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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New
Thank you
- By coolbreeze0121 · Posted 12:20 pm
- Journal · 0 replies
- I want to first say thank you to all the people who have sent me a welcome. After doing a little reading I thought I would post a little more about what is going on with me. As a reminder I have just ...
NY/NJ/CT area Support Group
- By kimmarc · Posted 9:15 am
- Discussion in Emotional support · 0 replies
- Hi All, I spoke with the liason at Mt. Sinai. They have a support group for Sarc there and you do not have to be a patient to go to the group. The next meeting is Saturday, December 5th @11am. It is located ...
diet soda/aspartame and sarc?
- By wannabecate · Posted yesterday at 10:17 pm
- Discussion in Triggers · 9 replies
- hi! i'm new to the board and i have a question about my husband. he was diagnosed with sarcoidosis about 14 months ago, and like everyone has his ups and downs. one thing that i was wondering is if anyone ...
GOOD NEWS BAD NEWS PULMONARY CHECK UP
- By Blkjewelz8960 · Posted yesterday at 5:15 pm
- Journal · 13 replies
- Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...
New
- By coolbreeze0121 · Posted yesterday at 3:26 pm
- Journal · 9 replies
- Hello my name is Dawn and today (Nov 19 2009) I found out I have sarcoidosis. I'm scared and not sure what might lie ahead for me ...
a grateful day
- By jon-with-no-h · Posted yesterday at 2:32 pm
- Discussion in Emotional support · 11 replies
- To my fellow sarckies... Today I humble and gratefully celebrate four years of sobriety thanks to the simply program of AA. One day at a time. jon ...
sarcoid & osteoporosis
- By silcyc · Posted yesterday at 2:04 pm
- Discussion in Treatment decisions · 0 replies
- I was diagnosed about a year ago with sarcoid and have learned a lot especially from this site. I'm a new member so am not sure if this has been previously addressed. I know not to take vit D or calcium ...
smoking cigerettes with sarco......
- By tatiana1420 · Posted yesterday at 1:50 pm
- Discussion in Emotional support · 3 replies
- hello everyone i would like to know does nayone with the sarcoid smoke cigerettes ? i quit when i first found out about the sarcco in july but have picked it back up nowdue to my depresstion i know it ...
Small Airway sarc
- By RedBeard · Posted yesterday at 1:01 pm
- Discussion in Treatment decisions · 1 reply
- I have been diagnosed with sarc in the small ariways of my lungs. I have been treated so far with high doses of predisone & azathioprine. No improvement. My doctor has informed me that the sarc I have ...
Calling ALL PEEPS from Greensboro, NC!!
- By KarenGSO · Posted yesterday at 10:35 am
- Discussion in Emotional support · 2 replies
- I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...
NEED INSURANCE
- By bashajaye · Posted yesterday at 10:26 am
- Discussion in Living with sarcoidosis · 2 replies
- I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...
NEED INSURANCE
- By bashajaye · Posted yesterday at 10:26 am
- Discussion in Treatment decisions · 0 replies
- I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...
Meetin up Locally after the holidays
- By TCALL · Posted yesterday at 10:20 am
- Discussion in Living with sarcoidosis · 7 replies
- A thought crossed my mind as well as others have had the same thought. It would be nice if there was a local meeting of some of us on this site to sorta have like a meet and greet! some where its permitting ...
Day 5 on the Pred
- By SPM1617 · Posted yesterday at 9:35 am
- Journal · 3 replies
- I have no idea where to start. The meds so far haven't been too bad - I'm starting to learn the rhythm of how my body reacts to them and at what times. In the morning, I still feel sick - heavy weight ...
Moody blues
- By TCALL · Posted yesterday at 9:30 am
- Journal · 4 replies
- Well its been a roller coaster for me in these last few months. Stress at my job, My home with my 16 year Daughter and I am so tired i can't do much. My lung capacity has decreased 3% and i'm still fighting ...
H1N1 Vaccine
- By bashajaye · Posted yesterday at 9:03 am
- Discussion in Living with sarcoidosis · 7 replies
- I am trying to decide if I want to take a swine flu shot. I've always taken the regular flu shot. What do you guys think ...
Remicade
- By B-faithful · Posted November 18, 2009
- Discussion in Treatment decisions · 3 replies
- Hello everyone, my insurance approved to pay for the Remicade. Im suppose to start the treatment in a couple of weeks. Im a little concern about the side effects, but 4 of my doctors stated the side effects ...
Splenectomy
- By tishee · Posted November 18, 2009
- Discussion in Treatment decisions · 9 replies
- After feeling the way I have for so many months, I decided to excersize my option for having my spleen removed next week. I have my sarcoid primarily in my spleen. Years ago I had mono, and the symptoms ...
Sarcoidosis Awareness Group of Baton Rouge
- By LadyBugDucre · Posted November 18, 2009
- Discussion in Emotional support · 2 replies
- Hello All, Tonight was my very first time attending a support group meeting. It literally warmed my heart to know that I have allies in this journey. Living with this disease is not easy but God knows ...
Hello. My name is Moe, and I have sarcoidosis
- By MoeLung · Posted November 18, 2009
- Discussion in Living with sarcoidosis · 15 replies
- I'm new here and just joined. I was diagnosed this past July, after more than a year of dry cough and SOB (I love that acronym ... either 'sons of bitches' or 'shortness of breath'). During the year prior ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
