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Seborrheic dermatitis and/or eczema

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I have what appears to be dry inflamed red skin on my face cheeks from time to time. I apply Rosula (sodium sulfacetamide 10% & sulfur 5%) and it always clears up followed by much flaking of the skin. It has gotten much worse since being diagnoised with Sarc. Upon doing research I happened upon the statement "Your doctor may also prescribe a nonsteroidal ointment like the immunosuppressive medications Elidel or Protopic. Question? Does this imply that Sarc. could be the cause of the worsening condition regarding (immunosuppressive). PS the article says you can have both Seb. Derm. and Eczema at the same time and many doctors can't tell the difference.

3 replies

On the subject of eczema, my son (almost 7) and I both suffer from it terribly. It has NOTHING to do with sarcoidosis. It is genetic.

My dermatologist told me that there are two times in your life when you get it, 1st, when you're a baby and they call it "cradle cap" (although I think the term "cradle crap" suits it just as well! lol) and 2nd, when you're middle aged. (I did NOT like her saying that when she was diagnosing me at 35!) She called it Seborrhic Dermatitis (which is NOT, NOT, NOT the same thing as dandruff! Dandruff is dry skin. SD is an oily scaly skin.)

I don't think it's gotten and worse or better since diagnosis. What brings it on mostly is stress! When is anyone NOT stressed with this disease?? But, I think that having this secondary condition, may carry me back further in deciding when my sarc began.

I've had lots of suggestions, but the things that work best for adults is Ketoconazole or "Nystatin and Triamcinolone Acetonide Cream"--if you need prescription strength.

The Ketoconazole comes in a shampoo that you use about every other day. It is used on your hair, in your ears, and on your forehead. You leave it on for 5 min and rinse. (Don't get it in your eyes or mouth though!! yuk!) Use it in conjunction with the "K" cream.

You use that on all affected areas 2x a day. Once it's under control, you don't HAVE to use it every day--just when you have a flare up. The "Nystatin and Triamcinolone Acetonide Cream" cream is the same method, it's just that I've used the "K" cream for so long (10 yrs.) I didn't think it was effective any more FOR ME. It works pretty fast.

If you don't need or want a prescription, or you're using it on a baby, start with hydrocortizone cream. It will take the inflammation away and calm it down. If you use other products (lotion, creams, ointments, etc.) on it when it is inflammed it WILL sting and burn!

Once it is back under control, you can use a product called AmLactin. It is technically Ammonium Lactate. It is on the pricey side but it is worth it. (Military can get it for free as a prescription at any MTF pharmacy.) It blocks the moisture from leaving the skin. I got this advice from a dermatologist in Alaska where your skin gets extremely dry and eczema flares up quite often!

Loran : )

Reply

r2d,

I'll chime in that sarc CAN affect your skin for several reasons ......
(a) Sarc targets ANY and EVERY organ in our bodies, it is fully documented that sarc attckes skin. However, it is generally in other forms such as EN. The point being, sarc does affect skin..
(b) Sarc does attack other organs such as kidney, liver, stomach, as such, when those organs are not functioning properly the can cause toxins that are normally broken down or routed out of the body (urine, crap) to be circulated in the body. As our skin reacts to external irritants, it will also react to internal irritants and thus produce a rtash or itchiness.

My personal observations are that while many rashes, itchiness comes from outside the body, most doctors fail in making the internal cause for such.

In any case, prednisone will ussually stop the reaction from occuring. Of cource skin reactions can also be caused by drugs or other circumstances.

Drinking plenty of water can help flush out toxins, I further believe that sarc can be exasperated by people who drink little water during a day. I know for many years while living in the Arizona desert, I drank little water which was not good for me.

Hope that helps
harmles2

Thanks all that's good info!

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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