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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Active discussions
Calling ALL PEEPS from Greensboro, NC!!
- By KarenGSO · New reply yesterday at 11:42 pm
- In Emotional support · 8 replies
- I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...
Visit to Clev. Clinic - Incredible
- By Raleighnat · New reply yesterday at 11:14 pm
- In Treatment decisions · 19 replies
- I wanted to share my experience briefly regarding the Cleveland Clinic and the diagnosis / treatment plan for my case of sarc in the bone. Some have heard my history before, so I'll be brief: enlarged ...
Headaches and Nausea and Dizziness????
Sarcoidosis Awareness Group of Baton Rouge
- By LadyBugDucre · New reply yesterday at 10:42 pm
- In Emotional support · 3 replies
- Hello All, Tonight was my very first time attending a support group meeting. It literally warmed my heart to know that I have allies in this journey. Living with this disease is not easy but God knows ...
Remicade
- By B-faithful · New reply yesterday at 10:40 pm
- In Treatment decisions · 5 replies
- Hello everyone, my insurance approved to pay for the Remicade. Im suppose to start the treatment in a couple of weeks. Im a little concern about the side effects, but 4 of my doctors stated the side effects ...
Meetin up Locally after the holidays
- By TCALL · New reply yesterday at 10:38 pm
- In Living with sarcoidosis · 9 replies
- A thought crossed my mind as well as others have had the same thought. It would be nice if there was a local meeting of some of us on this site to sorta have like a meet and greet! some where its permitting ...
a grateful day
- By jon-with-no-h · New reply yesterday at 10:27 pm
- In Emotional support · 13 replies
- To my fellow sarckies... Today I humble and gratefully celebrate four years of sobriety thanks to the simply program of AA. One day at a time. jon ...
Vitamin D deficiency
diet soda/aspartame and sarc?
- By wannabecate · New reply yesterday at 9:38 pm
- In Triggers · 10 replies
- hi! i'm new to the board and i have a question about my husband. he was diagnosed with sarcoidosis about 14 months ago, and like everyone has his ups and downs. one thing that i was wondering is if anyone ...
Need your input, please
- By Tashabella · New reply yesterday at 7:47 pm
- In Symptoms · 10 replies
- I have sarcoidosis in my lymph nodes so I know about this, but there's something I'm not sure about. I was wondering if any of you know the answer to this question. My friend's husband has undergone a ...
Hello. My name is Moe, and I have sarcoidosis
- By MoeLung · New reply yesterday at 7:05 pm
- In Living with sarcoidosis · 16 replies
- I'm new here and just joined. I was diagnosed this past July, after more than a year of dry cough and SOB (I love that acronym ... either 'sons of bitches' or 'shortness of breath'). During the year prior ...
Low Vitimin D
- By kassl · New reply yesterday at 6:57 pm
- In Treatment decisions · 8 replies
- Soooo... I found out April 09 that I had pulm Sarc. I went through all the same stuff. GI,Oncology, Cardio Surgeon... In May I started on prednisone and Methotraxcate. I recently went to a pulm that specializes ...
Bone Sarcoid
- By janepauline · New reply yesterday at 6:55 pm
- In Symptoms · 32 replies
- I think I may be developing sarcoid in my bones. My ankle is really painful and it feels as though it is in the distal bone end. Does anyone else have bone sarcoid? What are the symptoms and how were ...
Would anyone like to join me in a 9 day Novena to find a cure for Sarc?
- By IreneMarie · New reply yesterday at 6:48 pm
- In Living with sarcoidosis · 17 replies
- A novena is a very short 9 day prayer (the lenght of time they waited in the Upper Room) for a special intention of ours for Mary our Heavenly Mother to bring in intercession before God, for us her earthly ...
Erythema Nodosom cures
- By Giggles0318 · New reply yesterday at 4:53 pm
- In Treatment decisions · 7 replies
- I first got Erythema Nodosom on my legs in 9/2008, along with granulomas in my lungs, coughing so bad I thought I'd choke to death. My asthma worsened, and I was tired a lot... I was prescribed prednisone ...
Just started on imuran (azothiaprine)
- By janepauline · New reply yesterday at 4:45 pm
- In Emotional support · 27 replies
- I am feeling really down today. I have been on my new tablet for 7 days now and I feel sick and tired. It is not as bad as the methotrexate, no where near. But I was hoping I would feel better not worse ...
Anyone ever go into remission a 2nd time???
- By teeteeme · New reply yesterday at 4:44 pm
- In Living with sarcoidosis · 19 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
Good News! Approval for Remicade..Finally
- By Minneyshoes · New reply yesterday at 3:58 pm
- In Treatment decisions · 9 replies
- Last year I was turned down for Remicade by Medicare and some assistance programs. This year I was looking on line and found Janssen Ortho Patient Assistance Foundation and I applied and was approved ...
Splenectomy
- By tishee · New reply yesterday at 1:01 pm
- In Treatment decisions · 9 replies
- After feeling the way I have for so many months, I decided to excersize my option for having my spleen removed next week. I have my sarcoid primarily in my spleen. Years ago I had mono, and the symptoms ...
Collecting symptoms
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
