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SHORT TERM MEMORY LOST

tbcrews
  • By tbcrews
  • Posted October 21, 2009 at 10:12 am · 28 replies
  • In Symptoms
  • Shared with the public
  • Edited October 21, 2009 at 10:14 am
0 Recommendations

HEY I HAVE ANOTHER QUESTION FOR YOU ALL, HAS ANYONE EXPERIENCE ANY SHORT TERM MEMORY LOST. I THOUGHT AT ONE TIME IT WAS JUST SOMETHING THAT WOULD LEAVE BUT, LATELY I CAN LOOK AT PEOPLE THAT KNOW WHO THEY ARE OR BE ENGAGED IN A CONVERSATION, AND I WILL SIMPLY FORGET THE PERSON'S NAME OR EVEN WHAT I AM TALKING ABOUT. I REALLY FEEL LIKE I AM GOING CRAZY. I SPOKE TO A MEMBER OF MY CHURCH THAT HAS SARC AND SHE COMMENTED THAT SHE IS EXPERIENCING THE EXACT SAME THING.

Explore topics in this discussion:

Pain Memory Burns Neurosarcoidosis

28 replies

Rosey2

Your not going crazy its this damn Sark!

I have the same problem... its hell!

In my late forties after raising my daughter (alone mostly) I put myself through University to become a Teacher. It was very difficult but I worked really hard and qualified, I have only been teaching for three years and am currently on sick leave whilst I find alternative employment ..... this memory thing just made it impossible to continue even though my hours were part time and only 15 per week - I just kept forgetting what I was saying in the middle of lessons. I am an intelligent woman who worked hard to get a career late in life but this damn disease made me look like a ditzy blonde and my students and colleagues found it highly amusing (although to be fair they didn't know about my illness). It was and is however extremely embarrassing annoying; and heart breaking on many levels..........

Thanks for giving me the opportunity to get that off my chest, sorry for ranting. X

tbcrews

I totally understan what you are saying. I really hate it and just like you said it is totally embarrassing. I am going to my Dr. on today and I am going to tell him all of my symptoms. I am just sick of all of this mess

Rosey2

Good luck at your Doctors tbcrews. Let me know how you get on. I hope you get some answers and hopefully some help. X

kderr6

I was just talking to my mom about that this evening. I was cooking hamburgers and forgot once again about something on the stove. I'm grateful nothing has happened. I stay close by to the kitchen because I'm afraid I'll forget completely, that really bothers me that this is happening, I'm not prepared for these symptoms..Ugh! I forget words or difficulty explaining something...it's so frustrating. I was hoping it was the Pred, but being on such a low dose I guess I can't blame it on that, it just breaks my heart. I hope this doesn't last forever.

Thanks for listening.
Kris

tbcrews

i went to the doctor on today and now i have to go through different tests and chest x-rays and i have to see a heart specialist as well as a pain specialist. I am really tired of all of this

tbcrews

I know and I have small children and it is so hard to try to read when you sometimes forget what you are talking about. I am very depressed behind this

kderr6

I'm sorry your going through this, on the lighter side you can make up some words to the story and maybe your kids won't notice.....lol! I try to find the humor as much as possible, but sometimes like I mentioned earlier it can be a bit frustrating. Hang in there and know that your not alone and I hope you find some comfort in that. Please keep in touch.

IreneMarie

When I'm home (and that's most of the time) I've trained myself to use the stove timer to remind me to do something (aside from lists, lists, lists) or check back on something - I'm so easily distracted. This came about after many near misses that could have turned ugly - either my husband or my guardian angel is keeping an eye on me!

Gypsy

HI,

Me, too! The scariest was coming to an intersection and reading the left turn arrow as green light and driving straight through!!! As I realized what I was doing I realized that there was a cop directly across from me!!! Eek!!! Fortunately, he was busy with his computer!

But I can't seem to solve problems like I used to! I have to write everything down!!! I can't remember the 3 things I went to the store for without a list. I stick to the old fashioned planner and notepad because I have had cell phones and PDAs crash and break! There went my brains!!!

My newest trick is locking the keys in the cars!!! My guardian angels have busy days!!!

God bless!
Mary

Todd_O

I called my wife today about something, and she had to call me back...5 min later i completely forgot what I was calling her about.

I'll go out to the garage for a tool or something and forget why I'm there in the first place, so I have to go back and retrace my steps to figure out what I was doing.

