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Welcome to Inspire!
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Journals
Doctors all Day tomorrow
- By NVRTHGTTHS · Posted October 14, 2009
- 2 replies
- Well, tomorrow, October 15th, I have 3 doctors appointments. The one I'm not looking forward to the most is the Radio/Oncologist. He is going to talk to me about radiation of the neck, it hasn't been ...
Feeling sorry for myself...
- By Amorettsgram · Posted October 14, 2009
- 13 replies
- About 6 months ago I decided to give in and apply for disability, I was told by my health care provider that I couldn't work and probably would never be able to go back to work full time. I am a photographer ...
summer of '09
- By sloper · Posted October 14, 2009
- 2 replies
- I spent my summer having 7 weeks of chemo and radiation for cancer in my left tonsil, tongue and throat. 5 weeks after my last treatment I had surgery to remove all of the lymph nodes on the left side ...
News from my hematologist
- By Todd_O · Posted October 13, 2009
- 2 replies
- Saw him today and had my first blood count since the hospitalization. My platelet count was 95k in the hospital, and 114k today. He says it's still low, and he wants to see if it goes any lower when my ...
"Get This One" Got denied life insurance becasue Sarcodosis is too new!
- By MrsUyarlar · Posted October 13, 2009
- 14 replies
- All i want is to secure my son's future because of my illness! The insurance companies wanna give me a high premium or a flat out denial! How sick is that, i was literally sick to my stomach! The Life ...
new to this site
- By saskgurl3100 · Posted October 13, 2009
- 8 replies
- hi there, i was diagnosed 7 years ago with sarcoidosis when i was 5 months pregnant. I had a migraine headache for a month straight, crying and puking, it was horrible. Then i went blind for a month and ...
scholarships?
- By gingerv · Posted October 13, 2009
- 2 replies
- does anyone know of a sarcoid scholarship for children of sarcoid patients. I'm afraid I passed my auto immune lymph involved sarcoid gene to my daughter who just went through Cemo /radiation tx for lymphoma ...
sarcoidosis in the skin?
- By aaronsake · Posted October 13, 2009
- 14 replies
- I believe my so has sarcoid in the bones and its mimicking severe rheumatoid arthritis. Now i see many different rashes, white patches on the face, small tiny blisters over the eye lids that go away as ...
Weaning off steroids
- By cherylone1 · Posted October 13, 2009
- 0 replies
- I have been on steroids for a while. I started with 40 mg. for 3 weeks.Then 20 for three weeks. I started 10 mg.for 3 weeks. Into one week I was hospitalized for Fluid on the lungs and pnemonia. I was ...
Passed my interrogation with flying colors!
- By Todd_O · Posted October 12, 2009
- 15 replies
- I had my first ICD interrogation today...passed with flying colors! Atria are using only 0.6% power, and the ventricles are at 9.4%, so I'm only using 10% total power right now, which is down from when ...
I am going live my life!
- By Audreyfwb · Posted October 12, 2009
- 6 replies
- I will not allow this monster aka sarcoidosis to rob me of the pleasure of raising my children. It has been so long since I just played with my children. I made up my mind to push as much as possible ...
When it all falls apart
- By Tawney · Posted October 12, 2009
- 20 replies
- This should start with a warning that it will most likely be full of me feeling sorry for myself but I'm hoping the exercise of trying to put it into words will prove cathartic. Apart from my parents ...
I'm Boycotting the Doctor
- By mozart · Posted October 11, 2009
- 17 replies
- I have decided at this point in my disease that I no longer want to waste my time and money seeing my internal med doctors and specialists for them to see me and decide that they don't know where pain ...
Fsgs and Sacardosis
- By Jules89 · Posted October 11, 2009
- 0 replies
- I joined this site in hope to find others who suffer from both of these diseases. My doctor says it is a rare condition, PLEASE respond if you suffer from both of these. I would really like to see what ...
Muscle Spasm In Back is Starting Up Again!
- By MrsUyarlar · Posted October 11, 2009
- 5 replies
- I haven't had back pain since i started prednisone 3 months ago, and now all of a sudden they are coming back again and more painful! Now from my undertsanding prednisone is suppose to be help with the ...
Hardest Thing I Ever Had To Deal With Emotionally and Physically!
- By MrsUyarlar · Posted October 11, 2009
- 21 replies
- It's been 3 months since i was diagnosed with Lung Sarcodosis and is on 40 mg pred! I'am really not the one to "complain" but when u see yourself changing right before your eyes mentally,physically,and ...
21 YEARS SINCE MY DADDY DIED.
- By SarcoidPrincess · Posted October 10, 2009
- 33 replies
- Hello everyone. I hope your having a good weekend. Today is hard for me. The month of October generally stinks for me. 21 years ago today I was waiting for my father to come. He was a piano player/singer ...
UPDATE ON THE VISION ISSUES
- By scaredandfedup · Posted October 9, 2009
- 16 replies
- Since last week- I have gone from reading novel type print without glasses to reading the large print Bible at church and the +2.00 reading glasses a friend loaned to me two days ago. I am sitting at ...
Picking myself up...once again.
- By mrsmariesmith · Posted October 9, 2009
- 1 reply
- Nearly 12 years after my initial diagnosis, I find my most difficult challenges of coping with this disease are mostly mental. Though my physicial symptoms wax and wane, go into remission and return ...
HELLO!! EVERYONE I`M BACK, TAKING TRIPS OUT ON MY FOUR-WHEEL, DIRT- BIKE
- By sonnyelectric · Posted October 9, 2009
- 4 replies
- WHILE~ MAN, ITS BEEN A WHILE SINCE I WROTE IN THE JOURNAL. I`V BEEN BONE-IN TO TAKE THIS NEW ELECTRICAL EXAM. EVEN THOUGH I DON`T WORK, I VE LOVE STAYING UP TO DATE, THAT! 16-FT, HOBE- CAT, I WON IN POPEYE ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
