New

Belly Pains..

Star51145
  • By Star51145 · Posted 7:34 pm
  • Journal · 0 replies
  • I know this is pretty random.. I recently had two large size cysts burst and up until then I had a reason for the stomach pains, throwing up and constant nausea. Now almost two weeks later I still have ...

mri vs cat scan?

lngsarc
  • By lngsarc · Posted 6:07 pm
  • Journal · 0 replies
  • I was wondering if an mri is better for diagnosing neurosarc. I had a cat scan which came out fine they said but and mri was suggested first but the hospital didnt have one. My symptoms are worse and ...

Do sarc and Insomnia go hand in hand?

sooboy
  • By sooboy · Posted 5:43 pm
  • Journal · 1 reply
  • Hey Gang! I am still trying to understand a lot about this sarc stuff and putting symptoms together. I understand that being tired is a fairly common symptom and I do sometimes have that often. However ...

Quick Survey about Sarcoid and Bacteria

jmaze
  • By jmaze · Posted 2:26 pm
  • Discussion in Triggers · 3 replies
  • Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...

Stopped all meds 1 week ago......

JenL
  • By JenL · Posted 12:39 pm
  • Journal · 5 replies
  • Well i have had enough!!!! On Mtx and got real sick (injecting 20mg per week) oh the stomach aches!! On pred 20mg for about 6 month (only gained about 50 pounds) I saw a new rhuemy who told me sarc can ...

Question on : sarcoidosis and osteopathy ?

Aigle
  • By Aigle · Posted 10:20 am
  • Discussion in Treatment decisions · 0 replies
  • Hello everyone, I have a question which I cannot answer and because many people talk about that. When sarcoidosis is very advanced especially pain (neurosarco) and others, is it that osteopathy can help ...

Good Morning Everyone.

I_Have_This_Disease2
  • By I_Have_This_Disease2 · Posted 6:56 am
  • Journal · 2 replies
  • I had to come to you and let you know that I am still here in the hospital and I am hoping to go home soon but I don't know when, Well I will have to say that last nite I rest well I did become a little ...

New Symptom

LadyForce
  • By LadyForce · Posted 6:56 am
  • Journal · 0 replies
  • Well, I am not sure where this one is coming from, but.... I have recently come down with a new symptom.. of what, I am not so sure. My ankles hurt soooo bad.... It feels like I have two sprained ankles ...

Sarcoidosis and Antibiotics

BobbieM
  • By BobbieM · Posted yesterday at 11:55 pm
  • Discussion in Triggers · 4 replies
  • Hello All, I have been feeling relatively well for the last couple of weeks, very slowly, but better, since all of the procedures appear to be finished for the time being. I was feeling really brave ...

Start Local group near Binghamton, NY

twilight
  • By twilight · Posted yesterday at 1:00 am
  • Journal · 1 reply
  • I would like to start a sarcoid discussion group in my area. If you live within a 15 mile radius of me and are interested in pursuing this idea please let me know. I don't know a lot about starting this ...

Drugs get stronger warnings from FDA-Enbrel, Humira, Remicade, and Cimzia

Breeree
  • By Breeree · Posted September 4, 2008
  • Discussion in Treatment decisions · 2 replies
  • Just wanted to pass this information along from WebMD, because I know for me and alot of us have rheumatoid arthritis due to the Sarcoid. I do not take any of this medicines but maybe some here do ...

Looking for Local Michigan People with SARCOIDOSIS

mboater1
  • By mboater1 · Posted September 4, 2008
  • Discussion in Treatment decisions · 4 replies
  • Hi, I would like to chat with local Michigan People Preferred Detroit area. if possible not necessary, to compare issues, symptoms, treatments and good Knowledable doctors. As it seems that my doctor ...

bells palsy

lngsarc
  • By lngsarc · Posted September 4, 2008
  • Journal · 5 replies
  • It seems im not the onl one whose experienced bells palsy. I didnt even know it was a possibility until i just got it. Lovely. The right side of my face started drooping. First with my eye and i had floaters ...

That Damn Prednisone!

docrock
  • By docrock · Posted September 4, 2008
  • Journal · 1 reply
  • Has anyone ever ended up needing blood after weaning down from Prednisone? Yesterday I needed 2 units of blood due to a low hematocrit ( 28.2 ) and a low hemoglobin ( 7.2 ). Besides Sarc, I also have ...

National Sarc Awareness Day & WRAL TV in Raleigh, NC

ncwoolgatherer
  • By ncwoolgatherer · Posted September 4, 2008
  • Journal · 0 replies
  • I have e-mailed Dr. Mask and requested he do a piece near Oct 4 since it is National Sarc Awareness Day Especially, in light of Bernie Mac's recent death and the fact that "sarcoidosis" has been mentioned ...

Bursitis

micheleb
  • By micheleb · Posted September 4, 2008
  • Discussion in Symptoms · 7 replies
  • Sorry, but I really must complain here for a minute. I have had nasty bursitis in both my hips for a good three years now. It started when I had a severe sprain in my ankle which developed into RSD, reflex ...

Flying with Neurosarcoidosis

nyoung
  • By nyoung · Posted September 4, 2008
  • Discussion in Triggers · 4 replies
  • Has anyone experienced a flare up or any type of reaction after flying? I took a flight to Florida last week and for the next two days that I was there I experienced rashes on my ankles and the most painful ...

Fungal infection question

blondinette_27
  • By blondinette_27 · Posted September 4, 2008
  • Discussion in Symptoms · 6 replies
  • Hi, Did anyone taking MTX and prednisone ever get fungal infections and were there any complications? I have a 4 year old daughter with early-onset sarcoidosis. Her 11yr old stepsister visits every 2nd ...

Which way to turn

MaryJ
  • By MaryJ · Posted September 3, 2008
  • Journal · 4 replies
  • When I first went to a doctor about the changes and the problems I was starting to have, he gave me heartburn pills and told me that I had heartburn, which was the cause of my shortness of breath and ...

"Indicitive of Sarcoid" Good News.....huh?

CathyK
  • By CathyK · Posted September 3, 2008
  • Journal · 5 replies
  • The nurse from my new cardiology doctor called last night. My ecg and holter monitor results were normal. But the stress test showed "abnormal thallium uptake indicitive of sarcoid"..... The nurse said ...

Search

Find information and discussion about health topics in 233,725 posts by members like yourself. Learn more...

Join

Join safe, secure groups sponsored by trusted organizations that care about your health. Learn more...

Connect

Connect with 62,181 members and make friends who share your interests, learn about conditions and treatments, find support and more. Learn more...

You

Send your feedback to Inspire

About

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.