Active journals
- By Krissy · New reply 1:34 am
- 2 replies
- Every time I sleep or even doze for a few minutes, the second that I wake up I have this unpleasant feeling all through my body. It is tingling, crawling, pain, fatigue & feeling of illness. This morning ...
- By brian_josephs_mommy · Posted yesterday at 11:29 pm
- 0 replies
- Brian started his Solu-Medrol (Methylprednisolone) intravenously and he has not responded to that yet. He also caught a cold so I'm not sure if that has something to do with it. This is a 3 month course ...
- By shadowtoonces · New reply yesterday at 11:07 pm
- 13 replies
- Hi Friends, I'm sure some of you are getting to know my sick sense of humor as I getting to know some of you. Now I know that some might not find this funny but some of you will and will really go off ...
- By joeyf · New reply yesterday at 8:09 pm
- 3 replies
- i have been dealing with this sarcoidosis since march 2007. It is systemic , recently the muscles in my legs have been stiffening and soon as i get out of bed and put weight on them ( i am 47 yrs old ...
- By cheri72 · New reply yesterday at 2:15 pm
- 6 replies
- I get these nasty skin lesions on my chest, neck, and upper arms. They look like big red c shaped circle that usually does not make a complete circle, all of the skin is slightly raised but in the middle ...
- By Walter · New reply yesterday at 10:27 am
- 35 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
- By Brian · New reply November 28, 2008
- 134 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By taskew · New reply November 28, 2008
- 24 replies
- I had been in constant pain for the past 6 months straight. I have completed my prednisone and promised myself not to go back on that horrible drug. While it stopped the pain the side affects...including ...
- By muslimahpr · New reply November 27, 2008
- 8 replies
- Today I have an appoitment with my pulmonologist, which usually sits at the pc in his office, dismisses everything I say and tell me that I am fine. Because of the arthritic pain in several parts of my ...
- By shadowtoonces · New reply November 27, 2008
- 9 replies
- Hi everyone, I use music when it seems like I can't make any sense out of anything. I went to a Green Day concert a few years back and I will never forget the whole crowd singing "Time of Your Life" with ...
- By cheri72 · New reply November 26, 2008
- 4 replies
- I have always had good eyesight, last years eye visit showed no sarc in my eyes. I have a yearly checkup in dec. I have not been having any problems with my eyes to speak of, my eyes get real blurry at ...
- By Paradox · New reply November 26, 2008
- 22 replies
- Most of this was originally under a different heading, but I have been asked by multiple people to give it it's own journal - so here it is with the latest addition included. *************** Ok, here’s ...
- By choch · New reply November 26, 2008
- 2 replies
- I'm looking for a doctor in San Antonio who specializes in sarcoidosis ...
- By byrd1beverly · New reply November 25, 2008
- 2 replies
- The doctor's name is Christopher Spradley and he practices at Scott&White in Temple,Texas. Just north of Austin about 50 miles. Sarcoid is his specialty in the lungs ...
- By debmurphy · New reply November 25, 2008
- 2 replies
- i have recently had a lung biopsy after ct showed granulomas in lymph nodes in chest and abdomen also a large polyp in my nasal passage meant camera had to go down my troath . i now find that my stomach ...
- By ShazNZ · New reply November 24, 2008
- 16 replies
- Help... My respiratory specialist wants me to take calcium and Vit D supplements as I am showing early signs of osteoporosis... but, my blood/calcium level is elevated... he did seem to have a reasonable ...
- By byrd1beverly · Posted November 23, 2008
- 0 replies
- Dr. Christopher Spradley at Scott&White. He is into lung function. Sarcoidosis is his specialty ...
- By Brian · New reply November 23, 2008
- 24 replies
- I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
- By PhinnyMing · New reply November 22, 2008
- 27 replies
- Howdy all- Today I wanted to write something a little more positive- Since reading many entries, the biggest complaint I hear from our little group of Granuloma-Heads... PREDNISONE. For some of you who ...
- By fishmom · New reply November 21, 2008
- 1 reply
- Hi, in reply to your request for stats. I am a female 59 years old. (add 10 for Sarc) Born in Los Angeles, and moved to Palm Springs, Ca when I was 7. I lived there until I was 45 then moved to Arizona ...
