Hi all,
I had a visit to the regular doc (who is an internist) this week, as a last hurrah before I run out of insurance. One of the issues I brought up was the sweating. We've all talked about it and several folks have declared that its a common sarcoidosis symptom, but its not mentioned in the FSR literature or anything else I've read.
Like many of you, I've had the spontaneous sweats, that start with that sick feeling and then the sweating comes, then the feeling like I'm going to pass out, and the need to sit down. I'm so obviously hotter than anyone around, fanning myself and dying of heat.
I am 46 years old and starting para-menopause and so I've been on the fence about my sweat being sarc or just hormones. Sarkie sweats seems speculative, while hormones really do seem reasonable given my age.
So I brought this up to my doc, and she said that if I'm para-menopausal, my hormones might come back normal. But hot flashes CAN and do happen in pera-menopause.
She called me today and told me my estrogen level was normal and my FSH (follicle stimulating hormone) level was normal. Meaning, I'm not in menopause.
She said that para-menopausal sweat happens right around the time of menses, but mine happens any time.
So, with that info, she said that the sweating is very likely related to my sarcoidosis and not menopause/para-menopause.
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Sarkie sweats confirmed
Explore topics in this discussion:
Autoimmune diseases Surgery Menopause Prednisone Sarcoidosis Sweating
5 replies
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- Newest first
- By coleburrell
- Posted November 6, 2009 at 6:53 pm
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i sweat all the time. especially at night. i will literally have a sweat ring on my side of the bed every morning. and day time is just as bad. im 29 so the doctor said it was either the sarcoidosis or prednisone or a mixture of both.
- By ellj
- Posted November 6, 2009 at 7:37 pm
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Funny thing is that both my really good docs know this to be a sign of sarc. The sweats are listed in lots of literature but you are right, FSR omits that. I had the hormone tests too and mine aren't menopausal either. Due to the fact that guys get them too, I'd place my bet on sarc! The way you decribe yours is like mine, it's not just sweating, it is an episode with an ill feeling attached.
For coleburrel-mine were extreme while on high dose pred!
(hey, seokie...came over here for a chat, wow, i can do more than spp! LOL)
- By seaokie
- Posted November 6, 2009 at 11:25 pm
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Well as much as I like to blame everything on sarc, logic dictates caution. So its kinda fun when the doc gives a green light to blame something sarc.
Hey sarc! You (oops, don't want to get banned). @#$^!!^*$ disease! Its all your fault!
:)
- By AmyLauren
- Posted November 8, 2009 at 8:51 am
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WE should write a book on sweating as a disability!!LOL
Don't forget Autoimmune diseases come in groups...Get your FSH levels checked and TSH levels.
I myself felt like a car that was turned off but somehow my motor was still running UP HILL.
Just because you are in that age group....I started at 39...(It took 3 years to figure out and diagnose properly) what was going on. But in Auto Immune disease hormones play a key role or so the say at Hospital for Special Surgery.... Better to go the gyno while you have insurance!
- By bgreis
- Posted November 10, 2009 at 7:02 pm
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I started having sweats when I first became acutely ill again. The sweats came with weight loss, until they put me on pred! I am on pred again, but sick again, so, who knows? I do know that i had a total hyst when I was 23, so the meno thing shouldn't be an issue. I have been on HRT since a year following the hyst. I believe that illness and sweats go together, and I have had 3 docs say that the sweats are a symptom of Sarc.
We are all different, just similar!
Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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