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recently diagnosed with bone sarcoid

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I was just recently diagnosed with bone sarcoid. Have had pain in my left hip for 2 1/2 years, last year the doc's thought cancer, since started testing, right hip and pelvis also hurt. Now had bone biopsy 2 weeks ago and positive for sarcoid. would like to know what other people have done for treatment. It is also in my femurs and pelvis. The docs believe it is elsewhere in other bones, but haven't pushed to have the mri's done just yet. Really want this pain to go away in my hips, pelvis and femurs. Also have sarc in my eyes, skin and lungs. Would appreciate any help or ideas people might have. Darvocet is getting old.

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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