Sarcoidosis Vs. Psoriasis

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I have both Sarcoidosis and Psoriasis. Have had Psoriasis since the age of 8, and I was diagnosed with Sarcoidosis approx 3-4 years ago.

The initial trigger with the Sarcoidosis was Erethema Nordosum, which completely took over my legs to the point of me not being able to walk whatsoever.

This lasted several weeks while it took doctors and specialists time to work out what was wrong (apparently the episodes I encountered were "not common in Australia", and I should "GOOGLE what Sarcoidosis was".

Upon further ummms and uhhhhhs from doctors, and so many tests, they were scratching their head because Psoriasis was not common with Sarcoidosis at all, and don't go hand in hand.

As I started treatment of Predisinone, I noticed a very strange occurrence, the Psoriasis started clearing (I am talking some serious Psoriasis up the arms). After 2 weeks, the Psoriasis had almost cleared completely.

I did a bit of research on the good 'ole internet, and found that the Sarcoidosis I suffered was the collapse of T-Cells in the blood (in a sense).
Psoriasis was ALSO affected by damaged T-Cells, and the medication was reversing the faulty T-Cells.

As I started lessening the dosages of the Steroid for the Sarcoidosis, the Psoriasis started coming back tho.

Now, I am back to where I started, currently dormant sarcoidosis, and psoriasis on the arms. It's a never ending cycle.

Any link I wonder tho????

Thoughts??

2 replies

Hi, sorry to hear you have both, I wonder if you could tell me the dosage you are taking for Psoriasis, I have sarcoid amoungst other things and my partner has Psoriasis, the time has come for us to ask the GP(we are in the UK) for steroids and would be intrested in the dosage they have given you? hope you dont mind me asking, take care speak soon by email, marian-anne

Hi Marian-anne,
Sorry about the late reply.
When I was diagnosed with the Erethema Nordosum and swollen Lymph nodes, they started me off on 55mg a day.
Yes, it is a nice high dosage and I was having some great little side effects for a few weeks, but that was to lessen the Nordosum.
My legs were swollen 3 times their size with bruising and some amazing pains which literally rendered me bed ridden for about a month.

As the swelling came down though, so did the Psoriasis. It seemed to have a dramatic response, but unfortunately as I reduced the dosages of Pred...the Psoriasis came back to it's natural state.

I still have Psoriasis at the moment.
Has your partner had Psoriasis long?
Do you have any children (hereditary question). I am very fortunate to have a gorgeous daughter (8 years old), who has managed to skip the Psoriasis gene.

Funnily enough though, I am the only person in my history (that I know of), that does have any form of it.

I am not currently using any psoriasis related medicine/remedy's as I have found no relief or effect from the countless attempts.
Psoriasis is here to stay with me unfortunately, but I do keep a very positive outlook on it. It has made a very happy and friendly character from its presence.

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