Jan after chest x-ray and two CT's plus bioposy. Now it aoppears that I most likely have had sarcoidosis ...
Thankful for Next Month and Family
- By mvaughn1018 · Posted November 22, 2009
- In Emotional support · 3 replies
- The month of November hasn't been kind to me. My Sarc has my team of doctors baffled. I found myself in the ER on a Tuesday morning earlier this month with chest pains and 'bronchospasms'. The prednisone ...
An oldie but goodie. Thought it would be a good time of year to share agai
- By IreneMarie · Posted November 22, 2009
- In Emotional support · 7 replies
- "In September 1960, I woke up one morning with six hungry babies and just 75 cents in my pocket. Their father was gone. The boys ranged from three months to seven years; their sister was two. Their Dad ...
Sorting through it all
- By Jpalmer1631 · Posted November 22, 2009
- In Living with sarcoidosis · 10 replies
- Hi my name is jay. I think I have had sarc fr 10 years though diagnosed in may 08. I have a lot of symptoms that I try to ignore, but this always being tired and lethargic sucks. I have a heart condition ...
Finally found vitamin without D
- By bmaz · Posted November 22, 2009
- In Living with sarcoidosis · 4 replies
- I've been looking for a multi-vitamin without Vitamin D for a long time. I am a bit confused about the whole vitamin D thing, so I thought it best to avoid it altogether. I found some whole food vitamins ...
Anyone been to a pain clinic?
- By silvercivic · Posted November 22, 2009
- In Treatment decisions · 10 replies
- My dr wants me to go to a pain clinic...but I'm skeptical..Exactly what do they offer you? After months of relief with Percocet.....I became allergic to every opiate. My Dr then had me try Ultram and ...
symptoms after treament
- By EBVMH · Posted November 21, 2009
- In Living with sarcoidosis · 1 reply
- Hi there, I was wondering if anyone has had a doc tell them that if their problems, ie pain, rash, joint issues, were caused by sarcoid that when the granules were treated and gone the symptoms would ...
prednisone and weight gain
- By Joe_Joe · Posted November 21, 2009
- In Living with sarcoidosis · 2 replies
- My son has neurosarcoidosis and was given large injections of steroids which have improved his brain function. He is now on a maintenance level of 45mg/day. He's gained weight. I've read that a low carb ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
