Active journals

Attacks closer together

LonesomePeg
  • By LonesomePeg · Posted 12:21 am
  • 0 replies
  • Hi Everyone, it's been awhile since I've posted although I've tried to keep up with Inspire. This computer has a mind of its own, sometimes I wonder if it too has sarc! The last 5 weeks have been a living ...

alone

Shaun43
  • By Shaun43 · New reply yesterday at 7:49 pm
  • 8 replies
  • Today I learned that I only have 2 true people in my life that truly support me. My heavenly father and my mom. I have been having a really tough few days and my spirits have been low. I have prayed and ...

Chicago support groups

PreciousPow
  • By PreciousPow · New reply yesterday at 6:57 pm
  • 3 replies
  • Can anyone help me with find support groups in Chicago ...

A Doctor's View of Patients with Chronic Disease (an open letter)

coonhound
  • By coonhound · New reply yesterday at 11:25 am
  • 26 replies
  • I stumbled across this open letter to patients w/ chronic disease. So many of our posts are about doctors (good/bad/indifferent) I felt this was quite releveant and may help one to understand where the ...

Good morning

Honey7
  • By Honey7 · Posted yesterday at 10:43 am
  • 0 replies
  • No Jinx, I'm feeling good this morning!! Praying this body keeps feeling like this ...

Tremors of Hands/Arm

laurietrav42
  • By laurietrav42 · New reply yesterday at 9:01 am
  • 38 replies
  • Hello, I'm posting an entry to see if anyone out there has been experiencing intermittent tremors of the hands/forearm? I've been experiencing the tremors off and on for approximately 6 years now, with ...

"Put your LIFE up this is a HOLD UP."

MZBIGGREDD
  • By MZBIGGREDD · New reply June 18, 2013
  • 10 replies
  • "Put your LIFE up this is a HOLD UP.....What Do You Do When Disease Illness & Chronic Pain Robs You Of Your Identity?" "Pain, pain, go away, please I beg you don't come back another day!" One day I left ...

Pain and Depression go Hand in Hand

chaplainstevens
  • By chaplainstevens · New reply June 18, 2013
  • 16 replies
  • I have lost two good paying jobs because of my Sarcoidosis; I also had to care for my dying mother that had bone cancer, renal failure, and Dementia. Needless to say all of these things affected me and ...

Newly diagnose

Ashmee612
  • By Ashmee612 · New reply June 18, 2013
  • 13 replies
  • I am so thankful to have found this community.. I was formally diagnosed on last Thursday, 6-12-13. I had a CT scan of my chest on Mother's Day for something completely (or so I thought) unrelated. It ...

Good day

Honey7
  • By Honey7 · Posted June 18, 2013
  • 0 replies
  • I had a decent day, chest sore is all out doors. May have been the sun, Left Lymph node is still swollen. The soreness, pain oh goodness!! I just work around it. Then I pamper me time. I get so tired ...

The Power of the Press

Janska
  • By Janska · New reply June 18, 2013
  • 7 replies
  • At a time of pretty devastating health issues I have had so much joy this week. I am helping a local family in their fundraising efforts to create a National Sarcoidosis Foundation in Australia. It's ...

Five million

Brian
  • By Brian · New reply June 17, 2013
  • 243 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

London 2 Brighton

Wilmaaaa_
  • By Wilmaaaa_ · New reply June 17, 2013
  • 3 replies
  • Completed the London 2 Brighton bike ride yesterday 54 miles/87km. It hurt, lots of cramp etc but a wonderful feeling when we saw the pier, the sea and could smell the fish and chips. We also raised over ...

Happy Father's Day!!

Honey7
  • By Honey7 · Posted June 16, 2013
  • 0 replies
  • Hello Fathers, Although, today is your day. My wonderful man took me to Brunch, and I've never been taken, or thought of for Father's Day. Thank you Sean ,I love you for all your support. What a great ...

Thank God!!

Honey7
  • By Honey7 · New reply June 16, 2013
  • 1 reply
  • I've been in a bad flare up for a while, so I did go to the doc, but since this doctor thinks he know all smh.. I called my doctor in California to assist me. I worked on me rest, stress free, ate light ...

What steered my symptoms?

Sarcsurvivormom
  • By Sarcsurvivormom · Posted June 16, 2013
  • 0 replies
  • I experienced a spider bite in 2005 that started to put me in anaphylactic shock, so was rushed to the hospital and was given high dose steroids for first time in my life. Home was then twice fumigated ...

Eyes

Marie-B-55
  • By Marie-B-55 · New reply June 16, 2013
  • 5 replies
  • I have in my both eyes. I don't needed treatment ...

Staying home to rest

MommaWesty
  • By MommaWesty · New reply June 16, 2013
  • 4 replies
  • Decided after yesterday's symptoms and events to stay home to rest. I have never willingly stayed home from work. Talked with ENT Dr and he said to stay home and relax until I see Dr Baughman tomorrow ...

Brain fog - Is this real?

MommaWesty
  • By MommaWesty · New reply June 16, 2013
  • 9 replies
  • As I type this I am laughing at myself. Will I be able to type what I mean? I am having a difficult time remembering stuff. Also, a hard time articulating what i want to say. It started around a month ...

What happened???

Honey7
  • By Honey7 · New reply June 15, 2013
  • 3 replies
  • Hi, I was young, no health issues. Then all of a sudden I was diagnose with Fibromyalgia, then Sarcoidosis in 2004, then Rheumatoid from a Bacteria? I've been on enough meds, so now I'm on Humera, Methrotraxte ...

Things you can do

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Discussion topics

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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