try to keep the faith

• By gonenatural
• Posted November 6, 2008 at 9:25 am
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Hi Sarcoid Buddy,

My daughter's did not read the info I sent them when I knew I had sarc, before I was officially dx'd and they didn't read it. Momma's sick with something else, again.
When dx'd 1 daughter asked for me to resend it and another asked this wk. My oldest daughter was always supportive, my middle daughter is now much better and my youngest, 18, is learning. She is the one who asked for me to resend the info.
Now my middle daughter wants to spend Thanksgiving at my home instead of me driving there and it is ok if I am in pj's and on the couch. She understands I can't chase my granddaughter around and knows it kills me not to be able to pick her up anymore, tears. Her hubby goes with the flow, thank goodness, and is good to me.
My companion does pretty good at being a caretaker even if he doesn't think so. Last night when he came home I was asleep on the couch and my L leg must have been straight for a while and when I woke up in was in SO much pain I was screaming and then he said, maybe you belong in a nursing home, ouch. I needed someone to bend my knee so the worst of the pain would leave quicker.
It took time but I finally got through to all my girls.
Now for them to find out I am sick, oh boy. I will wait until next week to tell them when I learn more myself.

Take Care,
Gone Natural

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• By cemdupree
• Posted November 6, 2008 at 10:05 am
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I have been very blessed in the area of support. My husband and children have been there for me every step of the way!. With that said they still dont realize the complications that I have from day to day. Some days are good and I have no complications. Other days I feel I can hardly go on. My husband can not stand to be idle. We both work regular jobs Monday - Friday. On Saturdays and Sundays he thinks we have to be on the go constantly and those of you with sarc know how hard that is. Our daughter lives 75 miles in one direction and his parents 70 in the opposite direction. We usually wind up at one of the other almost every weekend. The last time we were at his parents I slept most of the time, I was just soooo drained. When we go to our daughters we are always out looking, shopping or out and around doing something. When I get home I collapse and just about do not make it to work on Monday Morning. They just do not realize how much Sarc drains out of you. They have the idea that you have to make your self get up and go. Well that just isnt how it works. I kept telling them I was tired and drained. My check up this week with my Family Doctor revealed and am Anemic, He has ordered further test to determine what is causing it. Maybe when we find out we can treat it and I can get up some energy.
Soooo I thank God I found this website! People are so supportive and I can learn and lean on them .
Hang in there and I hope you feel better soon!

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