this past week i finally went to national jewish hospital in denver, after almost 5 years of searching and being called a phsyc, they found the sarc all over, more extensive in the lungs than anyone thought, definitely in my heart and neuro, neuro muscular. this place is the place to go, to he_ _ with mayo and those places, i'm telling you, this is place you need to go for absolute diagnosis, yes they do exactly look for the sarc and know how to do it extremely well. i've been all over the country and national jewish is the only one that took a ? of sarc patient and made it true within two days!!!! I know others have had the same success with cleveland clinic. they need another biopsy from the lung to 100% test the tissue before they start me on the chemo drugs. we'll see how long i live and hopefully the tx will slow things down for me. cardiac is very serious and is questioning me as a ticking time bomb. so they are trying to express me through the biopsy quickly. they also found that my diaphram, the muscle you breathe with is not working well, and thats my breathing problem, no one else found that in 5 yrs. if you question sarcoidosis just stop and go to national jewish in denver, co. i know in reality, its extremely difficult financially to travel for our health. but i praise god they are there and this one time there was support for me to get there. just make it easy on yourselves, we don't need the things we go through for the amount of time we go through them. i just don't want anyone else to go through what i have, i want everyone to find it quickly and tx quickly so all is well. god bless all and keep the faith.
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