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Went to the ER today......fun.... ;P
- By Brandie228 · Posted 8:12 pm
- Journal · 0 replies
- My shoulders, hips, ankles, and back have been aching fiercely today. Apparently my left shoulder wanted more attention than the rest because it decided to act up really badly. I was sitting at my computer ...
Chamberlain Procedure ...years later??
- By Mchristianson · Posted 6:01 pm
- Discussion in Help desk · 0 replies
- Hello. I was wondering if anyone else has ever had this happen to them? I had the Chamberlain Procedure done 2/2008 and was diagnosed with sarc at the time. Now every time I cough my chest wall inflates ...
Chest CT Images
- By mvaughn1018 · Posted 4:36 pm
- Discussion in Treatment decisions · 1 reply
- I had another chest ct scan with and without contrast. I have the images and looked at them. Of course, my education is in accounting and not medicine; (I have no idea what I'm looking at). I was looking ...
Contacts and uveiitis?
- By pearlsnowflake · Posted 1:34 pm
- Discussion in Living with sarcoidosis · 0 replies
- Just wondering if anyone with uveitis can wear contacts. One eye doc tells me forget about it those days are over and another has told me it is not a problem when there is no inflammation present in the ...
Anyone ever go into remission a 2nd time???
- By teeteeme · Posted 9:28 am
- Discussion in Living with sarcoidosis · 3 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
My heart died........
- By Brandie228 · Posted 3:43 am
- Journal · 12 replies
- So, for a bit of a flashback, I'm going back to the summer that I turned 16. It started something like this; For my 16 birthday I received a phone call from my old foster mother. She wished me happy birthday ...
cold and hot feelings
- By HopeNicole · Posted yesterday at 10:53 pm
- Discussion in Living with sarcoidosis · 3 replies
- My hands stay so cold! Esprcially at nite. I just asked my son to look for me a pair of gloves to wear while I type. My feet are cold alot to but not as much as the hands. Also sometimes wen I lay down ...
prednisone and acne
- By coleburrell · Posted yesterday at 6:44 pm
- Journal · 3 replies
- i have been taking prednisone for my sarcoidosis for 3 weeks. and my back and arms are severly broke out in what seems to be acne bumps. has anyone else have this happen and if so is it normal? or is ...
Sarkie sweats confirmed
Not Sure What to do. Thoughts and Opinions Please!
- By ashphalt · Posted yesterday at 2:13 pm
- Discussion in Living with sarcoidosis · 8 replies
- I went to see my doctor this morning due to a sore throat and plugged nose. He checked it out and said it is not H1N1. Don't have the symptoms but have some from my sarc. I asked him about getting the ...
Fatigue
A Legacy of Love
- By IreneMarie · Posted yesterday at 11:47 am
- Discussion in Living with sarcoidosis · 0 replies
- http://www.wgrz.com/news/local/story.asp x?storyid=71668&provider=gnews An article about a family dealing with young son's Sarc diagnosis and sad outcome. Together we ARE better ...
please help a new comer
- By Akhilluvs · Posted yesterday at 11:14 am
- Discussion in Living with sarcoidosis · 7 replies
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
Positive ACE blood test - High Levels - Sarcoid?
- By gkygrl · Posted yesterday at 10:27 am
- Discussion in Living with sarcoidosis · 3 replies
- Hi, my name is Diana and I am brand new to this community and very active in MS communities with a blog and active on "Patients Like Me". I am kind of an autoimmune marvel -- I bet many of you can relate ...
uveitis??
pains
- By feliz · Posted yesterday at 1:36 am
- Journal · 4 replies
- For the last few days my pains have getting worse, especially my shoulders and lower back, I have a burning pain on my back, shoulders , right hip and leg, my chest feels like someone is sitting on it ...
UCSF Interstitial Lung Disease Group
- By BeccaSF · Posted November 5, 2009
- Journal · 2 replies
- Given my recent "Massive Pulmonary Event" as they described it which landed me in the Hospital for a week has a silver lining. I am now getting to see the UCSF Interstitial Lung Disease Group http://www.ucsfhealth.org/adult/medical ...
getting prepped
- By leegal · Posted November 5, 2009
- Journal · 2 replies
- so i'v been told that my insurance company has approved for me to get humira...i'm scared of this medicine because it's an injection. has anyone ever been put on humira? before i can get this medicine..i ...
remicade
- By Cakebaker · Posted November 5, 2009
- Discussion in Treatment decisions · 9 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
The next part.....
- By Brandie228 · Posted November 5, 2009
- Journal · 1 reply
- I forgot to mention that around the time I found out that I would need an arthroscopy, I also found out that I had Morton's Neuroma. Kind of like Sarcoidosis, you think that the doctor mis-spoke when ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
