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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Thank you
- By coolbreeze0121 · Posted 12:20 pm
- 0 replies
- I want to first say thank you to all the people who have sent me a welcome. After doing a little reading I thought I would post a little more about what is going on with me. As a reminder I have just ...
GOOD NEWS BAD NEWS PULMONARY CHECK UP
- By Blkjewelz8960 · Posted yesterday at 5:15 pm
- 13 replies
- Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...
New
- By coolbreeze0121 · Posted yesterday at 3:26 pm
- 9 replies
- Hello my name is Dawn and today (Nov 19 2009) I found out I have sarcoidosis. I'm scared and not sure what might lie ahead for me ...
Day 5 on the Pred
- By SPM1617 · Posted yesterday at 9:35 am
- 3 replies
- I have no idea where to start. The meds so far haven't been too bad - I'm starting to learn the rhythm of how my body reacts to them and at what times. In the morning, I still feel sick - heavy weight ...
Moody blues
- By TCALL · Posted yesterday at 9:30 am
- 4 replies
- Well its been a roller coaster for me in these last few months. Stress at my job, My home with my 16 year Daughter and I am so tired i can't do much. My lung capacity has decreased 3% and i'm still fighting ...
swine flu
- By meriterry · Posted November 18, 2009
- 0 replies
- My daughter let us know that the doctor told her husband not to come into the doctor's office, and to assume he has swine flu due to symptoms he reported. He has headache, achy, fever, coughing, but unless ...
Water or Coke? (or rather any carbonated drink)
- By meriterry · Posted November 18, 2009
- 11 replies
- This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...
What to do?
- By showme261 · Posted November 18, 2009
- 5 replies
- I have been with my doctor. They want to find out what's wrong with me but I already know that. I am having chills, no fever and that's sarcoid. So my doctor just told me that she was inexperienced and ...
7 December 2009
- By Soosie · Posted November 17, 2009
- 5 replies
- I haven't been on this site for some time and I apologise. Just because I have been feeling well does not mean I shouldn't take notice of how others are. As you know I stopped the steroids on 30 June ...
Mtx is working
- By survivor58 · Posted November 17, 2009
- 8 replies
- Praise report! I saw my pulm last week and did pft's. They had all improved significantly. I have been on mtx for 8 weeks now and it seems to be working. I started on pred (40 mg/day) 4 months ago and ...
When will it get better?
- By mommyof31 · Posted November 17, 2009
- 8 replies
- I have not visited this site in awhile now. I have had a very hard year. My parents moved in with me and my husband about 3 years ago. My mother was very sick with about every disease you could have ...
can ciggarets make sarc symptoms worser
- By MrsUyarlar · Posted November 15, 2009
- 8 replies
- im tryin to stop, its just became so addictive again and now i my back hurts like out of this world and still feel very tired at times ...
Best time to take Meds?
- By MurphyinVT · Posted November 15, 2009
- 6 replies
- I've had Sarc for 4-5 years. Biggest problem I have is with breathing difficulties and what I describe as feeling like having the flu all the time. Lack of energy and a general crappy feeling are the ...
Just joined
- By MurphyinVT · Posted November 15, 2009
- 5 replies
- Just joined. Feeling torn. I'm happy to find other people out there dealing with similar struggles, and at the same time I am distraught to see so many people out there with the same disease. Also feel ...
GOOD MORINING EVERYONE....
- By sonia40 · Posted November 14, 2009
- 10 replies
- Hello all my wonderful and caring friends...i slept in the lounge last night as i was up practically every half hr to urinate....very painfull burning sensation....i didnt realise how common IC is....and ...
subacute thyroiditis!!!
- By cheri72 · Posted November 14, 2009
- 7 replies
- when I was finally diagnosed with sarc, the first symptoms, that took me to the doctor was a terrible pain in my neck, which I later found out was subacute thyroiditis, well its back, and very painful ...
JUST CAME BACK FROM THE HOSPITAL....
- By sonia40 · Posted November 14, 2009
- 12 replies
- Hello all well its been a preety rough weekend...went in on friday morning for a laproscopy, hysteroscopy, cystoscopy and a curette....well the doctor came in to see me in recovery and briefly mentioned ...
News from the Neurologist
- By Todd_O · Posted November 14, 2009
- 5 replies
- I finally got the results from my brain CT scan on 10/20...I had to call several times to find out I was OK; no signs of sarc in my brain! I think I'm going to see another doc since this one can't even ...
TO CLIMB OR NOT TO CLIMB
- By Blkjewelz8960 · Posted November 13, 2009
- 21 replies
- Ok, last weekend I stored up enough energy to go to a friends housewarming. Was really looking forward to it because we went to high school together and had only seen each other just recently at a funeral ...
A SARCIE THANKSGIVING -- on a serious note
- By Blkjewelz8960 · Posted November 13, 2009
- 17 replies
- Been a long time since I posted to my dear journal. Been so busy over on Facebook, but I haven't forgotten my first home. Even told them about Inspire and invited them over for a couple of non-caffiene ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
