Sudden Dizzy Spells

I don't know if what's been happening lately is a new symptom or something else entirely. I'll be standing , doing nothing in particular, when I'm suddenly overcome with dizziness so severe that if I don't hold onto something I'm headed for the floor. It doesn't last long, but it's enough to scare the heck out of me. Afterward I feel just fine. Went to the cardiologist not too long ago and he said the tests were all great and my heart is fine. My blood pressure is good, and my tests in general are pretty much normal.
Not sure where to go with this. Any ideas, similar symptoms or suggestions? I'm really nervous about this one.

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I have that, too. Maybe 5-6 times a yr. It lasts only a about 5 seconds or so, but that's enough time to have a an auto accident - twice that almost happened. It is so profound you feel upside down. Sometimes they are milder where suddenly I start leaning sideways and have to grab a wall. Then once in a blue moon, I feel like I'm being pulled out of the top of my head. Very weird =(

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That describes it completely. I'm so afraid I'll have my grandchildren with me in the car if it happens. Ever mention it to a doctor and get any feedback?

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Just a questionable look, then an MRI that showed nothing. ???

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Ah, yes, the ever present questionable look. I'm going to mention it to my cardio next month. He's really really good at questionable looks, but he's got a great determination to get to the bottom of things. I'll let you know if he comes up with anything.
Thanks lots for your input.
V

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V, I have the same issue. I have had a cardiac mri, holter monitor, heart cath, tee, and event monitor. The event monitor recorded my heart beating backwards for 6 beats. The spells come on suddenly with no warning and anytime of the day. I was told that I'm having ventrical arrhythmias. In my case, I'm having what appears to be nsvt-nonstaining ventricular tachycardias. (see http://eurheartj.oxfordjournals.org/cgi/content/full/25/13/1093). I had one in the car while driving my son and felt as though I passed out...I was scared to death. I had one while interviewing a CFO during an audit and almost hit the floor. Mine are usually sudden, no warning, I can feel my heart rate speed up, sometimes, I feel as though someone has kicked me in the chest. I was told not to over exert myself and to take an easy as much as possible. Tomorrow, I will be undergoing a ep test, which is another heart cath stimulating the heart to recreate the arrhytmias which will evalute if I need an ICD, as these can cause sudden cardiac death. (see http://www.hrspatients.org/patients/heart_tests/electrophysiology_study.asp ). No sarc has been detected in my heart, but I was defined in the 'grey' area. I would suggest you see a ep cardiologist-they specialize in the rhythm of the heart; totally different than a regular cardiologist. Ask for an event monitor. In addition, you may want to have your ears checked as an ear infection can cause sudden dizzy spells. The main question would be do you have other symptoms with these sudden dizzy spells? Medications may also cause the 'sudden' dizzy spells. Keep a journal and see an ep cardiologist as soon as possible. Good luck.

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Thanks, mvaughn. I'm not sure that they happen often enough to wear an event monitor. It's happened about three times in the past few weeks, and it comes out of nowhere. I'm feeling great, than all of a sudden I'm not. As I cannot be medicated, I know it's not that. I've had a heart murmur since my youth, but the cardiologist insists it's benign. I go back to him next month, and I intend to bring this all up. Thank you so much for your input. You've been so helpful.
V

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PS...the best of luck with your test.
V

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That's exactly what keeps happening to me. Not too often, out of nowhere, really scary. As if something was pulling me, pressure in the back of my head. It's not just being dizzy (like from low blood pressure). It's hard to describe. I have to hold on to something, otherwise I would fall. It's actually very strong and you can't stop it. Only a few seconds, but it's scary. I thought maybe it's neurosarc. I am thinking about having head MRI.

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I also have had problems with dizzy spells. The worse was at a eye doc appointment. I spent a couple days in the hospital and many tests following. Results......everything was normal except my tilt table test, I passed out. I visisted a endocrenologist (sp), neurologist, and 2 cardio docs. They all told me something was wrong but couldn't figure it out. The Neuro seemed to think it might be neurosarc but wouldn't treat me. I finally say a Autonomic specialist and was diagnosised with "Dysautonomia". This is were the autonomic systems sympathic and parasympathic systems battle. I have been put on meds that could take 3 mths to a year to work. It really stinks.....I had to stop driving (due to a couple of spells while driving), lost my job as abank manager and at this point still feel the same. The doc does question whether or not it is related to the Sarc (I have confirmed pulomonary sarc). Please don't give up, take it serious.....because if you are like me you start to question whether it is in your head.....BUT ITS NOT!!! If you can fine a Autonomic specialist, give him a chance. The Johns Hopkins doc I saw told me that the only Autonomic doc were at the Mayo clinic, but I googled "Autonomic specialist" and found one 3 hours away. Trust me it was worth the trip to put a name on the symptoms!!
Good Luck!!

