Discussions

Waiting for dx. Maybe it's sarcoidosis.

EnigmaticMelissa
  • By EnigmaticMelissa · Yesterday at 11:31 pm
  • In Symptoms · 0 replies
  • I am wondering if people will post a reply with their symptoms of sarc when they were diagnosed. I have a liver disease that I've known about for a few years now that is been well controlled. In May I ...

Koilonychia

priscurl
  • By priscurl · Yesterday at 9:46 pm
  • In Symptoms · 0 replies
  • Hi, Has anyone else out there suffered from koilonychia, which is a flattening or spooning of the nails? I have it for the second time. Has anyone else had a helicobacter pylori infection or been diagnosed ...

DEPRESSION

chanelbenorr
  • By chanelbenorr · Yesterday at 9:02 pm
  • In Living with sarcoidosis · 1 reply
  • I HAVE BEEN SO DEPRESSED LATELY FROM DEALING WITH THE SARCOID. I HAVE GAINED 50 POUNDS AND FEEL LIKE A BIG, FAT, BLIMP. I FEEL TIRED AND ACHY ALL THE TIME. I KNOW ALOT OF YOU FEEL THE SAME WAY. HOW DO ...

Whats with the computer template at the doc's office?

micheleb
  • By micheleb · Yesterday at 3:59 pm
  • In Living with sarcoidosis · 5 replies
  • Sorry if this comes off as a doctor bashing thread but I just had a terrible appointment and really just must vent!! So, besides the sarc, it appears I have some endocrine issues as well, not sure if ...

LYMP NODES

minheard
  • By minheard · Yesterday at 9:50 am
  • In Treatment decisions · 0 replies
  • FOR THE PAST WEEK I HAVE BEEN TREATED WITH ANTIBIOTICS, FOR AN INFECTION IN MY BODY MY PULMONOLOGIST SAID SHE GAVE ME A INJECTION OF ROBOCHEPHIN I THINK AND I FELT BETTER. THE PAIN IN MY RIGHT ARMPIT ...

for the spouses and partners out there

IrishPerez
  • By IrishPerez · August 27, 2008
  • In Living with sarcoidosis · 5 replies
  • In this day and age, it is almost a badge of honor to be a "Military Wife" because these two words let the world know the sacrifices that you make everyday of your life. I am a military wife. For me ...

Moving to Wilmington NC

smurph
  • By smurph · August 27, 2008
  • In Treatment decisions · 0 replies
  • My husband and I have finally decided that enough is enough and we are moving down to NC in 6 months. The rather rapid deterioration of my body has made me take stock in what is important in life and ...

How much better is realistic?

micheleb
  • By micheleb · August 27, 2008
  • In Living with sarcoidosis · 4 replies
  • I have been thinking, which is a feat in itself some days! LOL!! Just how good can we realistically expect to get? I work for a local eye doctor and get to know a lot of our patients and in return, they ...

Tv shows, sarcoidosis and wegeners

micheleb
  • By micheleb · August 27, 2008
  • In Living with sarcoidosis · 4 replies
  • So I was watching some reruns of House last night and believe it or not, they actually mentioned sarcoidosis in two back to back episodes!!! Of course, neither patient in either episodes actually had ...

What other tests can be done?

notes4me
  • By notes4me · August 27, 2008
  • In Living with sarcoidosis · 4 replies
  • Kinda new to this site. I'm not good talking about such private matters with others, but I am at a loss as to what to do now. I recently went to see the rheumatologist I was seeing 7 yrs. ago. I have ...

SARCOIDOSIS AWARENESS DAY IN THE UK 6TH OCTOBER 2008

DavidWright
  • By DavidWright · August 27, 2008
  • In Living with sarcoidosis · 8 replies
  • We are hoping to stage a "Sarcoidosis Awareness Day" in the UK on 6th October 2008 when parliament returns from their holidays. We intend to email many of the departments within the government in an attempt ...

Aches And Pains

I_Have_This_Disease2
  • By I_Have_This_Disease2 · August 27, 2008
  • In Symptoms · 4 replies
  • My body have so much pain when I cough it seems that my chest want to spit open, I try to hold the cough back so it wont come but when it do I hurt so bad the pain takes over my breath were its makes ...

TNF Blockers

sarcoidjeff
  • By sarcoidjeff · August 26, 2008
  • In Treatment decisions · 5 replies
  • When I last saw my pulmonologist he raised my weekly dose of methotrexate to 20mg a week, and kept my prednisone at 25mg daily. (he doesn't want to raise the pred as I have been on it for almost three ...

Disablility Leave from work due to Sarcoid?

stopsarcoid
  • By stopsarcoid · August 26, 2008
  • In Living with sarcoidosis · 12 replies
  • My husband is in so much pain and suffers from great fatigue that he can hardly make it through an 8 hour day at work. Has anyone needed to leave work due to Sarcoid? If so, tell me about your experience ...

insurance and sarcoidosis?

stellablue
  • By stellablue · August 26, 2008
  • In Treatment decisions · 3 replies
  • A friend of mine was found to have some swelling of lymph nodes in the lower lungs following an x-ray taken prior to an unrelated surgery. She has not yet investigated further but she and the doctor are ...

Mood Swings

lkm
  • By lkm · August 26, 2008
  • In Living with sarcoidosis · 6 replies
  • Hi, my husband was diagnoised with sarc about 6 months ago and has been on prednizone ever since. He now tappering off. He is at 12mls. But he is still having terrible mood swings. Does anyone have this ...

Blood shot eyes

Pataim
  • By Pataim · August 26, 2008
  • In Symptoms · 7 replies
  • I was only diagnosed last week and just learning about sarc. I see a specialist this week to find out more. Does anyone suffer from blood shot and dry eyes? People for years were always asking if I was ...

Once again into the scanner, dear friend

ellishamilton
  • By ellishamilton · August 26, 2008
  • In Treatment decisions · 6 replies
  • The Doc that did my lung biopsy saw me last week. I've been having a few neck problems and other nerve type symptoms that only a sarc patient could understand. "I'm ordering some lab tests, a visit to ...

Mycobacteria? Support/Promote the Research

brucath
  • By brucath · August 26, 2008
  • In Living with sarcoidosis · 10 replies
  • NOTE: THIS NEW DISCUSSION WAS SPAWNED FROM nickmd's discussion - "David R. Moller M.D./Johns Hopkins Sarc Researcher" Is Dr. Moller onto something??? Well, he's not the only one. Dr. Wonder Drake at Vanderbilt ...

Gardner?What's up with the new pic?

Pat-y
  • By Pat-y · August 25, 2008
  • In Family and friends · 10 replies
  • TeeGee, I know that I'm new to the support group and may not know how everything is done but when I read your posts I imagine you doing all those crazy things as the person in your picture. I like to ...

Search

Find information and discussion about health topics in 228,508 posts by members like yourself. Learn more...

Join

Join safe, secure groups sponsored by trusted organizations that care about your health. Learn more...

Connect

Connect with 61,696 members and make friends who share your interests, learn about conditions and treatments, find support and more. Learn more...

You

Send your feedback to Inspire

About

The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.