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Active discussions
Renal Sarcoidosis, what does that mean?
- By Brandie228 · Posted 10:50 pm
- In Living with sarcoidosis · 0 replies
- This whole thing with the Sarc has me more than a little lost. I don't know yet how to process all of the information out there. I'm trying to understand this disease and what it means for me. I was diagnosed ...
cold and hot feelings
- By HopeNicole · New reply 10:50 pm
- In Living with sarcoidosis · 4 replies
- My hands stay so cold! Esprcially at nite. I just asked my son to look for me a pair of gloves to wear while I type. My feet are cold alot to but not as much as the hands. Also sometimes wen I lay down ...
Contacts and uveiitis?
- By pearlsnowflake · New reply 10:47 pm
- In Living with sarcoidosis · 1 reply
- Just wondering if anyone with uveitis can wear contacts. One eye doc tells me forget about it those days are over and another has told me it is not a problem when there is no inflammation present in the ...
Chest CT Images
- By mvaughn1018 · New reply 10:31 pm
- In Treatment decisions · 2 replies
- I had another chest ct scan with and without contrast. I have the images and looked at them. Of course, my education is in accounting and not medicine; (I have no idea what I'm looking at). I was looking ...
Chamberlain Procedure ...years later??
- By Mchristianson · New reply 10:22 pm
- In Help desk · 1 reply
- Hello. I was wondering if anyone else has ever had this happen to them? I had the Chamberlain Procedure done 2/2008 and was diagnosed with sarc at the time. Now every time I cough my chest wall inflates ...
Not Sure What to do. Thoughts and Opinions Please!
- By ashphalt · New reply 9:38 pm
- In Living with sarcoidosis · 8 replies
- I went to see my doctor this morning due to a sore throat and plugged nose. He checked it out and said it is not H1N1. Don't have the symptoms but have some from my sarc. I asked him about getting the ...
Anyone ever go into remission a 2nd time???
- By teeteeme · New reply 8:54 pm
- In Living with sarcoidosis · 3 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
Track your test results with my new String Chart
- By IreneMarie · New reply 8:17 pm
- In Symptoms · 16 replies
- My String Flow Chart for tracking blood testing results is finally ready for uploading. It takes a little bit of patience to modify this Excel spread sheet, but on a rainy day it's rather like a game ...
Muscle cramps anyone?
Does anyone get flu like symptoms?
- By silvercivic · New reply 6:40 pm
- In Symptoms · 40 replies
- I have a feeling like I have a bad case of the flu minus any temperature.....chills and just feeling rotten. I just want to lie down and try to cope with it. If anyone else suffers from this....are these ...
please help a new comer
- By Akhilluvs · New reply 4:51 pm
- In Living with sarcoidosis · 7 replies
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
remicade
- By Cakebaker · New reply 11:38 am
- In Treatment decisions · 9 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
really good book
- By tishee · New reply 10:41 am
- In Emotional support · 16 replies
- Did anybody read the book written by Karen Duffy ( "Duff" vj from vh1 in the 90's) It was such a good book for us sarkies. She came down with it in her early 30's. It helped me alot in the beginning ...
Sarcoid specialist in VA,MD,NC
- By steelerfan · New reply 10:40 am
- In Treatment decisions · 4 replies
- I have been told by my pulmonologist to seek advice on my spleen from a sarcoid specialist. Of course that is easier said than done. Any ideas in this area of dr's who specialize in sarcoid, especially ...
Fatigue
Today My Oncologist told me he was fairly certain I have sarcoidosis
Sarkie sweats confirmed
Positive ACE blood test - High Levels - Sarcoid?
- By gkygrl · New reply yesterday at 10:44 pm
- In Living with sarcoidosis · 3 replies
- Hi, my name is Diana and I am brand new to this community and very active in MS communities with a blog and active on "Patients Like Me". I am kind of an autoimmune marvel -- I bet many of you can relate ...
what to do?
What if anything can be used to fight sariodious?
- By Newl · New reply yesterday at 6:37 pm
- In Treatment decisions · 4 replies
- I hate the idea of Prednisone Can anyone tell me what else is used to treat Sarc I have it in my lungs and surrounding chest area. So far tried to avoid treatment but not sure I can. I would like to get ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
