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Recommended discussions
How long have you had sarcoid?
- By priscurl · Posted August 7, 2008
- In Living with sarcoidosis · 10 recommendations
- I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...
Collecting symptoms
Anybody heard/read this?
- By Tashabella · Posted September 15, 2009
- In Treatment decisions · 3 recommendations
- Any body ever seen anything like this? This is from: http://www.assatashakur.org/forum/afrika n-wholistic-health/23691-sarcoidosis-sim ple-non-western-breakdown.html Sarcoidosis can be reversed by first ...
do the symtoms of sarcoidosis get worse or better
- By coleburrell · Posted October 30, 2009
- In Living with sarcoidosis · 2 recommendations
- i am only 29 with 6 lymphnote masses in my lungs due to sarcoidosis. Will my symtoms of constantly being tired and sweating and short of breathe get better. Or will this be something I have to get use ...
HOW IS BONE SARC DIAGNOSED?
- By spiraldreamer · Posted September 8, 2009
- In Living with sarcoidosis · 2 recommendations
- I've tried to look through some old posts to see if I could locate this information, but no luck. It's probably there someplace, but I guess I'm not patient enough to read through a million posts. So ...
Fungus can cause granulomas
- By Kimlou · Posted May 14, 2009
- In Treatment decisions · 2 recommendations
- Yesterday I saw a new doctor, a sarcoid specialist. For the first time I had a dr who actually review the results of the lab report from the mediastinoscopy I had in January. He is concerned because it ...
Brain Fatigue/Fogginess
- By whatsupdoc · Posted November 23, 2009
- In Symptoms · 1 recommendation
- I've had sarc for a year now and have worked through most of my health issues. Today I had device clinic for my pacemaker/defibrillator screening and I am another six months free of any heart symptoms ...
Attention Charlotte, NC Sarkies...Support Group
- By KarenGSO · Posted November 21, 2009
- In Emotional support · 1 recommendation
- Hi, I just wanted to let you guys know that I have started a new Sarcoidosis Meetup Support group here in Greensboro. Gram1 from Charlotte has expressed an interest in participating, particularly if there ...
Attention Charlotte, NC Sarkies...Support Group
- By KarenGSO · Posted November 21, 2009
- In Emotional support · 1 recommendation
- Hi, I just wanted to let you guys know that I have started a new Sarcoidosis Meetup Support group here in Greensboro. Gram1 from Charlotte has expressed an interest in participating, particularly if there ...
Calling ALL PEEPS from Greensboro, NC!!
- By KarenGSO · Posted November 19, 2009
- In Emotional support · 1 recommendation
- I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...
Disability Hearing
- By Daff81 · Posted November 18, 2009
- In Emotional support · 1 recommendation
- Hello All ! , Had my disability hearing before the Judge on 11-17-09 . All went well and we were told that my case has been approved !!! What a wonderful blessing it was to hear those words !! The long ...
Sarcoid and Ankle Pain
Chest Pain & Shortness of Breath
Visit to Clev. Clinic - Incredible
- By Raleighnat · Posted November 16, 2009
- In Treatment decisions · 1 recommendation
- I wanted to share my experience briefly regarding the Cleveland Clinic and the diagnosis / treatment plan for my case of sarc in the bone. Some have heard my history before, so I'll be brief: enlarged ...
Can I take a poll on pain relievers?
- By silvercivic · Posted November 12, 2009
- In Treatment decisions · 1 recommendation
- Like many of you I have joint pain. At night my knees,wrists and elbows are like raging toothaches. It's almost impossible to sleep.I'm allergic to Tylenol so that's out. Just curious what (if anything ...
Asking Feedback about Imuran Use
- By JaynesInPain · Posted November 10, 2009
- In Treatment decisions · 1 recommendation
- My doc is considering putting me on Imuran (azathioprine) to treat sarc & possible auto-immune disease. I was on Pred. for 8+ mos, w/only minimal relief & too many sideaffects. I'm down to 1mg this wk ...
please help a new comer
- By Akhilluvs · Posted November 6, 2009
- In Living with sarcoidosis · 1 recommendation
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
Got Bronchospasms??
- By mvaughn1018 · Posted November 3, 2009
- In Symptoms · 1 recommendation
- I have been experiencing pains in my right and left side-(lung/rib area), radiating around to my back. After a trip to the ER today for this along with chest tightness, I was told that I was having bronchospasms-(inflammation ...
Bringing awareness
- By boatlady · Posted November 3, 2009
- In Living with sarcoidosis · 1 recommendation
- The tv show "The View" did a great job yesterday to bring in Lung and Pancreatic Cancer Awareness. Let's all contact them and see if we can get them to do a piece on Sarcoidosis! Here's a link to write ...
rash
- By lilmg · Posted November 1, 2009
- In Living with sarcoidosis · 1 recommendation
- about two weeks ago i started to get a rash on my stomach area. since then it has spread to my chest and the rib area. the rash is also itchy. the doctor says it is more than likely from the prednisone ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
