PITA

It realy is a pain in the ass having this disease. Its managed to take away the things I really like to do but there no up side for it.
{;-) Jerry lewis dosn't stay up all night for us. I cant look bravly into the camera and tell everybody that I'm going to climb kilimonjaro some day. Because if you go into remission your lungs are still damaged- Cancer goes away you feel better, sarc goes away and you still feel like shit.
:-> Nobody is going to wear a ribbon in support of us, whatcolor would it be anyway Prednisone red?
Its just to hard to explain to the perky reporters thT our disease Varries so much that it would take an hour to explain all of the sympyoms.
:-0 I hate it that the most prevelent symptom of mine is exaustion. Why do I get so Gosh damn tired... I'd like the damed sawbones to explain the fundemental of that. I'm smart, I can follow along. I want all my doctors to explain the disease for me. Why does my heart race to 200 beets per minute but my bowels are so slow they seem to be asleep.
:-) Why is it I cant fall asleep at night anymore but I cant use that energy to good things like make love to my wife. or at least paint the cabnets.
Whydosn't some big company get intrested in us and pitch in for a scholership. for gods sake they give one to you if you are a student from Burma and have the heartbreak of hallitosis. They get a scholership why not me or my kid
Face it SARC just sucks
Rick