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Discussions

NY/NJ/CT area Support Group

kimmarc
  • By kimmarc · Posted 9:15 am
  • In Emotional support · 0 replies
  • Hi All, I spoke with the liason at Mt. Sinai. They have a support group for Sarc there and you do not have to be a patient to go to the group. The next meeting is Saturday, December 5th @11am. It is located ...

diet soda/aspartame and sarc?

wannabecate
  • By wannabecate · Posted yesterday at 10:17 pm
  • In Triggers · 9 replies
  • hi! i'm new to the board and i have a question about my husband. he was diagnosed with sarcoidosis about 14 months ago, and like everyone has his ups and downs. one thing that i was wondering is if anyone ...

a grateful day

jon-with-no-h
  • By jon-with-no-h · Posted yesterday at 2:32 pm
  • In Emotional support · 11 replies
  • To my fellow sarckies... Today I humble and gratefully celebrate four years of sobriety thanks to the simply program of AA. One day at a time. jon ...

sarcoid & osteoporosis

silcyc
  • By silcyc · Posted yesterday at 2:04 pm
  • In Treatment decisions · 0 replies
  • I was diagnosed about a year ago with sarcoid and have learned a lot especially from this site. I'm a new member so am not sure if this has been previously addressed. I know not to take vit D or calcium ...

smoking cigerettes with sarco......

tatiana1420
  • By tatiana1420 · Posted yesterday at 1:50 pm
  • In Emotional support · 3 replies
  • hello everyone i would like to know does nayone with the sarcoid smoke cigerettes ? i quit when i first found out about the sarcco in july but have picked it back up nowdue to my depresstion i know it ...

Small Airway sarc

RedBeard
  • By RedBeard · Posted yesterday at 1:01 pm
  • In Treatment decisions · 1 reply
  • I have been diagnosed with sarc in the small ariways of my lungs. I have been treated so far with high doses of predisone & azathioprine. No improvement. My doctor has informed me that the sarc I have ...

Calling ALL PEEPS from Greensboro, NC!!

KarenGSO
  • By KarenGSO · Posted yesterday at 10:35 am
  • In Emotional support · 2 replies
  • I have just started a new support group and I am hoping to find a group of you guys on here in Greensboro (I CAN’T be the ONLY Sarkie here in Greensboro!). You have all been a WEALTH of knowledge and ...

NEED INSURANCE

bashajaye
  • By bashajaye · Posted yesterday at 10:26 am
  • In Living with sarcoidosis · 2 replies
  • I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...

NEED INSURANCE

bashajaye
  • By bashajaye · Posted yesterday at 10:26 am
  • In Treatment decisions · 0 replies
  • I have sarcoidosis and need insurance. I have applied with Aetna and they turned me down. Any ideas ...

Meetin up Locally after the holidays

TCALL
  • By TCALL · Posted yesterday at 10:20 am
  • In Living with sarcoidosis · 7 replies
  • A thought crossed my mind as well as others have had the same thought. It would be nice if there was a local meeting of some of us on this site to sorta have like a meet and greet! some where its permitting ...

H1N1 Vaccine

bashajaye
  • By bashajaye · Posted yesterday at 9:03 am
  • In Living with sarcoidosis · 7 replies
  • I am trying to decide if I want to take a swine flu shot. I've always taken the regular flu shot. What do you guys think ...

Remicade

B-faithful
  • By B-faithful · Posted November 18, 2009
  • In Treatment decisions · 3 replies
  • Hello everyone, my insurance approved to pay for the Remicade. Im suppose to start the treatment in a couple of weeks. Im a little concern about the side effects, but 4 of my doctors stated the side effects ...

Splenectomy

tishee
  • By tishee · Posted November 18, 2009
  • In Treatment decisions · 9 replies
  • After feeling the way I have for so many months, I decided to excersize my option for having my spleen removed next week. I have my sarcoid primarily in my spleen. Years ago I had mono, and the symptoms ...

Sarcoidosis Awareness Group of Baton Rouge

LadyBugDucre
  • By LadyBugDucre · Posted November 18, 2009
  • In Emotional support · 2 replies
  • Hello All, Tonight was my very first time attending a support group meeting. It literally warmed my heart to know that I have allies in this journey. Living with this disease is not easy but God knows ...

Hello. My name is Moe, and I have sarcoidosis

MoeLung
  • By MoeLung · Posted November 18, 2009
  • In Living with sarcoidosis · 15 replies
  • I'm new here and just joined. I was diagnosed this past July, after more than a year of dry cough and SOB (I love that acronym ... either 'sons of bitches' or 'shortness of breath'). During the year prior ...

Headaches and Nausea and Dizziness????

Jrs_Mom
  • By Jrs_Mom · Posted November 18, 2009
  • In Symptoms · 7 replies
  • Can anyone share with me whether or not severe headaches, nausea and dizziness are a factor with Sarcs? Is it a symptom of neurosarcs? My son, has Sarcs in his lungs and for awhile they thought it was ...

Low Vitimin D

kassl
  • By kassl · Posted November 18, 2009
  • In Treatment decisions · 7 replies
  • Soooo... I found out April 09 that I had pulm Sarc. I went through all the same stuff. GI,Oncology, Cardio Surgeon... In May I started on prednisone and Methotraxcate. I recently went to a pulm that specializes ...

Erythema Nodosom cures

Giggles0318
  • By Giggles0318 · Posted November 18, 2009
  • In Treatment decisions · 7 replies
  • I first got Erythema Nodosom on my legs in 9/2008, along with granulomas in my lungs, coughing so bad I thought I'd choke to death. My asthma worsened, and I was tired a lot... I was prescribed prednisone ...

TIAs

grammy5
  • By grammy5 · Posted November 18, 2009
  • In Symptoms · 6 replies
  • My 29 year old son had been working out like he does every day. He had a bit of a headache but it got worse after his work out. His left arm felt numb and he was having trouble seeing. It seemed to ease ...

Need your input, please

Tashabella
  • By Tashabella · Posted November 18, 2009
  • In Symptoms · 9 replies
  • I have sarcoidosis in my lymph nodes so I know about this, but there's something I'm not sure about. I was wondering if any of you know the answer to this question. My friend's husband has undergone a ...

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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