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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
My Crocodile Tears
- By Brandie228 · Posted November 3, 2009
- 7 replies
- So, today I looked at the response to my inquiry about Sarcoidosis and needing to find a doctor who knows what is going on. I read a reply that indicated that one of the best Sarc doctors in the world ...
Is my immune system giving up on me?
- By MrsUyarlar · Posted November 3, 2009
- 3 replies
- Well for the last past 2 months my back started to hurt again, and now its huritng like hell! Also i have to seed the gastrologist cause i might i have a another problem. And not just that im very congested ...
strange taste
- By carolAnn2 · Posted November 3, 2009
- 13 replies
- Has anyone ever gotten strange tastes in your mouth? i keep getting this the past few days,and its driving me crazy!! Ive been almost constantly chewing gum just to get rid of it. Is this a sarc symptom....or ...
I'm not steppin out
- By escalantedreamer · Posted November 3, 2009
- 7 replies
- I managed to get myself down stairs to do laundry ( something I can still do) and my wife started calling me because she was home from work. because she couldnt hear me and I could hear her I had to stomp ...
eye swelling
- By pearlsnowflake · Posted November 2, 2009
- 0 replies
- Does anyone get eye swelling below the eyebrow mostly and really huge in the morning and then a little better as day goes on? I have sarcoid in my eyes, lungs, thoracic lymph nodes, skin, parotid glands ...
PITA
- By escalantedreamer · Posted November 2, 2009
- 2 replies
- It realy is a pain in the ass having this disease. Its managed to take away the things I really like to do but there no up side for it. {;-) Jerry lewis dosn't stay up all night for us. I cant look bravly ...
Vaccines
- By boatlady · Posted November 2, 2009
- 0 replies
- I just wanted to share with everyone to perhaps help put some minds at ease...I've gotten a flu shot every year since I was diagnosed with Sarcoidosis. This year, my pulmonologist insisted I add the H1N1 ...
Surgery with Bone Sarcoid
- By unicorn2870 · Posted November 2, 2009
- 9 replies
- I had hip replacement surgery on Oct 19-they also put a rod in my leg. The sarcoid was pushing the bone marrow out and causing pain and weakening the bone. I was terrified it would not heal properly but ...
Exercise
- By TRock · Posted October 31, 2009
- 6 replies
- I plan on taking up running and biking. I get shortness of breath when walking up stairs. I used to be a good athlete, but haven't participated in sports in 15 years. I believe cardio of any kind is good ...
National Institute of Health (NIH)
- By TRock · Posted October 31, 2009
- 1 reply
- NIH are in the process of starting a study group for sarcoidosis. I am waiting for information, as I plan on being a part of the study group. The pulmonary doctor I am seeing is keeping me posted. Stay ...
MONTELL WILLIAMS HEALTH THINGY
- By darlene07 · Posted October 30, 2009
- 5 replies
- So I brought that machine yesterday. 244.00....I think it will be well worth it. I am researching gluten free and juicing. What I do know for sure being raised by the best nutritionalist in NY is that ...
Its been awhile
- By scarber06 · Posted October 30, 2009
- 0 replies
- So now my daughter is 2 years old and my son is going on 5 months! Things have been busy, my one year checkup with the doctor was okay. Really dont think he knows much about this disease, but havent had ...
TOP DR. 2009 / H1N1 vaccine
- By glowgirl · Posted October 29, 2009
- 4 replies
- Hi all, I just found out at my visit to National Jewish that my pulmnologist, made it in the magazine 5280 as TOP Dr. of the year 2009 list! I feel so blessed to be in such capable hands. My report from ...
Stress??
- By carolAnn2 · Posted October 29, 2009
- 4 replies
- Is it horrible for me to say that since I have all 3 kids in school full time, I swear Ive been feelin better?!I havent (knock on wood) been laid out on the couch in a while. Its crazy!!! Though I can ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
LUCKY?
- By mommyof2dogs · Posted October 29, 2009
- 6 replies
- I am beginning to think that I must be pretty lucky with this whole histopasmosis-fungus-granulomas thing I have going on. The only time I felt bad was in the beginning when it was first found. Maybe ...
hey everyone im new
- By coleburrell · Posted October 29, 2009
- 25 replies
- hello everyone. im new here and to sarcoidosis. i was just diagnosed with sarcoidosis 2 weeks ago following a surgical lung biopsy. and may also have it in my eyes as well. i have never heard of the disease ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Body Tingles
- By stormiecees · Posted October 28, 2009
- 3 replies
- It's been a while since I posted anything. I've been having minor ups and downs. However, there is something new that is disturbing me. I've been have back pain for some time now. I've been seeing a chiropractor ...
Good news! Bloodwork back to normal
- By Kimlou · Posted October 28, 2009
- 0 replies
- From Dec. 08 to July 09 I was on prednisone and it just about made me diabetic. In March, my glucose was 160 with an A1C of 5.9. But now, 3 months after weaning off the pred my bloodwork is normal. Glucose ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