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Thanks, litchfield. I haven't looked yet, but I live in NYC, and there's a good chance that I can find one here. I'm willing to try anything to get to the bottom of this. I'll bring it up to my cardio as he's extremely caring and takes a real interest in my treatment.
I'll keep you posted.
V

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ask your dr. about inner ear imbalance. There is a tiny structure inside the ear that sometimes gets out of place and causes dizzy spells. Happened to me, but mine were moving head too fast and also happened lying down.

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Thanks, MunkeyBoy. I'll add that to the other great info I'm sharing with my cardio.
I'm also going to try to pay close attention to everything that's going on when it happens. I'm so busy trying to prevent myself from hitting the floor that I'm not concentrating on what's going on in my body.
V

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Mine are not cardio or inner ear related - just sudden, with no warning and no other symptoms - kind of like someone tripped over my wires and unplugged me for a few moments.

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have had the same experience,dx with sarcoid jan.2008,started having the dizzy spells jan.this year. last a few seconds to a few minutes.saw my doc did all the blood work ,blood pressure,pulse, everything checked out great,he believes it is (benign paroxysmal positional vertigo) which will come and go can be treated with drugs but could take a period of time to take effect. I decided no drugs,the sensation passed after a few weeks. then this morning hit me again when I got up lasting several minutes.does not bother me as I'm sitting up but sudden movement or turning my head to the left I get that drunk feeling.look up vertigo on web will give you a few more possiblities. hope this gives you a little more info.

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I don't need to even move for it to happen. The last time I was standing in the kitchen talking to my husband. If I didn't have the refrigerator to slide down I would have gone over backward. And just this morning I was lying in bed with my eyes closed getting ready to face the day and it happened. Felt like my brains were sliding around in my head and my eyeballs were rolling. I felt like the whole room was moving. Only lasted about half a minute, but that was quite enough. After it passed I felt fine. ?????
V

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Guys,
I think there is something here directly related to sarc.
When i relapsed 1 yr ago i was dizzy all day every day and felt intoxicated. After reducing vit D intake i got some relief but have had the spells you speak of having to grab counters etc in supermarketsto prevent me from falling over all of a sudden to minor blackouts and uncontrolably falling asleep. There are too many of us saying similar/same things.

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I have this too. No rhyme nor reason. Happens several times a month. Scariest is in the shower and of course when driving. I don't even mention it to the doctor. Why bother? We all know it's a part of our lovely demon sarc and what are they really going to do? We just have to live with these strange "unexplainable" occurrences. I have come to the conclusion that even with insurance, I cannot afford to go to the doctor to have them tell me they don't know what it is. After a $25 co-pay, the deductible, the percentage the insurance company doesn't pay, it's just not worth it. I have sarcoidosis, weird things are going to happen. The most I got out of going to Denver was "we have found that the fatigue associated with sarcoidosis rarely responds to treatment and that it lingers, forever". And so it does. Along with all the other symptoms we have...

Have a great day everyone!

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The dizziness (vertego) can be related to a number of things, cardiac or neuro. This is one of my main symptoms that I ignored for a long time. I have neuro sarcoid only, no other site. BPH (benign paroxysmal positional vertigo) is what they thought at first, but after 18 months and a brain biopsy I was finally diagnosed with sarcoid in my brain and spinal cord. The treatments are all the same. Don't drive if this is happening to you.

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I have had the dizzy spells for a while ,but now they are happening about every week . I was dx with sarc in 2004, stage 2 pulmonary. I was on prednosone for 2 years . I'm scared of hot showers and baths , but I love them .I get soo dizzy .I dont wanna check for neuro sarc . This disease gets on my nerves . It's in remission (ha ha).

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Is it EVER is remission??????? It seems to go from one thing to another with regularity. Can't breathe, can't walk, can't move my hands, back to can't walk, to dizzy, to rattling in my chest and pain. I finally get the ends together and the middle falls out. I'll be 55 next month, and I've been attacked by an autoimmune problem since I was eight years old. (Just figured THAT one out two years ago.) I know what to do when things hit me, but the dizzy spells scare me because when it happens it's the only time I am forced to forfeit control of my body over to this disease. I am totally unable to do anything to help myself.
Thank you all for your understanding and support.
Luv u all
V

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