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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
Day Two
- By Operagal · Posted October 23, 2009
- 1 reply
- Well, I have confided in another good friend, a Physician's Assistant of my choice of conditions afforded me. It still feels unreal, I want to keep it from my sons, they both have lots on their plate ...
Pain in the chest
- By dishong · Posted October 22, 2009
- 3 replies
- Iv'e had sarcoidosis for 12 years now. It's now in my lungs and I have really bad chest pain. It hurts when I bend over to pick up somethingor when I cough,or laugh,and really bad at night I'm so uncomfortable ...
I'm not one of them
- By escalantedreamer · Posted October 22, 2009
- 21 replies
- I read a lot of the journals and the disscission groups and I dont think I have Sarcoidosis. people are devistated by this disease and Ive even heard of people killing themself instead of having it. It ...
Sad,hopeless,and helpless....
- By B-lieve · Posted October 22, 2009
- 4 replies
- ....This is how I have been feeling the past week. It started last Thursday when my Mother had a heart cath proecedure. She's had congestive heart failure and severe copd from years of smoking. She's ...
Been really cranky as of late...
- By Todd_O · Posted October 22, 2009
- 15 replies
- This is me venting.... I hate that the pred makes you go cuckoo. I flip out at people way to quick these days. I'm arguing with my wife about stupid crap and then it blows up. I've been out of work since ...
The New Today 10/22
- By Operagal · Posted October 22, 2009
- 3 replies
- Well, I feel fine, but after thinking I was having a heart attack two weeks agos. EKG's fine, Blood work fine, Chest xray fine, looking for maybe a blood clot in the lung, CAT of Chest ruled that out ...
There's another puertorican or latin with Sarc. couse I cant find anyone?
- By IleanaSanchez · Posted October 21, 2009
- 1 reply
- I was diagnose on Saturday(Oct.-17-2009),but I cant find any doctor that can treat me in Puerto Rico. HELP ...
pulm dr yesterday..GOOD NEWS!
- By cls710 · Posted October 21, 2009
- 3 replies
- well i had my pulm dr appt & for once i got some good news! my ct didnt show any signs of fibrosis or scarring & no signs of active sarc! i do have some calcified spots from old sarc but nothing active ...
Test
- By escalantedreamer · Posted October 20, 2009
- 2 replies
- My cardiologist has been waiting for me to have a Thalium heart scan to determine how much involvment in the cardiac muscle there is. we were going to have the old favorite a MRI but since I have LOADS ...
Just need a friend.
- By suenKy · Posted October 19, 2009
- 25 replies
- Hi, I am new at this. I was just confirmed with sarcoidosis in my lymph nodes today although I have been sick for about 14 yrs. I really don't understand alot about it and my dr. admitted he knew little ...
"Relapsed" It's Hard dealing with Sarcodosis and other Problems in general!
- By MrsUyarlar · Posted October 19, 2009
- 6 replies
- Something happen over the weekend that i couldn't deal with or have no control over , so my first thought was i need a cigarrett, even though i only had two today and 2 yesterday and 2 Sat. Just sucks ...
help! Symptoms and treatment...
- By madison12 · Posted October 18, 2009
- 4 replies
- Hi, I've been diagnosed via mediastenoscopy- removing my lymph node. They thought i had lymphoma. I've been dealing with it for 5 years - misdiagnosed until now. I have extreme back pain (undiagnosed ...
diet and workout
- By darlene07 · Posted October 18, 2009
- 5 replies
- So today i am getting a little more seious about being me. Diet and exercise are the key........I know this. we all know this. Trying to eliminate as much sugar and amimal protien as I can from my diet ...
Making Connections and Developing a Passion!
- By Teacherteacher · Posted October 17, 2009
- 0 replies
- What is something proactive we can do for our good health? A community, Albert Lea, Minnesota is implementing 25 tips learned from cultures around the world on healthy longevity. (This is a town near ...
Strike Three...
- By SP · Posted October 17, 2009
- 9 replies
- Well, I haven't been on here in a good long while. I have been trying to stay busy, work, school, and tapering off the Prednisone and Methotrexate. I had 2 surgeries. One involved my pancreas, the other ...
Health care
- By escalantedreamer · Posted October 16, 2009
- 4 replies
- I get scared at how stupid I am sometimes. i'm stupid because I actualy believe in heros. When the question of national health care came around I watched the party line form and wasn't suprised that the ...
This Sucks!
- By darlene07 · Posted October 15, 2009
- 9 replies
- I am trying so ahrd not to let this episode come on that I feel is about to happen. I have been juicing, taking elderberry, drinking water, praying, working out and resting....yet I feel the train-a-comin ...
Fire & brimstone
- By AngelsFarm · Posted October 15, 2009
- 5 replies
- Oct 15, 2009 The days of remission seem an all but forgotten memory in these which I have come to know as the darkest of times. I find myself longing for those days, despite the lingering pain which remains ...
Surgery To Prevent Retina Tears
- By Janinebert · Posted October 15, 2009
- 8 replies
- Monday I'm having a silicone buckle put around my right eye to stop the retina from ripping. Because of all the swelling behind the eye from sarcoid uveitis my retina keeps tearing almost every week ...
Disability and healthcare
- By escalantedreamer · Posted October 14, 2009
- 5 replies
- I have applied for disability and have waited through the letter telling me I amnot really disabled, I should be able to work at a less skilled job. How does this work in their world? How do they reason ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
