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- By joeyf · New reply 8:09 pm
- Journal · 3 replies
- i have been dealing with this sarcoidosis since march 2007. It is systemic , recently the muscles in my legs have been stiffening and soon as i get out of bed and put weight on them ( i am 47 yrs old ...
- By shadowtoonces · New reply 8:05 pm
- Journal · 11 replies
- Hi Friends, I'm sure some of you are getting to know my sick sense of humor as I getting to know some of you. Now I know that some might not find this funny but some of you will and will really go off ...
- By ostrichlegs · New reply 7:40 pm
- Discussion in Living with sarcoidosis · 6 replies
- this past week i finally went to national jewish hospital in denver, after almost 5 years of searching and being called a phsyc, they found the sarc all over, more extensive in the lungs than anyone thought ...
- By momof10 · New reply 7:39 pm
- Discussion in Living with sarcoidosis · 15 replies
- I haven't posted on here in a long while but I do read daily and take the info I can to help me live with this disease. I also pray daily for all those afflicted. My question is this. Do any of you suffer ...
- By Krissy · Posted 6:29 pm
- Journal · 0 replies
- Every time I sleep or even doze for a few minutes, the second that I wake up I have this unpleasant feeling all through my body. It is tingling, crawling, pain, fatigue & feeling of illness. This morning ...
- By priscurl · New reply 6:18 pm
- Discussion in Symptoms · 4 replies
- I have read a lot about sarcoidosis over the years and as a sarcoidosis sufferer, a lot of the statistics make no sense to me. From my point of view, these statistics have always been a barrier to getting ...
- By missymom32 · New reply 5:54 pm
- Discussion in Symptoms · 10 replies
- My husband has been having high blood pressure. The doctor called and said his cholesterol is up and also his calcium is up that he wants to see him monday morning. Has anyone experienced this ...
- By jmaze · New reply 3:27 pm
- Discussion in Triggers · 33 replies
- Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...
- By nclynnk · New reply 2:31 pm
- Discussion in Living with sarcoidosis · 1 reply
- Hey all...this is my 3rd PET scan in a year...is there anything i should be concerned about?? Findings: No worrisome areas of hypermetabolism are aidntified. Presumed normal variant type distribution ...
- By cheri72 · New reply 2:15 pm
- Journal · 6 replies
- I get these nasty skin lesions on my chest, neck, and upper arms. They look like big red c shaped circle that usually does not make a complete circle, all of the skin is slightly raised but in the middle ...
- By sarcoidbuddies · New reply 12:18 pm
- Discussion in Family and friends · 5 replies
- TONIGHT HAS BEEN AN AWFUL NIGHT FIRST I TRIED CALLINGMY MOM SO WHEN MY BROTHER CALLED AND SAID HE COULD"NT GET HER TO T THEN TOLD WELL SHE"S IN THERE HURT AND SHE COILD BE ON THE FLOOR. SO I HAD TO DRIVE ...
- By Walter · New reply 10:27 am
- Journal · 35 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
- By minheard · New reply 7:46 am
- Discussion in Help desk · 5 replies
- I AM TRYING TO FIND OUT IF ANY MAN HAS HAD PROBLEMS WITH HIS PROSTATE DUE TO SARCOID. MY UNCLE HAS HAD 5 BIOPSIES AND DR STILL CAN'T SAY CANCER. IF YOU KNOW OF ANY THING OR ANYONE PLEASE LET ME KNOW ...
- By Linds25 · New reply 12:12 am
- Discussion in Triggers · 94 replies
- Just a thought and will need some help here....but shall we start a train to see if we can connect some dots as to why we have what we have. Lets start with location and than go from there. Linds25-Grew ...
- By clcsj · New reply yesterday at 10:11 pm
- Discussion in Symptoms · 13 replies
- Did anyone see the House episode that aired on Tuesday November 25th called Last Resort. Here is the recap of the show. While working the busy clinic, Foreman suggests to Thirteen that she participate ...
- By mboater1 · New reply yesterday at 8:51 pm
- Discussion in Treatment decisions · 21 replies
- Hi, I would like to chat with local Michigan People Preferred Detroit area. if possible not necessary, to compare issues, symptoms, treatments and good Knowledable doctors. As it seems that my doctor ...
- By sherryberry · New reply yesterday at 5:32 pm
- Discussion in Symptoms · 2 replies
- I stopped smoking 5 weeks ago. I am on methotrexate since last April. The front and back of my lungs have not hurt me for almost the past four months. BUT, now they have been for the past two days. Its ...
- By prairieannie · New reply yesterday at 5:03 pm
- Discussion in Symptoms · 19 replies
- I know others have mentioned this as a symptom.. or maybe I was just imagining that!! LOL, but DAMN! This is an ongoing thing for me, but today it was bad. My skin feels like I have a horrible sunburn ...
- By exultant · New reply yesterday at 3:07 pm
- Discussion in Living with sarcoidosis · 9 replies
- I am planning to make a major life change - going to graduate school. This change will most likely involve a move to a new location in N. America or maybe even Europe. I currently live in N. Texas (USA ...
- By nygirl · New reply yesterday at 2:56 pm
- Discussion in Living with sarcoidosis · 7 replies
- Can anyone please help...I just got my spinal tap results and it diagnoses me with MS. Is this possible? I have Graves, Sarcoid and now MS...Is there anyone else in the same boat? Thanks Helen ...
