Recommended discussions
- By Paradox · Posted July 5, 2008
- In Symptoms · 12 recommendations
- It seems that quite a few people bump into a problem with their specialists not being aware of what systems might actually be affected by sarc. Now, I could go into my woeful bemoanings about how society ...
- By harmles2 · Posted November 4, 2008
- In Living with sarcoidosis · 11 recommendations
- (I added to this near the end on 11-6-08) I thought I'd start this post to share thoughts on how we (I) live with progressive sarc, the kind most of us have here in our support community, many of you ...
- By Chakakhan1976 · Posted April 21, 2008
- In Emotional support · 11 recommendations
- Hello Everyone I am a member of the SC Liturgical Dance Network and on 04/26/2008 they will be having a worship service on the SC State house grounds to dance in intercession for those with Sarcoidosis ...
- By theGardener · Posted October 2, 2007
- In Living with sarcoidosis · 10 recommendations
- The Sarcoidosis Doctor Hall of Shame I know its not very nice to pick on doctors; but what the hell, sometimes the little boogers ask for it... in spades. In my time on the website I have read the most ...
- By theGardener · Posted February 8, 2008
- In Living with sarcoidosis · 8 recommendations
- Hello all, theGardener here. I would like to start a little experiment, I would like to start an ongoing thread of GOOD NEWS. Now as we all know, we primarily b*tch and gripe and moan about our disease ...
- By the_dollinator · Posted May 27, 2008
- In Living with sarcoidosis · 7 recommendations
- Hi from Doll, A few doctors seemed surprised that I have Sarcoidosis, and that my mother died of Waldenstrom's Macroglobulinemia, and her brother had Lupus Erythmatosis (sp?). How about some feedback ...
- By daverojo77 · Posted October 4, 2008
- In Living with sarcoidosis · 6 recommendations
- Patrick Kennedy introduced H.R. 7078. A bill that would help bring much needed attention for funding research and awareness for auto immune diseases. You would think with a war going on and the economy ...
- By Krissy · Posted August 30, 2008
- In Symptoms · 6 recommendations
- I really feel so bad for anyone who has Sarcoidosis affecting their lungs. That is the case for 90% of diagnosed cases, I believe. It must be terrible, having to endure a lung illness. I am concerned ...
- By priscurl · Posted August 29, 2008
- In Living with sarcoidosis · 6 recommendations
- I don't know if others have seen this, and whether it is Kosher. Dr Om Sharma is supposed to be on the board of it. It is basically a survey of people with sarcoidosis. It is a welcome attempt to allow ...
- By priscurl · Posted August 7, 2008
- In Living with sarcoidosis · 6 recommendations
- I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...
- By Cartoon · Posted October 27, 2008
- In Living with sarcoidosis · 5 recommendations
- A couple of weeks ago I read a list of hilarious sayings and items on Sarcoidosis. I can't find the original post (how do you search anything here?) so I have reprinted it below. This post kept me and ...
- By Dawn1973 · Posted October 16, 2008
- In Living with sarcoidosis · 5 recommendations
- Hey All! Lets do something fun and productive! The holidays are fast approaching. Lets put on our thinking caps and share our best holiday recipes and make the holiday season even more special!!!! Heres ...
- By stephg113 · Posted October 8, 2008
- In Living with sarcoidosis · 5 recommendations
- Does anyone have an opinion about getting a flu shot? I was diagnosed in March of this year. Thanks Steph ...
- By brucath · Posted August 26, 2008
- In Living with sarcoidosis · 5 recommendations
- NOTE: THIS NEW DISCUSSION WAS SPAWNED FROM nickmd's discussion - "David R. Moller M.D./Johns Hopkins Sarc Researcher" Is Dr. Moller onto something??? Well, he's not the only one. Dr. Wonder Drake at Vanderbilt ...
- By Paradox · Posted August 11, 2008
- In Emotional support · 5 recommendations
- The loss of Bernie Mac is a sad thing and I, like so many others, recognize that there is less laughter in the world without him. I will miss his very down to Earth sense of humor. I know his passing ...
- By Lawrence · Posted April 24, 2008
- In Living with sarcoidosis · 5 recommendations
- It was a year ago next month when I was first admitted to the hospital with possible Lymphoma. I was very sick and going downhill fast according to all of my labs and X-rays. None of the diagnosiis looked ...
- By Two_Labs · Posted April 15, 2008
- In Symptoms · 5 recommendations
- Quick question for everyone...typically when diagnosed with sarc one has noncaseating granulomas. Has anyone actually has caseating granulomas instead when diagnosed with Sarc ...
- By seaokie · Posted September 12, 2008
- In Living with sarcoidosis · 4 recommendations
- A Learning Experience: I had a sudden idea to make the most out of a situation that I hate and have no control over. I got the notion in my head that the dermatology students at the nearby teaching university ...
- By jmaze · Posted September 6, 2008
- In Triggers · 4 recommendations
- Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...
- By Two_Labs · Posted August 17, 2008
- In Symptoms · 4 recommendations
- Found this great paper discussing musculoskeletal Sarc. Sarc can cause bursitis in the knees, feet, shoulders, etc. (All the joint pain and swelling) Most Rhuems use XRays to diagnose. Unfortunatley XRays ...