i haven't officially been diagnosed yet, but my doctors are leaning towards it. i'm getting an mri thus week and they are going to biopsy my lacrymal glands next week to get the diagnosis. my biggest symptom is a tight band of tension starting where my underwire (on bra) is and goes down to just below my bellybutton. this excruciating constriction gets worse throughout the day as im on my feet. it only feels bearable if iam lying down (this leads to unproductive days...) also i have numbness (altough my doc does not consider it numb because i can feel pin pricks and light brushing)
or a loss of feeling all through this same area. i havent heard or read of anyone having this same symptom w/ sarc. to give a recap of my illness:
starting 1st week in may 08
numbness on rt hip
spreads to whole abdomen.
tightness around waist
weakness in knees/legs (need to hold on to railings)
floaters in eyes
swollen lacryml glands(tear glands in eyelids)
minor/sporadic headaches/ nausea
pins&needles in fingertips, hands and toes
glands in jaw hinge swollen
lymph nodes in chest swollen (CT scan)
white spots on retina
has anyone experienced similiar symptoms?
and secondly....is anyone using alternative methods (in addition to medical) to help heal themselves; acupuncture, diet, herbs, homeopathy?????
any comments appreciated!