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Discussions
Chamberlain Procedure ...years later??
- By Mchristianson · Posted 6:01 pm
- In Help desk · 1 reply
- Hello. I was wondering if anyone else has ever had this happen to them? I had the Chamberlain Procedure done 2/2008 and was diagnosed with sarc at the time. Now every time I cough my chest wall inflates ...
Chest CT Images
- By mvaughn1018 · Posted 4:36 pm
- In Treatment decisions · 2 replies
- I had another chest ct scan with and without contrast. I have the images and looked at them. Of course, my education is in accounting and not medicine; (I have no idea what I'm looking at). I was looking ...
Contacts and uveiitis?
- By pearlsnowflake · Posted 1:34 pm
- In Living with sarcoidosis · 0 replies
- Just wondering if anyone with uveitis can wear contacts. One eye doc tells me forget about it those days are over and another has told me it is not a problem when there is no inflammation present in the ...
Anyone ever go into remission a 2nd time???
- By teeteeme · Posted 9:28 am
- In Living with sarcoidosis · 3 replies
- What I don't get, is that when someone has "cancer" its a horse of a differnet color! Then they can come out and talk about it, everyone wants to listen.There is no new info, what do they want to hear ...
cold and hot feelings
- By HopeNicole · Posted yesterday at 10:53 pm
- In Living with sarcoidosis · 3 replies
- My hands stay so cold! Esprcially at nite. I just asked my son to look for me a pair of gloves to wear while I type. My feet are cold alot to but not as much as the hands. Also sometimes wen I lay down ...
Sarkie sweats confirmed
Not Sure What to do. Thoughts and Opinions Please!
- By ashphalt · Posted yesterday at 2:13 pm
- In Living with sarcoidosis · 8 replies
- I went to see my doctor this morning due to a sore throat and plugged nose. He checked it out and said it is not H1N1. Don't have the symptoms but have some from my sarc. I asked him about getting the ...
Fatigue
A Legacy of Love
- By IreneMarie · Posted yesterday at 11:47 am
- In Living with sarcoidosis · 0 replies
- http://www.wgrz.com/news/local/story.asp x?storyid=71668&provider=gnews An article about a family dealing with young son's Sarc diagnosis and sad outcome. Together we ARE better ...
please help a new comer
- By Akhilluvs · Posted yesterday at 11:14 am
- In Living with sarcoidosis · 7 replies
- Hi , I am 25 , married and was diagnosed about 2 and a half months back with sarcoidosis, Dont know much about that as being an Indian in India i never heard of it , after came to Ukraine and lived here ...
Positive ACE blood test - High Levels - Sarcoid?
- By gkygrl · Posted yesterday at 10:27 am
- In Living with sarcoidosis · 3 replies
- Hi, my name is Diana and I am brand new to this community and very active in MS communities with a blog and active on "Patients Like Me". I am kind of an autoimmune marvel -- I bet many of you can relate ...
uveitis??
remicade
- By Cakebaker · Posted November 5, 2009
- In Treatment decisions · 9 replies
- my pulmonologist wants me to see a reumy and start with remicade infusions. Does anyone here currently do this? What side effects have you had and does it seem to be effective? I have sarcoid in my lungs ...
Rheumatologist in the Raleigh/Cary NC area
- By pfehrman · Posted November 5, 2009
- In Treatment decisions · 2 replies
- I need a new rheumatologist, but I'm having a terrible time finding a good one. I keep getting referred to this one female rheumy that I didn't get along with at all and I don't want to return to her ...
Sarcoid specialist in VA,MD,NC
- By steelerfan · Posted November 5, 2009
- In Treatment decisions · 4 replies
- I have been told by my pulmonologist to seek advice on my spleen from a sarcoid specialist. Of course that is easier said than done. Any ideas in this area of dr's who specialize in sarcoid, especially ...
Baughman from Cincinnati, OH
- By mvaughn1018 · Posted November 5, 2009
- In Treatment decisions · 3 replies
- Due to my recent ER visit, my pulmonologist is getting a second opinion. He is referring me to a Dr. Baughman in Ohio. I'm sure there's someone out there that can share their experience and recommendations ...
what to do?
Dry eyes
Track your test results with my new String Chart
- By IreneMarie · Posted November 5, 2009
- In Symptoms · 16 replies
- My String Flow Chart for tracking blood testing results is finally ready for uploading. It takes a little bit of patience to modify this Excel spread sheet, but on a rainy day it's rather like a game ...
Hospital visits
- By tishee · Posted November 5, 2009
- In Treatment decisions · 7 replies
- Hi guys. After I was diagnosed with sarc. I have been in the emergency room over 9 times this summer. Mostly stomach issues, and usually because I am hypercalcemic. I am not sure I even understand what ...
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
