Rheumatoid Arthritis from Sarcoid?

I have been diagnosed with sarcoid for over a year now, but lately have been experiencing severe joint pain and swelling in my hands, ankles, feet, knees and shoulders. I read that with the auto immune attacks from sarcoid, RA can develop. Has anyone else experienced this? I am so tired of doctor after doctor, don't know who to see for this one. Any help or advice would be appreciated.

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I was lucky if you can call it that I have RA in my left hand and in my left ankle and in my right thumb. I think it was caused by sarc but then I think that I am so heavy that I tilt the universe so that all things come slowly rolling towards me that is why all the rotten things eventually hit me. It is not called paranoia it is called hyper vigilance paranioa is when you sit outside with a tennis racket and try to hit the invisible stuff that the universe is sending your way. Haven't tried that yet not on enough meds YET!!!!!

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Thanks Rarity. It is nice to know that I am not the only one who has experienced these symptoms.
Good luck!

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Bboop,

I have been dealing with the joint problems for about 3 years. My Rheumatologist is adamant that it's RA even though all the blood work for RA keeps coming back negative. I am also seeing Dr. Iannuzzi for my Sarcoid who is apparently a world recognized Sarcoid expert, and he is adamant that it is the Sarcoid in the joints. Either way, the treatments are pretty much the same. Take care,
Julz

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It was because of the sudden onset of rheumatoid arthritis that I discovered I had sarcoidosis. Evidently my RA can't be treated cos its a secondary condition caused by the untreated first condition, just sounds like a load of twaddle to me.

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They are going to put you on something like Meloxicam or one of it's evil twins so because of it's side effects they may be reticent to start you on them. But whether it is RA or Sarc you are going to need it to battle the underlying cause of RA or the inflammation of Sarc. Either that or you can have radical surgery to remove all affected areas which may become moot if you get it in your hips unless you really want to become shorter. I love to let my mind wander even though it is far too small to go out on it's own.

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Thanks to all for the insight into yet another "fun" experience from sarcoid. I have tried to blame the joint pain on aging, being unable to exercise as much because of the weight gain, etc., but when my wrists and fingers started swelling and became too painful to move, I decided it must be more.

Are you able to work with this pain? Do they consider disability for this?

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I was diagnosed with RA in my 20s and it went away when I moved to Calif. Fast forward 30 years and now I have Sarcoid and it seems all my symptoms are both. We can't seperate them at this point.
Bunkie

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I first was told osteo arthritis in my twenties? I did flip houses and a lot of "wo-manual labor"?
I have severe inflammatory ankle arthritis and joint pain in wrists, hands, shoulders, and some in knees.
I won't take the traditional meds due to side effects.
I recently developed a node on my left index finger that is hot and tender and undoubtedly a sarc granuloma. I had it in right thumb for years and it went away.
Heres' the issue with treatment: it is well documented with imaging techniques that lesions will come and go (even in brain and bone) with or WITHOUT treatment. So it is up to each individual to weigh to research their own symptoms and make an INFORMED choice as to what treatment side effects they are willing to live with. If your pain can be treated with pain meds, do just that. If your scans don't show joint damage yet, maybe you have some time to see where research leads the clinical doctors. And yes, arthritis pain is debiliatating and just cause for disability. Go straight to a lawyer to streamline the process.

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One of the weird things about Sarc is that people with it often test positive for RA. I tested positive for RA in 1988 (which my pulmonary specialist considered as supporting evidence for a Sarc diagnosis) but don't think I've ever had RA just Sarc arthralgia. (knock wood)

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I was diagnosed with sarc last year and 6 months later I have RA. I think they run concurrently in me but I have had sarc symptoms for years before they finally diagnosed it.

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I too have RA pain in my hand and most my other joints.

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I had RA symptoms so bad in my mid 20's but they couldn't diagnose it then. Along with them I had horrible fatigue and flu-like symptoms, along with chest pain. I thought I was dying...I felt so horrible. I could hardly get out of bed or do anything, was in a wheelchair a lot of the time...couldn't walk hardly. I described it as, "Everrything inside me hurt, including my muscles." Of course, not finding out a diagnosis didn't make me feel any better. My first husband got tired of a sick wife, I think and it contributed to our divorce. (He later appologized and blamed himself)
Anyway, it went into remission for 17 years. Then I was getting winded along with chest pains.....now I live with it for the past 5 years and hardly ever have joint pain (except new hip pain). But I remember the horrible way I felt way back when. I sympathize with you and all dealing with joint pain. Interestingly, all that time I was so sick, never did my sed rate go up or any other indicators in bloodwork showing inflamation!!! Go figure. I thought I was going crazy and convinced I was going to die.....but I didn't...and it passed.....

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I do not have RA, but it was the RA-like extreme pain in all my joints that sent me to the doctor. I recently asked my rheumatologist if the sarc causing the joint pain could be as damaging as RA. He said, "No, but it will hurt just as bad."

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Thanks everyone so much for the insight into what you have experienced. I will see if I can get into a rheumatologist to get checked. Sounds like many of you are going through the same problems I am or have in the past. Looking back, I think I have had sarcoid for several years before it was diagnosed. I just know I am tired of feeling back, aching and being sick. It is great to have all of your support through this. Thanks again......

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My specialist explained to me that we are more vulnerable to all immune diseases (R.A. is one of them) because of having sarc. So you may have rheumatoid arthritis or it may just be pain from sarc. I have similar pain to you but I don't have R.A. You can be tested, it is just a simple blood test.

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I also have arthritus issues when I am having a flare. It depends on how I am taking care of myself.

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