Help... My respiratory specialist wants me to take calcium and Vit D supplements as I am showing early signs of osteoporosis... but, my blood/calcium level is elevated... he did seem to have a reasonable answer for why he thought I should take it but from what I have read about hypercalcaemia... treating a hypercalcaemia patient with calcium is dangerous... could somebody please enlighten me?
I'm stage lll with pretty severe respiratory involvement... on 25mg prednisone daily. This seems to be, so far, the lowest dose I can holt the sarcoid progression at. I was diagnosed in April and started on 40mg daily and have only just started reducing over the past couple of months... going between 25mg and 20mg for the past 6 weeks but finding a return of symptoms at the lower dose... mostly fatigue and wheeziness:( Treatment is expected to continue for at least 2 years.
Also, could be a coincidence but, when I started steroid treatment my hair STOPPED falling out! I had been losing hair for a couple of years (probably about the time the sarcoid started) And… when I reduced down from 25-20mg doses of pred my hair started falling out again… then stopped again when I went back up to 25mg? I assuming the hair loss is a sarcoid thing but I haven’t read anywhere that it affects the scalp… or possibly some sort of deficiency as a result of sarcoid… or just shear coincidence… dunno? Anyone else experienced this?