Will these night sweats ever go away?

Hello All,
I am down to 5mg/day of Prednisone. The next two weeks I will do half a tablet/day and then I will be completely weaned off the Pred. Unfortunately, I still suffer from the night sweats. This has been my first bout of Sarc ( I have pulmonary sarc) Does anyone else have issues with the sweats even when the Sarc is in remission? I assumed that since the Sarc is not active, the sweats would disappear but they have not. Does anyone have any insight?

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Margie,
I was dx in 2001 with neurosarc and was originally on pred. After weaning off and getting on methotrexate my night sweats continued so I pursued this problem with my neurologist. It was determined that I had sleep apnea. I have used a CPAP breathing machine at night since then and the only time I have night sweats now is when I don't use my machine. I hope this is not your problem, but something to consider.
God Bless, Rod

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Margie,

Your adrenal gland can play a large role in sweating. Prednisone affects adrenal gland big time, so I would say give it some more time. Your body/adrenal gland is adjusting to doses. I would say give it about 3wks of completely being off Pred., then if you still have sweating issues...talk to doc about it. Just a suggestion. I hope it goes away soon. I am thrilled (& jealous ; ) that you are able to get off Pred & are in remission! - Jayne

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I think an ACTH will help the doc determine if your adrenals have started producing natural cortisol again. It may take some time. Have you had a thorough exam by an Endocrinologist?
Have you had a complete panel of inflammatory markers done to confirm your Sarc is inactive and that your Pred taper timing is optimal? (not just ACE)

Regards,
I.

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I find that blavk kohosh helps with the night sweatys a lot. Aslo try a frozen ice pack under your pillow at night. I find they both help a great deal. :)

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Sorry! I meant black cohosh. :)

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Not sure what you age is, but it may be hormone related. The pred has increased my night sweats even with hormone treatment, but you may want to have that checked.

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I go to National Jewish for treatment. First question, every visit, do you have night sweats? If the answer is yes, the "that's not good" look is given. When I ask about decreasing the meds...when the symptoms are gone is the answer. I would question if you're ready for a decrease in pred.

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I've been in remission for 9 mos....I feel great, but night sweats are still there, even sleeping naked on a chilly night with no blankets! That reminds me...I have to wash sheets and pillow cases today!

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My night sweats only lasted a few weeks, before I was diagnosed, and before I had any medication. That was 5 years ago, and they never came back. Best of luck to you.

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Howdy from Tx. I was Dx with systemic Sarc in 1997after a Hiatel Herniah Repair. The Doctor saw lesions and ganulomas all over he said and proceeded with biopseys and exploratory surgery. I have suffered with night sweats for so long I can't remember when I woke up in a dry bed last! I have used the ice trick, sleeping in the buff with all my fans blowing full blast and even opened windows in the middle of winter! I still sweat. If anyone else has a suggestion out there it would be appreciated. Also if anyone knows of a good Sarcoid Specialist in the DFW region and a support group ( I am in Burleson,Tx) I would love to hear from you! God Bless, David

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