0 Recommendations
Can anyone please help...I just got my spinal tap results and it diagnoses me with MS. Is this possible? I have Graves, Sarcoid and now MS...Is there anyone else in the same boat?
Thanks
Helen
Can anyone please help...I just got my spinal tap results and it diagnoses me with MS. Is this possible? I have Graves, Sarcoid and now MS...Is there anyone else in the same boat?
Thanks
Helen
I was diagnosed with MS about 3 years ago and I was just recently diagnosed with Pulmonary Sarcoidosis. I joined this site about a week ago and I did a search to see if anyone else also had MS and I didn't find any comments or blogs. I thought I was the only one that had both. I's sorry to hear that you also have Graves. Wow! All three. That is just incredible. How long ago were you diagnosed with Sarcoid? Where is the MS affecting you? Mine is mainly in my eyes (optic neuritis) with memory, and other problems. It has affected my left side the most. And my vision is slowly leaving me. I can't believe how much vision I have lost in the last few years. I'm on Betaseron injections every other day. Did they mention taking interferon to you when you were diagnosed with MS? I really do think that it helps a lot. It has a lot of side effects but it seems worth it. I am pretty stable right now with only one or two episodes a year. Being diagnosed with Sarcoidosis actually seemed like a blessing since they thought I had lymphoma. I was really scared that I had cancer. Well anyway, I will keep you in my prayers and I hope to hear from time to time how you are doing.
Blessings,
Nancy
Hi Nancy,
Are you sure you do not have neurosarcoidosis? My Dr's are confussed that it may be just neurosardoid but I had gamma bands show up in the spinal fluid. I am still being diagnosed because they do not know how to treat me. Thank you for your prayers and you are all in mine.
Blessings,
Helen
Hi, Helen.
The key to the three disorders you have is that they're all autoimmune. I have two autoimmune disorders: sarcoidosis and CIDP (the latter being very similar to MS, except that whereas in MS it's the central nervous system that's involved, in CIDP it's the peripheral nervous system). It seems that, if the immune system goes haywire in one way, there's a propensity for it to go haywire in other ways.
For a list of autoimmune disorders and other good information, you might like to visit www.aarda.org--the American Autoimmune-Related Diseases Association.
Best wishes in the battle,
Deb
London
I have recently been working with a Neurologist to sort out my new issues with neuro sarc. During our first meeting she mentioned to me that she was aware that neuro sarc can be misdiagnosed as MS.
If you need info on neuro sarc you can click on the FSR logo on the top right and it will take you to a section that will lead you to information on sarc and details on symptoms you might experience.
Self educations is really important and comforting.
Take Care.
Denise
Hi NYgirl --
When I was first diagnosed with Pulmonary Sarcoidosis I asked the same question. I wondered if I had been misdiagnosed with MS a few years ago. It turns out I do have both. My MS was diagnosed because of the extreme optic neuritis in both eyes (unrelenting until betaseron). I guess some people just get all the luck. I hope your doctors get your conditions sorted out. So far, my pulmonary doctor does not impress me. I'm hoping to find a doctor in the San Francisco Bay area that actually knows something about sarc. Good luck with your doctors.
Blessings,
Nancy
Thank you to all that responded but I have been put of comission for 2 days..I have headaches that seem like my head was hit by a sledgehammer. I can not get up and it is very hard to deal with when you have two kids that are very active do not understand what is "wrong with mommy",
I will be going to Mt. Sinai to see Dr. Padilla for the Sarc and I have an appt with a Dr. Miller for the MS. They hopefully will be able to help diagnose me because my Dr's hear on the Island can not confirm it is Ms or Neurosarc.
I wish everyone painfree days and may God Bless
Hi, me too... diseases are piling up. I have Autoimmune Polyglandular Disease, RA, Myalgias, High Blood Pressure (from steroid use) and Gastroparesis.
I'm having all kinds of trouble with meds not digesting and have lost all my hair because my thyroid meds are not absorbing. Steroids melt in your mouth so those levels are OK.
I've been suffering since before April (diagnosed with GP). Nothing seems to be working right. Grrr...
I take it day-by-day and most of the time it just sucks.
I have a cold and guess I'm in a bad mood, sorry.
Add to the discussion