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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active journals
Best time to take Meds?
- By MurphyinVT · New reply 12:49 am
- 8 replies
- I've had Sarc for 4-5 years. Biggest problem I have is with breathing difficulties and what I describe as feeling like having the flu all the time. Lack of energy and a general crappy feeling are the ...
GOOD NEWS BAD NEWS PULMONARY CHECK UP
- By Blkjewelz8960 · New reply 12:16 am
- 14 replies
- Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...
AGAIN?!?!?!?!
- By SarCar · Posted yesterday at 10:30 pm
- 0 replies
- Could this be my first official flare up since my Diagnosis??? (even though I know I have probably had Sarcoid for years) Well my last post was on July 17, 2009 and I was saying I was beginning to feel ...
What should I do?
- By SarCar · New reply yesterday at 10:12 pm
- 6 replies
- Hey everyone. It's been about 7 months since my last lung appt. for Sarcoidosis. My Sarcoid has been inactive for about a year and a couple months. However, in the last few weeks, I have found my breathing ...
First time posting
- By AtlanticOcean · Posted yesterday at 9:15 pm
- 0 replies
- I have been reading alot of the journals over the past two months and have learned so much from all you wonderful people. My story is not unlike many of you. I developed what I thought was just a cold ...
Moody blues
- By TCALL · New reply yesterday at 6:36 pm
- 4 replies
- Well its been a roller coaster for me in these last few months. Stress at my job, My home with my 16 year Daughter and I am so tired i can't do much. My lung capacity has decreased 3% and i'm still fighting ...
SO excited to share what I have found!
- By pwrsrg77 · New reply yesterday at 5:53 pm
- 41 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Sarcoidosis - chicken or egg?
- By pheonixtoo · New reply yesterday at 4:35 pm
- 23 replies
- I've had sarcoidosis for many years and mercifully not as badly as many of you that I have read about. I have found something that has worked for me (I am still improving) and am desperate to see if it ...
Water or Coke? (or rather any carbonated drink)
- By meriterry · New reply yesterday at 12:39 pm
- 11 replies
- This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...
Thank you
- By coolbreeze0121 · Posted yesterday at 12:20 pm
- 0 replies
- I want to first say thank you to all the people who have sent me a welcome. After doing a little reading I thought I would post a little more about what is going on with me. As a reminder I have just ...
can ciggarets make sarc symptoms worser
- By MrsUyarlar · New reply yesterday at 10:06 am
- 8 replies
- im tryin to stop, its just became so addictive again and now i my back hurts like out of this world and still feel very tired at times ...
New
- By coolbreeze0121 · New reply yesterday at 8:58 am
- 9 replies
- Hello my name is Dawn and today (Nov 19 2009) I found out I have sarcoidosis. I'm scared and not sure what might lie ahead for me ...
Day 5 on the Pred
- By SPM1617 · New reply November 19, 2009
- 3 replies
- I have no idea where to start. The meds so far haven't been too bad - I'm starting to learn the rhythm of how my body reacts to them and at what times. In the morning, I still feel sick - heavy weight ...
When will it get better?
- By mommyof31 · New reply November 19, 2009
- 8 replies
- I have not visited this site in awhile now. I have had a very hard year. My parents moved in with me and my husband about 3 years ago. My mother was very sick with about every disease you could have ...
Just joined
- By MurphyinVT · New reply November 19, 2009
- 5 replies
- Just joined. Feeling torn. I'm happy to find other people out there dealing with similar struggles, and at the same time I am distraught to see so many people out there with the same disease. Also feel ...
Mtx is working
- By survivor58 · New reply November 19, 2009
- 8 replies
- Praise report! I saw my pulm last week and did pft's. They had all improved significantly. I have been on mtx for 8 weeks now and it seems to be working. I started on pred (40 mg/day) 4 months ago and ...
I'm not steppin out
- By escalantedreamer · New reply November 19, 2009
- 7 replies
- I managed to get myself down stairs to do laundry ( something I can still do) and my wife started calling me because she was home from work. because she couldnt hear me and I could hear her I had to stomp ...
TO CLIMB OR NOT TO CLIMB
- By Blkjewelz8960 · New reply November 19, 2009
- 21 replies
- Ok, last weekend I stored up enough energy to go to a friends housewarming. Was really looking forward to it because we went to high school together and had only seen each other just recently at a funeral ...
What to do?
- By showme261 · New reply November 18, 2009
- 5 replies
- I have been with my doctor. They want to find out what's wrong with me but I already know that. I am having chills, no fever and that's sarcoid. So my doctor just told me that she was inexperienced and ...
7 December 2009
- By Soosie · New reply November 18, 2009
- 5 replies
- I haven't been on this site for some time and I apologise. Just because I have been feeling well does not mean I shouldn't take notice of how others are. As you know I stopped the steroids on 30 June ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
