I was diagnosed with Sarc a year ago. I have stage one pulminary. It's only symptomatic in my lymphnodes between my lungs. Since diagnosis I have had it for a few months on my face (that lasted forever), and my joints are falling apart! The dry eyes are unbelievable! Sometimes I feel like my lids are going to rip my corneas off! I work for Optometrists and they always just say "you have no tears at all." I had my first follow up with my pulminologist last month. CT scan showed no change in granulomas. We went over all my symptoms: Constipation, extreme dehydration, dry eyes, dry mouth, horrible joint pain and muscle tightness.
She thought it must be sjogren's, but thought it was possible I could have RA. She said it's common for Sarcies to get it. All the tests came back normal except for my "Sed rate". Sjogren's was negative. She left a message that sed rate test was sensative and that i should retest at next f/u in December. I looked it up and that is my level of inflammation. It should be below 7 for a female. Yikes! I knew it was bad. I have taught fitness for 15 years. After lung collapse and knee surgery I have had to quit. Still work out on my good days, but sometimes that's only half the week, collectively.
Had battled feeling very down after surgery and weight gain. I feel like I'm starting to even out a little now. Only managing my health with diet, exercise and supplements. Trying to stay mostly anti-inflammatory and going to start seeing acupuncturist and chinese medicine specialist in December. I drive 4 hours to see my puminologist. Just wonder if I should drive the extra hour and a half more to go to Jewish. Doesn't sound like I'm that bad in comparison to others here. Body just never felt so bad. I'm too young to have so many aches and pains.
Does anyone know if the sed rate is directly related to RA?