I'm getting my kids names mixed up too. It's funny, I used to kid my grandmother when she'd go through all of my cousin's names to to get to me...now I know how she felt. Sorry Gram!!!

I see people I used to work with and forget their names as well. It's very disconcerting.

Frankie-Bear

I am actually waiting for a neuro doctor to call me back. He couldn't find a physical reason for me to be having memory loss but it is there. I went to a neuro psych eval and it is all frontal lobe related and it is not all the time it is off and on. Some days I am fine other days I spend hours lost going to the same places I have been to a thousand times. This morning is a fine example I had to call my best friend to go over the list of meds I take in the morning because I couldn't remember them all. Other days I have no problems but then days like this I have to have somebody help me. I will forget the names of things that I should know the best is when I forget what month it is and can't figure out how to even figure out what month it is so that I don't look stupid.

Frankie

glowgirl

This memory loss is for the birds. We call it a sarcoid fog..the command of words we once had...GONE. Distracted easily..join the club! It is very discouraging. I find a humorous way to deal with it...I call it my sarcoid senior fog moment and move on. Same with my sweats, day and night...I am having my own personal season! Just embracing what we seemingly cannot change is a victory for us fellow sarc sufferers.
Wishing us all a pain free day.
Glowgirl

Tim_from_Tucker

I just saved my stove-top espresso pot from melting; left it 'cooking' for 30+ minutes. I need a timer on my neck.

My primary memory problem is remembering words when I'm conversing. Even simple words refuse to leave the tip of my tongue. Peoples' names have always refused to find a place in my brain. If you want me to know your name, it's best to wear a name tag. My docs say my meds exacerbate these problems. Sarc sucks.

mamajean

Ok that is me in all the posts but I want to know how do you remember to look at your list or even remember where the list is?
Better days to each of us
mamajean

42many

I left my bath running and forgot to pick up my kids from school...the names of words is awful. My psych called me loquacious, very polite of him. I just keep talking until I (hopefully) can find the thread I started on. My family just laughs at me and reminds me.
From a once highly intelligent multi-tasker to a ...oh shiny...what was I saying? And who are you?
Lists and desk top paper calendars in every room, a stash of appointment cards in purse for back up, I cannot remember to enter the data into sidekick so it's useless, phone numbers....
I hate trying to type and think of plan B and C words when by the time you are ready to enter the actual word you had in mind it has flown off into the ether.
Brain fog. I do show mild inflammation and some punctate lesions with a small area of gliosis in my brain scans but really, inflammatory, systemic disease. How could we expect the brain to be spared? Our whole body suffers somewhat with a systemic disease.

c1cope

Same thing here. Thank goodness I have a spouse that knows me pretty well. When the words won't come, I just say "oh, you know what I'm talking about." He does the nod and smile. Oh well, if the house is on fire and I can't get the words out, hopefully he will smell the smoke. I do crossword puzzles and computer games hoping that will help. I think the illness and meds together is a double whammy.

Hungdee

Oh wow. All this time I have been blaming the symptoms you all are describing on the meds. You see, I am on so many of them that it is easy to think they are the problem. Now I know for sure it's the disease.

I don't drive anymore because my pain meds are so strong I easily fall alseep standing up. Sitting Down? Forget it! I usually leave the house these days only for doc appointments and treatments, and my partner (retired RN-lucky me!!) always takes me. She acts as my brain when my brain stalls out. Like you've said- a word I intended to use is gone and derails my entire thought and speech process. I only use microwave, toaster, and hot water dispenser. That way I can only do minimal damage- no burning down the house or severe burns from forgetting to use a potholder.

This all from a past company president who could think circles around many of my colleagues (NOT bragging, just my gift from God and my parents). Now I'm disabled, Sarc is my gift from God and I've gone from being totally upset and dismayed about it to laughing at myself. That's the only coping mechanism that made it all OK. Funny, I rarely forget what I'm laughing at!

bmaz

I have lost my vocabulary. I might be talking to someone and the words I want to use just won't come up. It is very frustrating. I haven't told my doctor about it though. I don't want another medication. I am a teacher and it is getting worse. When I talk to parents and other teachers, it's embarrassing and humiliating. ~sigh~

Frisch

It is not you, it is the disease, I experience the same thing, I thought it was me until I read everybody elses blog.

tbcrews

I can realte to all of you all I sometimes can become so frustrated at this but i try to take my time when i am talking and concentrate on what i am about to say before i say it but is very hard.

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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