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I swear I cant take this crap it is getting worse every dang day!! Worse at night!! My shoulders neck and upper back burns and aches like sumone is holding a match to it!! I was hurtin so much a minute ago and started shaking all over!! Does anyone else have this neck back and shoulder pain? I will be soo glad to make that 13 hour long ride to Cleveland Clinic I swear I wudnt care if it took ten days to get there!
Oh yeah and did I mention the only way that the pain is relieved at all is if my children or Fiancee pushes in with as much strength as they can w there fingers all over those areas! I can even stand for them put thier elbow on my neck and push w all thier weight or take the heels of there feet...its crazy but I am serious. To message like u normally wud u know sqeeze the neck or shoulders hurts or burns worse. So only inward pressure!
I use a pain patch that you get over the counter. It doesn't get rid of the pain but it helps. It is Salonpas. I buy mine at WalMart. I also use ice packs on some days and heat on other days. Sometimes one or the other will work and sometimes neither. Every day is different. I know it sounds crazy but this has become MY normal.
Teresa
have they diagnosed u with anything!
Yes pressing on he painful place is the only thing that makes it better, I don't know why I just do it, or have my husband do it. Take a hot bath, at least 400mg ibuprofen , totally de-stress and make sure you get an apt. If the pain gets too bad go to the emergency room and get some real pain killers until you get to the clinic.
I've had lots of different health issues since the age of 15. (if you have time read my profile this will explain more) I was diagnosed in 2004 with sarcoid in my lungs and in 2008 a skin biopsy came back consistent with sarcoid. My Drs. believe all my pain is from Fibromyalgia but if it is then most of the people on this support group have it also. I had to quit taking a new drug that was working so well for the pain because the side effects got so bad but now I'm ready to deal with the side effects again. I also had something new happened today, all my toes when numb for about 20 mins. Never had that happen before. Anyone out there? I always have heal and ankle pain but that's normal for me.
Teresa
I have alot of pain in my feet heels and ankles also. Along w swelling. I cant take Ibuprofen at all. But I got all my medical records today and the actual films from all the radiology also. I have to put it all together. But hope to have it all together by monday to overnight to them. I really hope it doesnt take me 4 to 6 weeks for an appointment. Thanks for all who are replying!
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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