Predisone, isnt working anymore?

• By Mark_K
• Posted August 13, 2008 at 7:00 am
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I don't think that you should just stop taking it. You have to taper down, to get your body used to living without it again. Steroids didn't work out too well for me either.

Mark

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• By jbrock
• Posted August 13, 2008 at 9:20 am
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Marks right don't just stop suddenly. I'm sorry that you feel worse than before. Medicine should be designed to make you feel better not worse. Call your doctor tell them how you feel. HOpefully they can do something else for you to make you feel better not worse. Take care.

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• By annieg
• Posted August 13, 2008 at 9:26 am
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Hi Merlyns,
I agree with Mark---you have to taper down. Call your doctor, tell her how you feel, and ask her about the prednisone. This may be just a rough spot in your getting better. Prednisone can be strange stuff, affecting everyone differently. I've been on it in varying doses since 2003 for pulmonary sarc. It has helped.

About 10 years ago, my left knee was the same as your right knee, swollen, painful, and warm to the touch. After taking x-rays, my orthopedic doc said I had synovitis. Now, it has progressed to osteoarthritis, and at age 65 and a different doc, I am considering shots or a possible replacement. Walking is tricky, and I, too, feel it could give out at any time.
Hope this helps---please remember we're all family, and it's so reassuring that we all have so much in common, that we can come here and find support.
annieg

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• By merlyns_girl_cris
• Posted August 15, 2008 at 9:43 pm
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Thanks for all your replies. I talked to my doctors PA today. I have an appointment with my doctor weds. so will talk to her about everything then. But her PA did say that they will probably have to come up with something else other then the predisone, and the methotrexate. She said by now I should be feeling some what better, and not worse. She said they only wanted me on the pred till they got me to the maintenance dose for the mtx. Which I go up to suday. But not sure if they are going to keep me on that now either.

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• By Soosie
• Posted August 16, 2008 at 4:51 am
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I started on my first lot of Predisone today. 6 x 5mg each morning. I will await to see what happens, if anything. I am now on 24 tablets a day for various ailments that I have, shake, rattle and roll, that's me!

It was interesting to hear about the problem with the knee. About 10 years ago, just after I was diagnosed with sarc my left knee started to play me up and kept giving out on me when I walked - (pretty dangerous when on the stairs). I saw the doctor who put me on a waiting list for an exploratory. Well within 2 weeks f going on the list, my whole left leg swelled up and felt very warm to touch. That same week I was taken into hospital for the exploratory and whilst under the general anathestic they had to operate and 'unfuse' the tendons around my knee as they had joined together. I was out of action for about 3 or 4 months and it took a year of physio before i could use it properly. Even now, I cannot kneel down on it as it still feels very strange. They told me they didn't know what caused it! But that the same thing could happen to my other knee, which from time to time does play me up! After all these years and reading all of your journals, I now believe that my knee problem could have been casued by the sarc. What do think, could i be right, especially as they gave me no explanation at all.

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• By gonenatural
• Posted August 16, 2008 at 8:59 am
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I am on Prednizone, 30mg a day. First time on it for Erythama Nordosum, 60mg a day. You have to taper off. I am starting today after what I read about Prednizone and Sarcoidosis. It was pretty scarry. I have been on it for 2 months and it has never worked for me for my lungs. Dr says that go to 25 mg for a wk then 20 mgs for a wk then you can go off at 20mgs. Other drs say 10 mgs so they all have their own ideas.
And yes, Prednizone can stop working but I don't see it happening that quick. I am happy that you have a quick appt.
I'm calling my pulmonary Monday. I had to sleep sitting up. I am still waiting, after 2 yrs, for a diganosis. My breathing level was checked yesterday but I don't feel it. So tight in my heart / lung area and hurts to lie down and really achy to bend over. I don't know what to do. I am at a loss myself. Only thing keeping me going is my pets, compainion, garden and proving drs wrong.
Good luck with your dr appt. and your health.

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