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Some Numbers About Involved Systems
Liturgical Dance for Sarcoidosis
- By Chakakhan1976 · Posted April 21, 2008
- In Emotional support · 12 recommendations
- Hello Everyone I am a member of the SC Liturgical Dance Network and on 04/26/2008 they will be having a worship service on the SC State house grounds to dance in intercession for those with Sarcoidosis ...
Understanding the doc's perspective
- By Teacherteacher · Posted December 15, 2008
- In Living with sarcoidosis · 10 recommendations
- It seems like everyone here is dealing one way or another with being misunderstood by physicians. Sarcoid is systemic. It rears its ugly, painful head anywhere and everywhere. So why does the pulmonologist ...
How long have you had sarcoid?
- By priscurl · Posted August 7, 2008
- In Living with sarcoidosis · 10 recommendations
- I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...
New Legislation for Autoimmune Disease
- By daverojo77 · Posted October 4, 2008
- In Living with sarcoidosis · 9 recommendations
- Patrick Kennedy introduced H.R. 7078. A bill that would help bring much needed attention for funding research and awareness for auto immune diseases. You would think with a war going on and the economy ...
Found Delirium's 'Diet for Sarcoidosis'
- By mbeth059 · Posted April 11, 2009
- In Treatment decisions · 8 recommendations
- I know some of you wanted to find Delirium's 'Diet for Sarcoidosis' again. It's in the 'Recommended' section....around the third down ...
Sarcoid Macrophage Proliferation and Vitamin 1,25D
Collecting symptoms
$$ for FSR and Sarc Research!
- By ellj · Posted July 11, 2009
- In Living with sarcoidosis · 7 recommendations
- Hi Sarc Family! I got some heartwarming news this morning. The wonderful business my husband works for has a charitable giving initiative in place. Each month a charity is chosen and employees participate ...
I was victimized by a member of this web site!!
- By LucyLue · Posted January 24, 2009
- In Family and friends · 7 recommendations
- I wish to convey a word of caution to all sarcoids sufferers who are members of this web site along with their friends and family members. I experienced a very unfortunate situation last night as I agreed ...
Got my Snarky Sarckie T shirts (Pic)
- By daverojo77 · Posted January 11, 2009
- In Living with sarcoidosis · 7 recommendations
- Photobucket Here I am in my Snarkie Sarckie sarcoid Oh Crap! shirt. I want to thank The Gardener for making these shirts a reality. We had rubber bracelets and pins before which is great but this is a ...
Snarky Sarckie T shirts and Mugs by The Gardner
- By daverojo77 · Posted January 5, 2009
- In Living with sarcoidosis · 7 recommendations
- A campaign Long in the making some of you may remember the older posts so here it is. http://www.cafepress.com/TeeGee Get the word out, express yourself and fight sarcoidosis... Happy New year folks ...
"The Spoon Theory" - Read this, you'll be glad you did!
- By teeteeme · Posted January 5, 2009
- In Living with sarcoidosis · 7 recommendations
- The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal ...
Mycobacteria? Support/Promote the Research
- By brucath · Posted August 26, 2008
- In Living with sarcoidosis · 7 recommendations
- NOTE: THIS NEW DISCUSSION WAS SPAWNED FROM nickmd's discussion - "David R. Moller M.D./Johns Hopkins Sarc Researcher" Is Dr. Moller onto something??? Well, he's not the only one. Dr. Wonder Drake at Vanderbilt ...
ANY FAMILY HISTORY OF OTHER AUTOIMMUNE DISEASES
- By the_dollinator · Posted May 27, 2008
- In Living with sarcoidosis · 7 recommendations
- Hi from Doll, A few doctors seemed surprised that I have Sarcoidosis, and that my mother died of Waldenstrom's Macroglobulinemia, and her brother had Lupus Erythmatosis (sp?). How about some feedback ...
Reishi, Chinese Herb INSTEAD of Prednisone
- By AndyF16 · Posted February 23, 2009
- In Treatment decisions · 6 recommendations
- Just over the weekend I was reading from a reliable source, about the Chinese Herb called Reishi (Ganoderma Lucidum). Well known to that community for over 3000 years to combat chronic inflamation and ...
I have recieved my Sarckie T-Shirts
- By kooks · Posted January 15, 2009
- In Family and friends · 6 recommendations
- I wanted to thank The Gardner for the shirts what a great idea i cannot wait to wear mine tommorrow.I love my Supercalifragilistic expisarcoidosis!! Thanks again Connie ...
sarcoidoisis/hypercalcemia/vit D
- By akgirl1 · Posted January 2, 2009
- In Living with sarcoidosis · 6 recommendations
- HI there..I'm new. I've been reading all the discussions and am hoping for feedback. Story is long, so I'll fill it in for discussion purposes. I had been back and forth to the doctor with one sinus infection ...
Quick Survey about Sarcoid and Bacteria
WHY IS IT THAT MOST DOCTORS THINK OF SACOIDOSIS AS A LUNG DISORDER?
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
