Journals

TIRED OF BEING SICK AND TIRED

may_may_1968
  • By may_may_1968 · 11:00 am
  • 4 replies
  • MY LIFE IS NOT AS IT USED TO BE. TOO TIRED TO DO ANYTHING WITH FRIENDS AND FAMILY. TRY TO MAKE AN ENTIRE DAY AT WORK SEEMS TO BE GETTING HARDER AND HARDER. NO ONE SEEMS TO UNDERSTAND WHAT I'M GOING THRU ...

Lymph nodes big as taters

tuckerlane
  • By tuckerlane · 10:30 am
  • 1 reply
  • Went to a new pulm today. She said that my chest lymph nodes are as big as potatoes. She said that she freaked out when she saw the x-ray until she realized that the size has not increased over the last ...

Working towards a better life

JWNugent

just rambling

abnrml
  • By abnrml · Yesterday at 11:22 pm
  • 0 replies
  • the last 6 been terrible, the last 2 have gotten worse, I’m not sure were most of the stress is coming from, wether it is from work, not being able to sleep, or my wife and other people not being able ...

Went to Doc today

LadyForce
  • By LadyForce · Yesterday at 9:23 pm
  • 0 replies
  • Well, I went to the Doc today, first time in a long time... I know, I know, I should have gone a long time ago... bad me. The doc refilled my presecriptions (Thank the Goddess that he refilled my vicodin ...

Media Coverage of Sarcoidosis

FSR_Debbie
  • By FSR_Debbie · Yesterday at 3:15 pm
  • 2 replies
  • As Community Members know from recent posts, news coverage following the death of comedian Bernie Mac has resulted in a substantial increase in the exposure this ‘little known’ disease has received from ...

Went to the new Pulm on Monday

Nikkis
  • By Nikkis · Yesterday at 1:27 am
  • 3 replies
  • I went to the new Pulmonary doctor today. Let me tell you that I have never been threw anything like that before in my entire life. I have never been to a doctor that has asked as many questions as I ...

Went to State for assistance

LadyForce
  • By LadyForce · August 19, 2008
  • 1 reply
  • Well, I finished my appl for State Assistance and sat/stood/walked, etc... there for 3 hours. Now it hurts like *#&@*# !!! The 'good news' is that I got a 'Pending Medical' slip so I could go see a doctor ...

First 4 days on Predisone

Soosie
  • By Soosie · August 19, 2008
  • 4 replies
  • I am taking my pred each morning and so far have noticed only a couple of things changing. I cannot get to sleep until about 3am as my mind will not slow down, I have never been a good sleeper but now ...

Casualty rate%?

Pat-y
  • By Pat-y · August 19, 2008
  • 1 reply
  • On the heels of Bernie Mac's death it makes me wonder how accurate is that 5% casualty rate for sarcoid? I mean if they are attesting pneumonia as the cause of death, which I know is tech. correct, but ...

Back to Day-to-Day Stuff

LadyForce
  • By LadyForce · August 18, 2008
  • 2 replies
  • Well I thought that I was on the mend from the other day, but alas, I was wrong... or it's just the day to day stuff getting to me again. My hips are bad today. My left side is the weakest, thanks to ...

Vitamin D - arm yourself with the facts!

Delirium
  • By Delirium · August 18, 2008
  • 4 replies
  • There is A LOT of discussion, name calling and general confusion when it comes down to sarcoidosis and vitamin D. I’d like to take a moment and simply clear this up once and for all. What is vitamin D ...

Can't believe I'm even asking this

Star51145
  • By Star51145 · August 18, 2008
  • 0 replies
  • hm, I just wrote this and it didnt post.. lets try again I must be in the middle of a flair here..I have been feeling pretty awful the past couple of weeks and I dont really see it easing up any.. before ...

its 1:00 a.m. do you know where my bed is?

nomoresmiling
  • By nomoresmiling · August 18, 2008
  • 12 replies
  • I've just been a little down in the dumps and trying to get myself out of it. The doctors are driving me up a wall. I’m sick of being poked and prodded and then have to go on to the next one. Hopefully ...

Patience

LadyForce
  • By LadyForce · August 17, 2008
  • 0 replies
  • Well, really haven't been out of bed much since we got home this morning. The pain has mostly subsided, but I haven't really done anything either. I am still having muscle spasms, although they are not ...

Not sure what to do with myself!

Popsy
  • By Popsy · August 17, 2008
  • 1 reply
  • Hi all, I'm very new to this kind of thing so you'll have to bear with me. My health has not been quite right for around six years, I had a variety of symptoms on and off including mild chest pain, palpitations ...

brighter day

fishergrl29
  • By fishergrl29 · August 17, 2008
  • 2 replies
  • THanks so much for all the encouragement y'all were giving me last night...I really needed it...and things are definitley looking "brighter" today. I pray everyone is doing well today....keep your heads ...

My First Journal

LadyForce
  • By LadyForce · August 17, 2008
  • 4 replies
  • Well, I'm an idiot!!! First of all, I wanted to spend time with my husband... how silly of me :). My husband is a drummer, and a courier. We spent the day together, and then decided that I would go with ...

The day from you-know-where

fishergrl29
  • By fishergrl29 · August 16, 2008
  • 8 replies
  • I am realy going through it today guys and gals,and its more than just the sarc thats got me bawling my eyes out. Things are going on around here,thats just really too much to explain. But all these situations,combined ...

Made me stop and think

Nikkis
  • By Nikkis · August 16, 2008
  • 2 replies
  • Never thought of things this way before. Made me stop and think before I kept on carring the stress from day to day. A lecturer when explaining stress management to an audience, >> raised a glass of water ...

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