Hello, My names Lori and I was diagnosised with sarcoidosis at the age of 35, im now 42. My mother also has sarcoidosis and although they say its not something that can be passed from parent to child, it has with my mom and I. She also was diagnosed when she was 35. My mom had sarcoid so bad that there were days when she couldn't walk. She had it in her liver, spleen, nerve endings, muscles, eyes and a little bit in her lungs. I however, have it in my liver, spleen, eyes and lungs. My eyes are fine now but I still have it in my liver, spleen and I have it really bad in my lungs. My pulmonary specialist put me on methatrexate but my liver enzymes sky rocketed and I had to stop taking it. So once again im back on the prednisone. Has anyone taken anything else thats helpe.d them? Im so sick of being sick, of sitting back and watching my family having fun but not being able to participate. Its so depressing. I can't even laugh with my children without coughing and choking and becoming short of breath. Im forever sick with a cold or pnemonia and sometimes it just gets to me. I've seen what my moms went through and although I don't have the pain that she has had, I just can't breathe. My mother and I have the same doctor and she is also on methatrexate but she is doing excellent the pain is gone, her diabetes is gone, she still has a little fluid in her lungs and has to have blood test often and chest xrays but she is in total remission. Im so happy for her because she has been through so much in her life with this disease. Can anyone give me some ideas of different drugs that they've taken? Or what has helped you get more air? I know I should be thankful it could be worse, but im missing out on so much. I wish you all the best of luck and hope that they find a cure for this illness.