Recommended discussions
- By daverojo77 · Posted January 5, 2009
- In Living with sarcoidosis · 6 recommendations
- A campaign Long in the making some of you may remember the older posts so here it is. http://www.cafepress.com/TeeGee Get the word out, express yourself and fight sarcoidosis... Happy New year folks ...
- By akgirl1 · Posted January 2, 2009
- In Living with sarcoidosis · 4 recommendations
- HI there..I'm new. I've been reading all the discussions and am hoping for feedback. Story is long, so I'll fill it in for discussion purposes. I had been back and forth to the doctor with one sinus infection ...
- By teeteeme · Posted January 5, 2009
- In Living with sarcoidosis · 3 recommendations
- The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal ...
- By MADONNA104 · Posted December 28, 2008
- In Living with sarcoidosis · 3 recommendations
- Greetings everyone, I have been living with Sarcoidosis since 1996; I have great doctors through the Cleveland Clinic, in Ohio. National Sarcoidosis Day is August 29, 2009 and although the new year is ...
- By ellishamilton · Posted January 7, 2009
- In Symptoms · 2 recommendations
- Good god**mn that is frustrating. If the nose has an interior (near septum) and exterior wall (closer to ear) who gets these blisters that grow then subside, with ensuing skin shredding over the lesion ...
- By bigjoe · Posted January 5, 2009
- In Symptoms · 2 recommendations
- Hi: I just had an appointment with a Neuro-Ophthamologist. He found Optic Disc Drusen Calcification. Can the calcification be caused by Vitamin D? He also found some nodules (???) on the inside my eye ...
- By shadowtoonces · Posted January 4, 2009
- In Treatment decisions · 2 recommendations
- Hello Friends, I have an idea. I have read over and over all of our different symptoms and different treatments. I have read how some of the medications work and then all of a sudden they don't, I have ...
- By bigjoe · Posted January 2, 2009
- In Symptoms · 2 recommendations
- Hi Friends, In the book "Inflammatory Disorders of the Nervous System: Pathogenisis, Immunology, and Cinincal Management" on page 270 I found the following quote in the chapter on Neurosarcoidosis: "Occupational ...
- By shadowtoonces · Posted December 31, 2008
- In Emotional support · 2 recommendations
- Hello Friends, I hope this is okay to post on this site. I just read on the Foundation for Sarcoidosis Reseach they have launched "Shop to Stop". Go to the website www.goodsearch.com and type in Foundation ...
- By MZBIGGREDD · Posted December 14, 2008
- In Emotional support · 2 recommendations
- Why is time the hardest thing for us to give? Have you ever thought about all the gifts we receive as people, there is one gift that we can give that cannot be bought, replaced, or broken. It is the gift ...
- By Krissy · Posted December 13, 2008
- In Treatment decisions · 2 recommendations
- We know that stress and inflammation are major killers. Both cause many life threatening symptoms. Ironically, stress produces cortisol, which is our own body's natural cortisone. This substance cortisol ...
- By sarcoidjeff · Posted September 27, 2007
- In Living with sarcoidosis · 2 recommendations
- I was a firefighter in the U.S. Air Force for 14 years, as well as a volunteer firefighter for 8 years. I know sarcoid has not been linked officially with toxic exposure but there sure seems to be an ...
- By anybuddyhere · Posted May 18, 2007
- In Symptoms · 2 recommendations
- I am wondering if anybody has Restless Leg Syndrome and how it is treated. Mind you, I have not talked to my doctor yet about this, I am self diagnosing. I already have an appointment with my doctor in ...
- By rick2 · Posted April 21, 2007
- In Symptoms · 2 recommendations
- I was just wondering if anyone else has been diagnosed with Fibromyalgia after having been diagnosed with Sarcoid? Sarcoid is now in check and the treatment for firbro. is working pretty well ...
- By kool_mom_95 · Posted January 5, 2009
- In Living with sarcoidosis · 1 recommendation
- Hi everyone! I just needed to say HI! I feel lost today. My ct scan of my head - supposedly looks good. The eye doctor says my eyes look good for a 43 yr old. Reading glasses are normal for someone my ...
- By Madolyn1 · Posted January 4, 2009
- In Treatment decisions · 1 recommendation
- I am still waiting for my doctors and insurance to decide if they will allow me to be treated with Remicade. I don't know how much longer I can live with this constance stomach pain. How many treatments ...
- By Weyekin · Posted January 3, 2009
- In Symptoms · 1 recommendation
- I was diagnosed with Lung Sarc back in February 2008 and have had most of the common symptoms especially the sharp stabbing pains that can come on with out warning and or stick around for a while, problems ...
- By ChristineNeisel · Posted August 25, 2007
- In Treatment decisions · 1 recommendation
- Isn't it ironic that you get diagnoised with an autoimmune disease like sarcoidosis, this disease supposedly came your way because your body was not up to snuff and your immune system was not working ...
