Recommended discussions
- By theGardener · Posted February 8, 2008
- In Living with sarcoidosis · 11 recommendations
- Hello all, theGardener here. I would like to start a little experiment, I would like to start an ongoing thread of GOOD NEWS. Now as we all know, we primarily b*tch and gripe and moan about our disease ...
- By theGardener · Posted October 2, 2007
- In Living with sarcoidosis · 11 recommendations
- The Sarcoidosis Doctor Hall of Shame I know its not very nice to pick on doctors; but what the hell, sometimes the little boogers ask for it... in spades. In my time on the website I have read the most ...
- By daverojo77 · Posted January 5, 2009
- In Living with sarcoidosis · 6 recommendations
- A campaign Long in the making some of you may remember the older posts so here it is. http://www.cafepress.com/TeeGee Get the word out, express yourself and fight sarcoidosis... Happy New year folks ...
- By Teacherteacher · Posted December 15, 2008
- In Living with sarcoidosis · 6 recommendations
- It seems like everyone here is dealing one way or another with being misunderstood by physicians. Sarcoid is systemic. It rears its ugly, painful head anywhere and everywhere. So why does the pulmonologist ...
- By brucath · Posted August 26, 2008
- In Living with sarcoidosis · 6 recommendations
- NOTE: THIS NEW DISCUSSION WAS SPAWNED FROM nickmd's discussion - "David R. Moller M.D./Johns Hopkins Sarc Researcher" Is Dr. Moller onto something??? Well, he's not the only one. Dr. Wonder Drake at Vanderbilt ...
- By akgirl1 · Posted January 2, 2009
- In Living with sarcoidosis · 4 recommendations
- HI there..I'm new. I've been reading all the discussions and am hoping for feedback. Story is long, so I'll fill it in for discussion purposes. I had been back and forth to the doctor with one sinus infection ...
- By MZBIGGREDD · Posted December 20, 2008
- In Emotional support · 4 recommendations
- Hello Everyone This is MzGloria aka MzBiggredd and I just wanted to inform you as to why I am always posting these Inspirational messages on the sight. I have been living with Pulmonary Sarcoidosis since ...
- By teeteeme · Posted December 19, 2008
- In Help desk · 4 recommendations
- I was surfing and came accross this site. It is free and offers free advise on how to fill out the form and what to do if you get turned down. there are even advocate links http://www.disabilitysecrets.com ...
- By Linds25 · Posted September 13, 2008
- In Triggers · 4 recommendations
- Just a thought and will need some help here....but shall we start a train to see if we can connect some dots as to why we have what we have. Lets start with location and than go from there. Linds25-Grew ...
- By Chief-2101 · Posted July 12, 2008
- In Emotional support · 4 recommendations
- I was having one of those days of feeling lousy and then I received the following e-mail: I LOVE MY JOB . . If you don't laugh out loud after you read this you are in a coma! This is even funnier when ...
- By Michele5 · Posted April 12, 2008
- In Symptoms · 4 recommendations
- Hi everyone, I have nausea, dizziness and headaches daily. Vertigo is a lot less frequent, thankfully. Does anyone else have these symptoms? And what do you do to control them or stop/help when they happen ...
- By teeteeme · Posted January 5, 2009
- In Living with sarcoidosis · 3 recommendations
- The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal ...
- By MADONNA104 · Posted December 28, 2008
- In Living with sarcoidosis · 3 recommendations
- Greetings everyone, I have been living with Sarcoidosis since 1996; I have great doctors through the Cleveland Clinic, in Ohio. National Sarcoidosis Day is August 29, 2009 and although the new year is ...
- By shadowtoonces · Posted December 14, 2008
- In Living with sarcoidosis · 3 recommendations
- I just don't get this, or maybe I'm learning how to live with a disease. The last two days have been the exact opposite of each other and now I think my family and friends think I'm crazy or faking it ...
- By clcsj · Posted November 26, 2008
- In Symptoms · 3 recommendations
- Did anyone see the House episode that aired on Tuesday November 25th called Last Resort. Here is the recap of the show. While working the busy clinic, Foreman suggests to Thirteen that she participate ...
- By ellishamilton · Posted January 7, 2009
- In Symptoms · 2 recommendations
- Good god**mn that is frustrating. If the nose has an interior (near septum) and exterior wall (closer to ear) who gets these blisters that grow then subside, with ensuing skin shredding over the lesion ...
- By bigjoe · Posted January 5, 2009
- In Symptoms · 2 recommendations
- Hi: I just had an appointment with a Neuro-Ophthamologist. He found Optic Disc Drusen Calcification. Can the calcification be caused by Vitamin D? He also found some nodules (???) on the inside my eye ...
- By shadowtoonces · Posted January 4, 2009
- In Treatment decisions · 2 recommendations
- Hello Friends, I have an idea. I have read over and over all of our different symptoms and different treatments. I have read how some of the medications work and then all of a sudden they don't, I have ...
- By bigjoe · Posted January 2, 2009
- In Symptoms · 2 recommendations
- Hi Friends, In the book "Inflammatory Disorders of the Nervous System: Pathogenisis, Immunology, and Cinincal Management" on page 270 I found the following quote in the chapter on Neurosarcoidosis: "Occupational ...
- By shadowtoonces · Posted December 31, 2008
- In Emotional support · 2 recommendations
- Hello Friends, I hope this is okay to post on this site. I just read on the Foundation for Sarcoidosis Reseach they have launched "Shop to Stop". Go to the website www.goodsearch.com and type in Foundation ...
