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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
pains
- By feliz · Posted November 6, 2009
- 5 replies
- For the last few days my pains have getting worse, especially my shoulders and lower back, I have a burning pain on my back, shoulders , right hip and leg, my chest feels like someone is sitting on it ...
UCSF Interstitial Lung Disease Group
- By BeccaSF · Posted November 5, 2009
- 4 replies
- Given my recent "Massive Pulmonary Event" as they described it which landed me in the Hospital for a week has a silver lining. I am now getting to see the UCSF Interstitial Lung Disease Group http://www.ucsfhealth.org/adult/medical ...
getting prepped
- By leegal · Posted November 5, 2009
- 6 replies
- so i'v been told that my insurance company has approved for me to get humira...i'm scared of this medicine because it's an injection. has anyone ever been put on humira? before i can get this medicine..i ...
The next part.....
- By Brandie228 · Posted November 5, 2009
- 1 reply
- I forgot to mention that around the time I found out that I would need an arthroscopy, I also found out that I had Morton's Neuroma. Kind of like Sarcoidosis, you think that the doctor mis-spoke when ...
me
- By mananimal · Posted November 5, 2009
- 2 replies
- In 2003 started to have problems breathing . My Doc. at the time sead it was asthma with no testing. Two years past then got a new doc. , he started testing and found sarcoid .Was seeing a specialist ...
Today we finally see the sarcs specialist for the 2nd opinion
- By Jrs_Mom · Posted November 5, 2009
- 12 replies
- I am so psyched. After 3 long months of waiting to get in to see this Pulmonary Specialist at Froedtert Hospital in Milwaukee, WI who specializes in Sarcs my son will finally be able to get a second opinion ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 43 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
50 ways to deal with sarcoid
- By Gypsy · Posted November 4, 2009
- 12 replies
- Home with nausea from MTX today and my mind is a bit loopy! The following is based on some of my trials, but I'd like to hear from some of you who are better poets! You know the music so hum along ...
steppin out
- By escalantedreamer · Posted November 4, 2009
- 1 reply
- I managed to get myself down stairs to do laundry (something I can still do) and my wife started calling me because she was home from work. because she couldnt hear me and I could hear her I had to stomp ...
I don't wanna be
- By Brandie228 · Posted November 4, 2009
- 4 replies
- I don't want to be strong. I want to be weak. I want someone to help me. I want someone to care. I want to be felt taken care of. I want someone to come along and say "Wow, you are a beautiful and wonderful ...
Frank
- By Brandie228 · Posted November 4, 2009
- 0 replies
- Around the time of my arthroscopy, I ended up having another lap, and having ovarian cysts removed, again. I told Charles that I thought that I might need to see a therapist and that maybe I did have ...
Charles
- By Brandie228 · Posted November 4, 2009
- 1 reply
- So, I met Charles. Right before my first surgery. For the twisted fallopian tube. He seemed so kind, loving, and willing to accept me for who I was. It was an illusion. Charles was, that is. We dated ...
Where is my faith?
- By Brandie228 · Posted November 4, 2009
- 2 replies
- I feel so lost! I don't understand this world! Or why I am in it. I feel like I'm losing my faith in God! Why do I have to suffer like this? I was abused as a child. Raped by my own father. Sodomized ...
recently diagnosed with bone sarcoid
- By mklopp · Posted November 3, 2009
- 6 replies
- I was just recently diagnosed with bone sarcoid. Have had pain in my left hip for 2 1/2 years, last year the doc's thought cancer, since started testing, right hip and pelvis also hurt. Now had bone biopsy ...
My Crocodile Tears
- By Brandie228 · Posted November 3, 2009
- 7 replies
- So, today I looked at the response to my inquiry about Sarcoidosis and needing to find a doctor who knows what is going on. I read a reply that indicated that one of the best Sarc doctors in the world ...
Is my immune system giving up on me?
- By MrsUyarlar · Posted November 3, 2009
- 3 replies
- Well for the last past 2 months my back started to hurt again, and now its huritng like hell! Also i have to seed the gastrologist cause i might i have a another problem. And not just that im very congested ...
strange taste
- By carolAnn2 · Posted November 3, 2009
- 13 replies
- Has anyone ever gotten strange tastes in your mouth? i keep getting this the past few days,and its driving me crazy!! Ive been almost constantly chewing gum just to get rid of it. Is this a sarc symptom....or ...
I'm not steppin out
- By escalantedreamer · Posted November 3, 2009
- 7 replies
- I managed to get myself down stairs to do laundry ( something I can still do) and my wife started calling me because she was home from work. because she couldnt hear me and I could hear her I had to stomp ...
eye swelling
- By pearlsnowflake · Posted November 2, 2009
- 0 replies
- Does anyone get eye swelling below the eyebrow mostly and really huge in the morning and then a little better as day goes on? I have sarcoid in my eyes, lungs, thoracic lymph nodes, skin, parotid glands ...
PITA
- By escalantedreamer · Posted November 2, 2009
- 2 replies
- It realy is a pain in the ass having this disease. Its managed to take away the things I really like to do but there no up side for it. {;-) Jerry lewis dosn't stay up all night for us. I cant look bravly ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
