Well i have had enough!!!! On Mtx and got real sick (injecting 20mg per week) oh the stomach aches!! On pred 20mg for about 6 month (only gained about 50 pounds) I saw a new rhuemy who told me sarc can not cause arthritis only can it cause arthritis in the ankles???? not so sure about that one, but ok he then tells me i just have plain old arthritis and also wait a new one for me FIBROMYALGIA... wonderful something new....then he says i am toxic on the mtx and must stop immediatley if my pulm is ok with that. So here i am off mtx 1 week and pred 3 days..... My body hurts more every day but i will never go back on to that evil drug pred again. I want to be normal i want to walk like i am 26 years old not 96..... Any one with fibromyalgia any suggestions for a newbie? Oh yeah one more thing have had this rash on my leg for 3 weeks itches like crazy first they say it is poison ivy then it was shingles, then it was ringworm, now it is sarc erethyma nodosum not sure on spelling, and the only way to get rid of it is intralesion injections of triamcinolone..........one more thing right!!! Well i am off to the dreaded family reunion to once again rehash this wonderful year with a bunch of people i have never met and will probably never see again. So that they can all say what every one else has "what is SARCOIDOSIS and how did YOU get it?" no one really understand and i dont want there sympathy or pity..
Well venting felt good thank you
Love,
JenL