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Some Numbers About Involved Systems

Paradox
  • By Paradox · Posted July 5, 2008
  • In Symptoms · 12 recommendations
  • It seems that quite a few people bump into a problem with their specialists not being aware of what systems might actually be affected by sarc. Now, I could go into my woeful bemoanings about how society ...

Some thoughts on how to live with progressive sarc ....

harmles2
  • By harmles2 · Posted November 4, 2008
  • In Living with sarcoidosis · 11 recommendations
  • (I added to this near the end on 11-6-08) I thought I'd start this post to share thoughts on how we (I) live with progressive sarc, the kind most of us have here in our support community, many of you ...

Liturgical Dance for Sarcoidosis

Chakakhan1976
  • By Chakakhan1976 · Posted April 21, 2008
  • In Emotional support · 11 recommendations
  • Hello Everyone I am a member of the SC Liturgical Dance Network and on 04/26/2008 they will be having a worship service on the SC State house grounds to dance in intercession for those with Sarcoidosis ...

The Sarcoidosis Doctor Hall of Shame

theGardener
  • By theGardener · Posted October 2, 2007
  • In Living with sarcoidosis · 10 recommendations
  • The Sarcoidosis Doctor Hall of Shame I know its not very nice to pick on doctors; but what the hell, sometimes the little boogers ask for it... in spades. In my time on the website I have read the most ...

The GOOD NEWS thread...

theGardener
  • By theGardener · Posted February 8, 2008
  • In Living with sarcoidosis · 8 recommendations
  • Hello all, theGardener here. I would like to start a little experiment, I would like to start an ongoing thread of GOOD NEWS. Now as we all know, we primarily b*tch and gripe and moan about our disease ...

ANY FAMILY HISTORY OF OTHER AUTOIMMUNE DISEASES

the_dollinator
  • By the_dollinator · Posted May 27, 2008
  • In Living with sarcoidosis · 7 recommendations
  • Hi from Doll, A few doctors seemed surprised that I have Sarcoidosis, and that my mother died of Waldenstrom's Macroglobulinemia, and her brother had Lupus Erythmatosis (sp?). How about some feedback ...

New Legislation for Autoimmune Disease

daverojo77
  • By daverojo77 · Posted October 4, 2008
  • In Living with sarcoidosis · 6 recommendations
  • Patrick Kennedy introduced H.R. 7078. A bill that would help bring much needed attention for funding research and awareness for auto immune diseases. You would think with a war going on and the economy ...

WHY IS IT THAT MOST DOCTORS THINK OF SACOIDOSIS AS A LUNG DISORDER?

Krissy
  • By Krissy · Posted August 30, 2008
  • In Symptoms · 6 recommendations
  • I really feel so bad for anyone who has Sarcoidosis affecting their lungs. That is the case for 90% of diagnosed cases, I believe. It must be terrible, having to endure a lung illness. I am concerned ...

Sarcoidosis Registry

priscurl
  • By priscurl · Posted August 29, 2008
  • In Living with sarcoidosis · 6 recommendations
  • I don't know if others have seen this, and whether it is Kosher. Dr Om Sharma is supposed to be on the board of it. It is basically a survey of people with sarcoidosis. It is a welcome attempt to allow ...

How long have you had sarcoid?

priscurl
  • By priscurl · Posted August 7, 2008
  • In Living with sarcoidosis · 6 recommendations
  • I was wondering how long you all have been diagnosed with sarcoid. I also wondered whether you were expected to get better within two years of diagnosis. Doctors seem to assume that their sarcoid patients ...

The Funny Side of Sarcoidosis;)

Cartoon
  • By Cartoon · Posted October 27, 2008
  • In Living with sarcoidosis · 5 recommendations
  • A couple of weeks ago I read a list of hilarious sayings and items on Sarcoidosis. I can't find the original post (how do you search anything here?) so I have reprinted it below. This post kept me and ...

Sarcoidosis holiday cookbook!!!

Dawn1973
  • By Dawn1973 · Posted October 16, 2008
  • In Living with sarcoidosis · 5 recommendations
  • Hey All! Lets do something fun and productive! The holidays are fast approaching. Lets put on our thinking caps and share our best holiday recipes and make the holiday season even more special!!!! Heres ...

Flu Shot?

stephg113
  • By stephg113 · Posted October 8, 2008
  • In Living with sarcoidosis · 5 recommendations
  • Does anyone have an opinion about getting a flu shot? I was diagnosed in March of this year. Thanks Steph ...

Mycobacteria? Support/Promote the Research

brucath
  • By brucath · Posted August 26, 2008
  • In Living with sarcoidosis · 5 recommendations
  • NOTE: THIS NEW DISCUSSION WAS SPAWNED FROM nickmd's discussion - "David R. Moller M.D./Johns Hopkins Sarc Researcher" Is Dr. Moller onto something??? Well, he's not the only one. Dr. Wonder Drake at Vanderbilt ...

Pneumonia and Sarcoidosis

Paradox
  • By Paradox · Posted August 11, 2008
  • In Emotional support · 5 recommendations
  • The loss of Bernie Mac is a sad thing and I, like so many others, recognize that there is less laughter in the world without him. I will miss his very down to Earth sense of humor. I know his passing ...

Denial

Lawrence
  • By Lawrence · Posted April 24, 2008
  • In Living with sarcoidosis · 5 recommendations
  • It was a year ago next month when I was first admitted to the hospital with possible Lymphoma. I was very sick and going downhill fast according to all of my labs and X-rays. None of the diagnosiis looked ...

Noncaseating vs caseating granulomas

Two_Labs
  • By Two_Labs · Posted April 15, 2008
  • In Symptoms · 5 recommendations
  • Quick question for everyone...typically when diagnosed with sarc one has noncaseating granulomas. Has anyone actually has caseating granulomas instead when diagnosed with Sarc ...

Cutaneous sarcs: My contribution to science

seaokie
  • By seaokie · Posted September 12, 2008
  • In Living with sarcoidosis · 4 recommendations
  • A Learning Experience: I had a sudden idea to make the most out of a situation that I hate and have no control over. I got the notion in my head that the dermatology students at the nearby teaching university ...

Quick Survey about Sarcoid and Bacteria

jmaze
  • By jmaze · Posted September 6, 2008
  • In Triggers · 4 recommendations
  • Although I've had sarcoid for about 9 years, because of a recent flare up and feeling really lousy with a lot of trouble breathing I recently had a broncoscopy. My last was done with my initial diagnosis ...

Bursitis, XRays, MRs and Sarc; Musculoskeletal Sarc

Two_Labs
  • By Two_Labs · Posted August 17, 2008
  • In Symptoms · 4 recommendations
  • Found this great paper discussing musculoskeletal Sarc. Sarc can cause bursitis in the knees, feet, shoulders, etc. (All the joint pain and swelling) Most Rhuems use XRays to diagnose. Unfortunatley XRays ...

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