Sarcoid and Infertility

Has anyone had to do IVF while dealing with sarcoid?

6 replies   

I'm sorry but this isn't going to answer your question but:

I did three attempts at IVF about 6 years before sarcoidosis manifested. It is hard. Very hard. Emotionally and physically.

Of course, if it pays off, I'm sure it will be worth it. Just be aware and do as much as you can to keep your stress under control in what will be a very stressful situation if you decide to pursue this avenue to parenthood.

I had endometreosis and did IVF 4 years before being diagnosed with Sarcoidosis. It was successful once and worth it. Good luck

I never had IVF but had serious fertility issues. "Habitual Aborter" is the lovely term they use to describe me...I was capable of conceiving but never carrying to term. Genetic samples of my babies were chromosonally normal. No cause was ever found. My disease became active while I was going through the fertility issue's. They blamed it on the hormones. Uvietis drove me to the doctor while I was pregnant with my twins. After I lost the twins, my health declined rapidly.

What a positively horrible term to use with a patient. As if you were miscarrying on purpose.

I worked many years for doctors and would certainly never have expressed a diagnosis to a (grieving) patient in this way.

I agree. The first time I heard them say that I was stunned. When I asked the first doc who said that in front of me, he said it was "just a clinic diagnoses and I shouldn't let it bother me." Like losing child after child can be boiled down to "just a clinical diagnoses." You think they could come up with something a little more.......I don't know...is compassionate the right term?

Absolutely, and I would think a diagnosis of recurring spontaneous abortion would be much more accurate and a lot less offensive.

In fact when I looked it up, habitual abortion is the clinical term but it is also termed recurrent abortion. Your doctor was exceedingly insensitive, in my opinion, and should have shown a little more tact when dealing with an emotionally charged situation.

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Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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