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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active
First time posting
- By AtlanticOcean · New reply 2:07 pm
- Journal · 8 replies
- I have been reading alot of the journals over the past two months and have learned so much from all you wonderful people. My story is not unlike many of you. I developed what I thought was just a cold ...
Neurosarc MRI results...I don’t know what to do...
- By KarenGSO · New reply 12:36 pm
- Discussion in Emotional support · 11 replies
- Hi everyone, I want to start off by wishing everyone an EARLY Happy Thanksgiving! I also want to mention that I have what they THINK is spinal sarc....lesions that lit up all over my MRI of my thoracic ...
Prednisolone and Fast heart beat?
Track your test results with my new String Chart
- By IreneMarie · New reply 12:20 pm
- Discussion in Symptoms · 23 replies
- My String Flow Chart for tracking blood testing results is finally ready for uploading. It takes a little bit of patience to modify this Excel spread sheet, but on a rainy day it's rather like a game ...
Don't You LOVE 3 am?
- By mvaughn1018 · New reply 12:19 pm
- Discussion in Living with sarcoidosis · 22 replies
- It's been awhile since I had a chance to enjoy the house at 3 am. Give me a break even the dog isn't up at this time of the morning! I woke up with my lungs closing up; feeling like someone is squeezing ...
Sarcoidosis of the Central Nervous System Neurosarcoidosis
Keeping a journal
- By IreneMarie · New reply 11:52 am
- Discussion in Symptoms · 1 reply
- For those of you who love your pc and have MicroSoft Windows, your Outlook program has a great calendar, directory and journal feature which is easy to print out if needed. I love the calendar since the ...
For new or returning members - get your data organized
- By IreneMarie · New reply 11:46 am
- Discussion in Symptoms · 36 replies
- Hi fellow Sarcies, Just thought I would bump this up for those interested in getting their info organized..... easy Excel print outs to get started and get more out of your health care visits. I have ...
So many thoughts
- By Lizza1 · New reply 11:39 am
- Journal · 4 replies
- I was recently diagnosed with sarcoidosis, I'm not quite sure how it happens one day I was just doing my normal running route and couldn't breath after that. That was almost 1yr ago, I have gained 30lbs ...
Prednisone Withdrawal Bad! Help!
- By JaynesInPain · New reply 11:23 am
- Discussion in Treatment decisions · 29 replies
- My docs & I have agreed that I need to get off prednisone as it is hurting more than helping. At 1st I was on 60mg wk, then 40mg for 3-1/2 mos, then 20mg mo, then 17-1/2 mo, 15wk, now 10mg. I am really ...
Headaches
- By tb0225 · New reply 11:08 am
- Discussion in Living with sarcoidosis · 4 replies
- Hello everyone, My husband has sarc and gets very bad migraines. He currently takes methotrexate......not on any other meds at this time. Does anyone else suffer from migraines.? Any suggestions on managing ...
How to choose treatment
Tired of fighting this...
- By gravyjob · New reply 10:40 am
- Journal · 14 replies
- I am so very very tired of this awful disease. I thought I had what it takes to beat this but I don't. Instead of praying that God will heal this, I now find myself praying that he'll take me in my sleep ...
Thanksgiving Wishes
- By AngieT · New reply 10:20 am
- Discussion in Family and friends · 3 replies
- I want to wish all of you a Happy Thanksgiving. I am so thankful for all of you, as well as my family and friends. You have all offered me comfort, insight, and strength, and I truly appreciate you. I ...
Lymphoma and sarcoidosis
- By kriss3497 · New reply 9:41 am
- Discussion in Emotional support · 15 replies
- I have been really sick lately. Some may remember that I recently had abdominal lymph node enlargement. My original diagnosis of sarcoid was from medastinal lymph nodes (chest). I had severe pain last ...
Headaches and prednisone wean
- By pearlsnowflake · New reply 9:37 am
- Discussion in Living with sarcoidosis · 2 replies
- Hi all: Just wondering.....I am weaning off of prednisone 1mg. per week. I was stable at 20 mg. with just the usual sleep issues, weight gain etc........ Of course sarc symptoms starting creeping back ...
Help
How do they know?
- By Shannigans · New reply 9:23 am
- Journal · 1 reply
- How do they know that the dose of methotrexrate is strong enough? How do they know that the sarcoid isnt attacking more organs in a silent attack. How do they know that the methotrexrate is working if ...
Has anyone tried this?
- By jjhand · New reply 8:56 am
- Discussion in Treatment decisions · 4 replies
- My doctor wants to start me on Embril if the insurance will approves it. She seems to think it works better than humera. Would like to know if anyone has tried Embril. Thanks John ...
Visit to Clev. Clinic - Incredible
- By Raleighnat · New reply 8:22 am
- Discussion in Treatment decisions · 23 replies
- I wanted to share my experience briefly regarding the Cleveland Clinic and the diagnosis / treatment plan for my case of sarc in the bone. Some have heard my history before, so I'll be brief: enlarged ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
